I haven't posted on these boards since I believe 2008, when GERD started to act up. I'm 31 and have had GERD since I was 16. It was controlled with Prilosec/Nexium for years up until 2008. I started to get heartburn daily and burning/gnawing pain in my stomach. At that point I tried the other PPIs (aciphex & protonix) with minimal relief. The one I ended up sticking with was Prilosec once per day for the last 4 years. It was the one that did the best, but I still got all those symptoms quite often. I decided to ignore the problem until last year, when I had an endoscopy done. I was afraid of the damage being done. Well, the results showed that i didn't have any abnormalities with my esophagus, but it did show that I was having reflux as well as mild gastritis. It was negative for H pylori bacteria. I have no idea how i got gastritis as I do none of the things that cause it.
Anyway, here I am a year later and am suffering pretty bad with reflux, after pretty much everything i eat as well as some burning/gnawing pain here and there. I'm now taking Dexilant (supposed to be the strongest!) and it's barely helping. I'm trying to stick to a bland diet, but even after I ate chicken, avocado, and rice this morning, i still got it bad. I see all these diets that help people, and have been told to start a food diary, but I don't see the need to record it since everything gives me heartburn! My husband works for a GI (the one that did my endoscopy) and he told me to seek a doctor at a college because there aren't many doctors here in Vegas that will help me. So I scheduled an appt to see a doctor at the UCLA esophageal center to get some more tests done. I need to have the ph test and the manometry test done because I feel there is something more going on (hypersensitivity, slow gastric emptying, motility disorder). Who knows! This is just soooo annoying and I'm very frustrated with always having symptoms after eating anything.
Also, I have a few other things going on (fibromyalgia, IBS, anxiety/depression, vulvodynia, hypoglycemia) so I think my body is extra sensitive to pain. I've been off of an antidepressant for a while, so I'm getting back on it now. That will help with the anxiety this is contributing to worse symptoms. However, I still get symptoms no matter whether I'm stressed or not.
Does this story sound familiar to anyone? Any suggestions? I'm pretty much thinking that there isn't any hope and I need to learn to live with constant heartburn/pain. Any advice would be appreciated! Thanks for listening