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Old 12-20-2012, 03:36 PM   #1
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Barrett's found on biopsy. I need help.

I had an EGD done last week. After he said he suspected celiac. I've been eating gluten free and have been feeling better. Biopsy from my duodenum came back and it said Barrets esophagus. I'm scared. I don't know where to go from here. I don't want to face this my whole life. I don't know anything about it. I don't want cancer or to be sick. Please help me.

 
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Old 12-20-2012, 09:19 PM   #2
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Re: Barrett's found on biopsy. I need help.

i am so sorry. i to get sick from gluten and have acid reflux. it scares me to, to have acid reflux.

Last edited by Administrator; 12-21-2012 at 11:58 AM.

 
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Old 12-20-2012, 09:24 PM   #3
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Re: Barrett's found on biopsy. I need help.

i to dont want to face the rest of my life with this either. aggravating to say the least.

 
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Old 12-20-2012, 10:14 PM   #4
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Re: Barrett's found on biopsy. I need help.

Thanks for responding

Also he wants to do an ultra sound and run blood work on my liver. Does anyone know the connection here? Celiac wasn't confirmed with the biopsy but I feel like I have that. I am scared of BE which was said to be found on biopsy. I don't really fit the criteria for it though.

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Old 12-22-2012, 04:41 AM   #5
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Re: Barrett's found on biopsy. I need help.

Fear was my first reaction as well. I was diagnosed w/ Barrett's almost 10 yrs ago. Your perspective improves with education. I think I went through 3 levels; Barrett's, Barrett's with low grade dysplasia, then Barrett's with high grade dysplasia. Once I reached high grade it was EGD (endoscopy) every 6 months to see whether I advanced to full fledged esophogial cancer. Told my GI I had to find a more aggressive therapy than this "watchful waiting". Good news is there have been huge advances in Barrett's therapy. Expensive and rapidly changing technologies had my GI delay his investment decison multiple times on more advanced therapies. As luck would have it he convinced a hospital to make the investment. I was a charter member of "guinea pig" patients he selected for treatment using Barrett's Ablation Therapy (BAT). BAT is basically a lazer attachment to the endoscope and the lazer is firing at suspected cells. I think it was only 2 ablation treatments about 4-6 months apart when doctor told me the signs of Barretts have all but dissapated. I have EGD's every 3 years now and they continue to show the ablation treatment was successful.

Hope this helps in putting some of the fear in perspective. Check out the big hospital websites like Mayo Clinic & John Hopkins. To me, they seemed more involved in research and treatments. Take the time to select the right doctor. Keep interviewing until you feel you found a trusted partner in your recovery. My GI and I have a wonderful rapport and I think of him more as my friend than my doctor.

 
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Old 12-25-2012, 05:36 PM   #6
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Re: Barrett's found on biopsy. I need help.

Quote:
Originally Posted by ameekusa View Post
Fear was my first reaction as well. I was diagnosed w/ Barrett's almost 10 yrs ago. Your perspective improves with education. I think I went through 3 levels; Barrett's, Barrett's with low grade dysplasia, then Barrett's with high grade dysplasia. Once I reached high grade it was EGD (endoscopy) every 6 months to see whether I advanced to full fledged esophogial cancer. Told my GI I had to find a more aggressive therapy than this "watchful waiting". Good news is there have been huge advances in Barrett's therapy. Expensive and rapidly changing technologies had my GI delay his investment decison multiple times on more advanced therapies. As luck would have it he convinced a hospital to make the investment. I was a charter member of "guinea pig" patients he selected for treatment using Barrett's Ablation Therapy (BAT). BAT is basically a lazer attachment to the endoscope and the lazer is firing at suspected cells. I think it was only 2 ablation treatments about 4-6 months apart when doctor told me the signs of Barretts have all but dissapated. I have EGD's every 3 years now and they continue to show the ablation treatment was successful.

Hope this helps in putting some of the fear in perspective. Check out the big hospital websites like Mayo Clinic & John Hopkins. To me, they seemed more involved in research and treatments. Take the time to select the right doctor. Keep interviewing until you feel you found a trusted partner in your recovery. My GI and I have a wonderful rapport and I think of him more as my friend than my doctor.
Thanks for that. I was just diagnosed and he mailed me results along with a pamphlet about it. Why didn't he call me? So I'm sort of clueless as to how I deal with this. Because idk what it is! It said negative for malignancy. Nothing else. So idk where it's at or anything.

 
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Old 10-21-2014, 10:08 PM   #7
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Re: Barrett's found on biopsy. I need help.

Just found this post. How are you doing now? I'm facing it just now. Same here. Not really much info except no cancer and the Barrets was found just above my stomach. I also have a stricture in my throat.

 
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Old 10-21-2014, 11:04 PM   #8
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Sorry to hear about your throat problem. I have had Barrett's for just over 3 years I do have heartburn and my GI Dr said it could have been caused by that or some people can have it at birth or develop over time and some folks have it for life and may never know they have it I do not have the throat issue like your nor have I had to have it stretch but I have heard of many of people that have. Also be advised depending on where you live there is another way to have your throat examined without being put under or out or light sedation they can goes through your nose but as I have found it's been Around since 1997 but is not always available in your area
Amee I am glad to hear of your success I was told by my GI DR that if mine were to ever progress to high grade I would get the ablation also good to know it works

 
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