It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Acne Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 06-07-2008, 09:50 AM   #1
Newbie
(female)
 
Join Date: Jun 2008
Location: usa ny
Posts: 5
sadskingirl HB User
Unhappy Got Accutane Script & Went From Excited To Petrified! Hairloss Mentioned :( HELP BTDT

hi everyone, my name is shelly, iam new here. yesterday after all the blood tests and the ipledge thingy, and HOPE for a nice complexion, i got my script for accutane in hopes that my pores will shrink and oil dissapear and i can live a normal life, (i get breakouts and have a bumpy texture to my skin, like maybe there are zits under there, but my breakouts are not severe, thats not why they put me on it...2 derms agreed i should try it for my uncontrollable over-productive oil glands, and ever enlarging pores that are all over my face, causing me tremendous distress, embrassment, and i see noone in the world with them like this, but ME, and it didn't used to be this way, so iam DESPERATE to try and keep that oil at bay and prevent further scarring and look decent its a major source of depression for me. welp iam going CRAZY right now. iam stressed beyond words and worried sick, and i have not even taken the medicine yet. did i do too much reading, is my dr right? should i trust him...plz you all seem to know so much about it, any experiences and advice is greatly appreciated. i know this is supposed to be for nodular acne, but we've exhausted every other medicine and treatment, lasers, a few levulans w/ blue light, and then one w/ v-beam to no avail, almost daily these scars are gettin worse and worse. very hard to explain.

ok iam at the point now, where...forget the other side effects, iam so desperate i was very reluctant but finally willing to take the small risk, of the BIG health stuff, that is quite frightening (and i have very bad luck and all), to try and lead a happier normal life and be a much better more sane, mom and wife, but, despite my derms. wishes, i kept readin this morning about the many patients who have had alot of hair loss from it, and it's all over the internet, i hate that i research things like this, but if i didn't and somethin awful happened i would hate myself more, but he assured me to not worry about this, but how can i not? i already suffer hair loss (will explain later) (32 now), was assured it would grow back at the time, and never did causing me great distress naturally, i already had low self esteem, but at least my skin was decent, but you don't appreciate what you had until its gone, so iam teetering on the brink here. i was excited to pick up my script till i read all this stuff, and now iam freakin and unsure...i mean damned if i do or don't, but i need ur input.

i never expected to find soooooooooo many stories of men and women who have bad problems w/ permenat hair loss from this drug and websites stating this as an even common side effect, and the own company that makes it admitting its a side effect, yet i saw my derm yesterday, he told me, this is going to change my skin for the better so much, make it like porcelin, and he's one of the very best derms out there, in manhattan, and i wanna trust him, BUT....he says i'll be happy cause i won't be such an oily holey mess, which i was really excited to pick up my neds today but now so deathly afraid i can hardly breathe.

i already have thin hair, and the diffuse thinning, especially in my crown area....now called alopcia, by my last derm. accelurated by chemical damage from a botched dye job. they assured me it would grow back but 7 yrs later, here iam w/ now labeled alopecia...like the balding i would have had at 80 was sped up due to damage. not sure if i ever bought that one...i think it just killed my follicles and that was that but it never grew back and never will and its been hard to cope w/ that all these years but its seemed to remain the same and not get worse, and i just barely am able to get by as is, w/ a spray on cover up product 2 actually good looking hair and dermatch, hence i have no hair to spare to lose, soooo if i were to lose more on top, we are talkin, total physcological anielation, no cover ups like now, it would be too apparent, as it is i must style it a certain way to and plaster it down, in some pics i can see the dye color underneath but nothing i can do, i have become sort of accepting that this is life, and am too afraid of a transplant, plus could never afford one, but now, most people never notice i hide it very well but cannot go for worse in that area. extensions can help with the rest, just got some actually but the top...no room for any error, and i was assured that it would not ever come from there but iam reading different today, and i need to know the cold hard truth.

i did a search online, and there isn't seemingly in just 'rare' cases, it is all over the internet, and seems pretty darn common from what i can SEE, but thats a big part of why i came to you all, to see if its all true and its happened to alot of people here who take or did take the drug. when questioned, my dr told me not to look anything up and drive myself batty, in thousands of scripts he's never seen any horrible things happen, but above him telling me you could shed alittle on the sides or back but it won't touch the crown area, nothing would be enough to be noticeable, and it would definately grow back, well i didn't do as he said i did read, and how can i believe one derm. over ALL OF THE STORIES AND WEBSITES ON THE INTERNET?? if they are true which hard to believe that many stories could not be real.

iam already in a super vunerable position here hair wise, my skin makes me so miserable it sickens me, ruins my every day, every second actually...but this isn't a permenant cure even for the oil, he can't make me promises, nor can u be on it forever, so i don't even know that i'd be trading one thing for the other (perfect poreless, oiless skin), i don't have acne as a mega issue, and the low dose i thought he was gonna start me on was not the case (we originally talked like 20, but now he's saying he meant 20 2xs a day, which would be 40 but ended up with a script for... 60mg! (too scarey high for me to start at)

i think that is way too much to jump into for my issues, but he said to me 'you wanna see results right? you want a great complexion' and i was so ready to pick this up and get started until i freaked myself out and read all this this morning. plz keep in mind, i got no hair here to spare, so iam not starting with a full head, and i dont' want another horrid regret under my belt, and at the same time, my skin ruins my life, and there are just no alternatives, i have been thru them all, so what in God's name should i do?


iam sooo freakin paniced and sick to my stomache...no way i can start this medicine today, plz help me you all, even if you never took it, and you didnt even know bout accutane until now, if in my situation as described above what would u do? my skin makes me miserable on a daily basis, however results are not usually permenat, i'll likelu return, and i can only hope it'd shrink the pores that have quickly become scars and continue on doing so, so ..iam not gettin a life long result, but could have hair loss as a life long result, and i already have alopecia, plz tell me, whats one to do?

the increasing oil in my skin continues to stretch out my already huge pores, (he admited i was right on that that is whats goin on w/ me), and forms large scars, and this just keeps gettin worse and worse all of the time. iam so desperate i was willing to risk all the awful side effects but i thought the hair thing was very rare but do a search it so isn't, plz help...iam sure u can tell how freaked iam, and i know he said not to read and sometimes u can look into something too much but there are sooo many websites, this isnt a rare thing...iam so frightened, idk what to do

thanks for allowing me this vent, i really needed it, and value your opinions.

sorry so very long and redundant, my head is still spinning...iam hoping for positive stories. if i use the script...if i do, i'll definately not start on the 60...1/2 that maybe....just to scared and he talked about maybe raising it next time??? sounds like alot for 5 mo treatment and no cystic acne, i guess he's the expert, 2 great, respected, derms, told me this is the only way they can help me, (& know about my hair loss), and i've spent sooo much money trying, its like damned if i do or don't HELP. i wanna believe i can get normal or close to normal looking skin and more time looking normal in my makeup then an hour a day, its just plain gross, and keep my hair but this one...its a toughie. thanks again, shelly

Last edited by sadskingirl; 06-07-2008 at 09:53 AM.

 
Sponsors Lightbulb
   
Old 06-07-2008, 05:00 PM   #2
Newbie
(female)
 
Join Date: Jun 2008
Location: usa ny
Posts: 5
sadskingirl HB User
Re: Got Accutane Script & Went From Excited To Petrified! Hairloss Mentioned :( HELP

plz help me...iam so distraught and desperate...i need some info on the truth about accutane w/ this as a side effect and if i should pick up the script, iam so scared but was so optomistic, my reading has made the light inside my soul go out, i wanna know if there is hope that maybe i could be alright and benefit and not lose hair. thanks, shelly

 
Old 06-07-2008, 05:09 PM   #3
Junior Member
(male)
 
Join Date: Jun 2008
Location: Grafton, MA
Posts: 16
TMSton HB User
Re: Got Accutane Script & Went From Excited To Petrified! Hairloss Mentioned :( HELP

I don't mean to discourage you, but I haven't really heard anywhere near the number of good stories about Accutane that I have bad stories; I know you're desperate, but there are side effects worse than hair loss. Ulcerative Colitis and Inflammatory Bowel Diseases have been associated with Accutane, and I'd advise against taking it.

It's obviously up to you, too. But just keep your head up, try to relax and talk with your dermatologists about side effects aside from hair loss.

To be blunt, I wouldn't take it if I were you. But obviously, I am not, and if it really means this much to you, the choice is yours.

Hope everything turns out okay.

 
Old 06-07-2008, 05:31 PM   #4
Senior Veteran
(male)
 
Join Date: Feb 2008
Location: Australia
Posts: 575
aussiejono HB User
Re: Got Accutane Script & Went From Excited To Petrified! Hairloss Mentioned :( HELP

Accutans is worth the risks in severe nodular acne, for oily skin, I'm not so sure.

Have you tried topical Retin-A cream?

 
Old 06-07-2008, 08:38 PM   #5
Newbie
(male)
 
Join Date: Jun 2008
Location: Richmond, IN, USA
Posts: 1
simtek96 HB User
Re: Got Accutane Script & Went From Excited To Petrified! Hairloss Mentioned :( HELP

Before I continue with this...what I am about to say is simply my friends experience with this scrip. It is not my intention to scare you with this, just letting you know what he went through.

A very good friend of mine was given a scrip for Accutane about fifteen years ago. The way he explained it to me was it makes your acne positively blow up in the hopes that it woud essentially burn your pores out and they wouldn't generate pimples anymore (not quite sure how this works, but there's a reason i drive a truck, lol). It did precisely what he said it would do...his acne just took off at first, just as soon as he got rid of one, another would show up. But after a few months, they began coming back slower and slower until they just stopped returning. He now has a clear complexion, and on the odd occasion that he does have a pimple show up, it shows up alone and quickly goes away

I hope this didn't scare you, I don't know if this is typical. This is simply my friends experience

 
Old 06-08-2008, 03:06 AM   #6
Newbie
(female)
 
Join Date: Jun 2008
Location: usa ny
Posts: 5
sadskingirl HB User
Re: Got Accutane Script & Went From Excited To Petrified! Hairloss Mentioned :( HELP

yes i've been using retina for years to no avail. almost daily i see larger pits in my skin and so now iam at my breakin point where something needs to be done to kill this oil, and normalize things, but w/o the worry of balding any further, but all i read scares me, tho i was told not to, i could not help it, thats me, i do research. thanks, shelly

 
Old 06-08-2008, 03:16 AM   #7
Newbie
(female)
 
Join Date: Jun 2008
Location: usa ny
Posts: 5
sadskingirl HB User
Re: Got Accutane Script & Went From Excited To Petrified! Hairloss Mentioned :( HELP

hi there, i know there are other risks, of course ones that drs don't bother discussing w/ you thats why i research even if it scares me, cause like u said i read more bad stories then good, but my derms have said only good stories they have heard, and i said what about depression...you get sad we'll stop it, case closed, i said something about the hair, and they said it does NOT come off the crown area, my biggest concern, and only would be light shedding, if anything, like when you brush a very small amount you might see, but hair sheds every day, this won't be a noticable amount, and it will grow back whatever you shed anyhow, it isnt permemant, and doesnt mean its gonna happen, and they know my hair situation to start, so i wanna trust them.

as far as IBS i cant be very afraid of that one...i've had extremely severe IBS for my whole life, i only go once every few weeks and have worse then labor like cramps, pain is all i ever remember, so i dont have to worry bout gettin that one. the other things are very scarey to nooo doubt, but both derms. and iam looking for a 3rd's opinion now, lol, my insurance is going to cut me off i sware, cause i cant get enough professional opinions, cause what i read scares me so, and i dont take it lightly however every day i end up in tears over my skin, it makes me so sick to my stomache and at that moment iam willing to risk ANYTHING, when i calm down is when i research and scare myself, but when it comes down to it, i know i gotto do something.

anyone ever hear of the BC pill yaz helpin with big time oil?? you know my oil is very bad and is destroying my skin with huge pored scars if they would prescribe it w/o cystic acne, however i do not agree w/ the 60mg doseage i think its too high so if i 'go there', iam taking 1/2..no matter what iam scared, scared if i do nothing cause pitting continues to grow and get worse, its like i have horrid acne leaving scars w/p the horrid acne, its the weirdest thing, i guess they just dont know what more to do for me.

iam looking for any other option, like i said i've been on retina for years now. works for some not for me....i feel like a holey freak everyday, people stare i look awful and the oil just makes me look disgusting with the large holes in my face, w/in a n hour and no matter what iam doing my mood is ruined and i gotto rush home, its no life for my child. i wanna be aka normal, or normaler. i thought we dry up w/ age? *sigh* opposite here.

i hate the stares i just hate that soo many people take for granted a normal or even decent complexion.

thanks opinions all welcome plz. thanks, shelly

Last edited by sadskingirl; 06-08-2008 at 03:16 AM.

 
Old 06-08-2008, 04:38 AM   #8
Senior Veteran
(male)
 
Join Date: Feb 2008
Location: Australia
Posts: 575
aussiejono HB User
Re: Got Accutane Script & Went From Excited To Petrified! Hairloss Mentioned :( HELP

In that case, roacutane is worth the risk

Use a moisturising sun screen every day, and a chapstick regularly throughout the day

 
Old 06-08-2008, 10:10 PM   #9
Newbie
(female)
 
Join Date: Jun 2008
Location: tennessee
Posts: 1
cstephanie HB User
Re: Got Accutane Script & Went From Excited To Petrified! Hairloss Mentioned :( HELP

Shelly,
I know how you feel with about your skin. I get so annoyed! I think i have tried everything that a dermatologist could possibly prescribe; from retin-A to prescribed facial washes to tetracycline and the newer version, Solodyn. Nothing ever seemed to help and I would get so frustrated.
I also always wanted to try accutane; however, my mother always discouraged me and told me that people have had suicidal thoughts and other extremes, so I never really wanted to try it after that.
But, one thing I have been using lately for the past 8ish months is Clinique's three step acne solutions. It is good for oil control and my break-outs have been reduced. I buy the larger 3 step set with the bar soap and its only like $40 and lasts about 5-6 months.
I have also tried Pro-activ while that did help my skin some, it seemed to bleach a lot of my clothes and towels.
I have a friend that gets chemical peels, and I may try that soon!
Best of Luck!

 
Old 06-09-2008, 10:23 AM   #10
Junior Member
(female)
 
Join Date: Jan 2008
Location: NJ
Posts: 38
judybee61 HB User
Re: Got Accutane Script & Went From Excited To Petrified! Hairloss Mentioned :( HELP

I went on Accutane 25 years ago when it first came out. After trying EVERYTHING, and nothing helped, the accutane finally cleared my complexion. Of course, that was before the days of the internet, so I didn't know enough to be concerned, but I didn't experience any side effects. Good luck!

 
Old 06-09-2008, 07:10 PM   #11
Senior Member
(female)
 
janetJ's Avatar
 
Join Date: Mar 2007
Location: NC, USA
Posts: 113
janetJ HB UserjanetJ HB User
Re: Got Accutane Script & Went From Excited To Petrified! Hairloss Mentioned :( HELP

I can only share my experience, as the opinions on this drug are so varying. I took it 4 yrs ago. I did 2 months on 20mg, 2 on 40mg. My skin was actually pretty clear going on it, but I was producing overly excessive amts of oil, which is why the derm prescribed it.
I absolutely loved it. It helped tremendously with the oil, which has never gone back to being as bad as before. It is also the only thing that, at least to me, appeared to help shrink my pores a little.
I do not believe I have suffered any hair loss from this product. I will tell you my hair is finer than before. However, shortly before taking accutane, I began blow-drying and straightening my hair on a daily basis. As we know how damaging all that heat is to one's hair, it is my belief that is the real reason my hair is finer than before.
I guess I can never be competely sure, but I am still very glad for the accutane. It made a huge, positive difference in my life.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Question for anyone who took Accutane as a teenager or child? derekm Acne 5 10-27-2011 02:01 PM
What are the real side effects of accutane? unruhe Acne 46 09-10-2007 06:38 AM
Accutane Journal KyleDale Acne 672 07-06-2007 08:31 AM
Accutane: common signs of initial breakout xphile Acne 0 12-18-2006 12:57 PM
Initial Breakout from Accutane jack27514 Acne 14 06-05-2006 05:30 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 05:24 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!