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Old 03-24-2001, 11:36 PM   #1
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adh01au HB User
Long-term Accutane Health problems

People such as myself went on Accutane 5 or 10 years ago and now are still suffering from serious side effects. Even worse, some people begin to develop problems years after they finished taking Accutane, when it is too late to change your mind. At this point, doctors couldn't care less about you. I wish I had such info before I decided to take it.

Cheers.<p>[This message has been edited by moderator3 (edited 03-25-2001).]

 
Old 03-24-2001, 11:43 PM   #2
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Mike29 HB User
Re: Long-term Accutane Health problems

What side-effects are you still suffering from?

 
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Old 03-24-2001, 11:51 PM   #3
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Re: Long-term Accutane Health problems

Dry skin and lips, dry eyes and conjunctivitis, headaches, nausea, skin rashes, depression, joint pain (spine, wrists, jaw, knees and especially lower back), gastrointestinal disturbances, tinnitus, red face, body aches and pains, chronic fatigue

 
Old 03-25-2001, 12:02 AM   #4
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freeatlast HB User
Re: Long-term Accutane Health problems

I agree with adh01au.. It's been a couple of years since my last attempt at accutane, and I've had almost all of the side effects he's talking about continue to this day. the worst is the dry lips and nose (up inside the nose).

I also get headaches like crazy and have been diagnosed with depression. I have chronic fatigue and gastrointestial disturbances as well... these are all I can think of at the moment..

 
Old 03-25-2001, 12:14 AM   #5
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Re: Long-term Accutane Health problems

Wow! I've taken Accutane twice (once was about 6 years ago and the other about 3) and I was very pleased with the results. I had some annoying side effects at the time, but those seemed to go away at the time.
HOWEVER, for awhile now I've been having trouble wearing my contact lenses (my eyes get very red and dry and I have to take them out), and I've been having numerous sinus and digestive issues. Do you think these could possibly be effects from Accutane? I never even considered the possibility until I read this post. Just curious if anyone has any ideas.

 
Old 03-25-2001, 12:16 AM   #6
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adh01au HB User
Re: Long-term Accutane Health problems

I encourage all Americans who have had long-term problems to complain to the FDA and fill in every Adverse Event Form you can find. This is the only way the authorities (in all countries) will pull their heads out of the sand. <p>[This message has been edited by moderator3 (edited 03-25-2001).]

 
Old 03-25-2001, 12:19 AM   #7
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Re: Long-term Accutane Health problems

EDDIEDEAN, dry eyes and digestive complaints are some of the MOST common problems in the long term experienced by Accutane users.

 
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Old 03-25-2001, 12:24 AM   #8
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freeatlast HB User
Re: Long-term Accutane Health problems

All I know is, Accutane works really well for some and they have absolutely zero side effects... unfortunately, I was one that wasn't so lucky. The sad thing is that I went in knowing the risks of taking it full well. It's amazing what risks one will take for the hope of clear skin, eh?

 
Old 03-25-2001, 12:25 AM   #9
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sillygirl HB User
Re: Long-term Accutane Health problems

I am very sorry to hear that you are still having problems from Accutane.

However, I think everyone <I>should</I> know how serious of a drug it is. Just look at the packaging! All of the little crossed-out pregnant ladies should be the first tip off that this is a VERY serious medication. And you take it at your <I>own</I> risk. I have never heard of a case where a doctor forced a patient to take Accutane, or shoved Accutane down someone's throat.

I researched Accutane for five looong months before deciding to go on it. I have read so many experiences about it, and I even found some people I knew personally who had been on it, or knew someone on it. I knew how serious of a drug it was, and how many complications I could have from it.

However, I believe that too many people simply ignore all of the small print on the packaging. I'm not saying that any of you did, but I have a hard time feeling sorry for people who popped the pills, never read up or researched, and are now complaining of adverse reactions.

And let me repeat! I'm not saying that any of you ARE those type of people. At all. I'm not saying that. But there are tons of people out there who don't realize how harmful this drug can be.

For me, Accutane has been great. My hair is still a bit dry, but that's about it.

But these people who say, "WHAT?! ACCUTANE CAUSES DEPRESSION?! HOLY COW!" I mean...geez! My dermo questioned me at every appointment to make sure I didn't have any mood changes. It just so happened that I had been suffering from clinical depression before starting the drug, and it did worsen while on Accutane. And I'm almost glad it did, because that is when I discovered that I truely needed professional help for it.

Accutane is basically a very strong dosage of vitamin A. And if you go on it and are too lazy to research and read up on it, then I honestly have a hard time feeling sorry for you.

[and once again, hee hee, I think most people on this board are extremely educated on it.]

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Old 03-25-2001, 07:55 AM   #10
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Smile123 HB User
Re: Long-term Accutane Health problems

I know 5 people who went on accutane more than 5 years ago, and none of them have any side effects now. It's an excellent drug...but like any other drug, there are potential of side effects...it all depends on the individual.

 
Old 03-25-2001, 10:02 AM   #11
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adh01au HB User
Re: Long-term Accutane Health problems

I simply mentioned the law firm because I saw them in my internet travels and found it interesting.
I know that many people have positive effects from Accutane. I just think it always helps to be fully informed when you take it. In this regard, the evidence suggests that Roche new about all the horrible side effects before they released it on the market and that they have hidden this from the FDA and the public ( <A HREF="http://www.cyberpass.net/~scain/dispatch/disp6.html" TARGET=_blank>http://www.cyberpass.net/~scain/dispatch/disp6.html</A> ). They just sit back in board rooms and work out the maths. If it will sell well, they can budget 100s millions per year to settle all the court cases if it has some nasty side effects(which they know will come). Roche spent 1.6 billion dollars in 2000 fighting in the courts for all their drugs and paying fines etc. Why risk telling the FDA the truth which risks the drug not getting approved. Better to let all the poor *******s who take it come out of the woodwork one by one, be called crackpots and fight it in the courts, denying everything. Innocent victims of corporate greed. By the time it is all over, everyone knows the sordid truth but 25 years have passed, the company has made their billions leaving behind the human wreckage and the company's patent is about to run out anyway.

My own experience with Accutane is that I know 5 people personally who took it (other than myself.

1) Had no side effects that he's told me of
2)Irritable bowel syndrome and fatigue
3)Chronic gastrointestinal problems, chronic lower back pain
4)Chronic gastrointestinal problems, chronic lower back pain, depression
5) Health totally destroyed, chronic systemic hypervitaminosis A, cannot eat or drink anything, often on the verge of psychiatric hospitalisation

Then there is myself.<p>[This message has been edited by moderator3 (edited 03-25-2001).]

 
Old 03-25-2001, 05:23 PM   #12
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Pris HB User
Re: Long-term Accutane Health problems

Whoa adh01au, you're making Accutane sound like the dermatological society's version of nicotine. You made it sound like people were forced into taking Accutane without knowing the risks, and when the negative effects on the body actually appear ten years down the line, there's nothing we can do about it. First of all, YOU are responsible for your own health, and if you choose to go on a drug as powerful as Accutane, then you should take the time out and research everything that you can about the drug to learn of its side effects. It's not like they are saying the drug is completely safe, that's why there are a million warnings that come along with the drug. Second of all, there is a risk associated with everything, and I do mean EVERYTHING, that we do. Everything from eating a hamburger to taking a drug like Accutane. Actually, eating a hamburger might actually be worse than taking Accutane, because at least Accutane puts a warning label on its drug, but you'll never see a warning label on a hamburger about the possible heart disease that you can get by eating that hamburger.

My point is, there are inherent risks associated with any drug that you take. I think that the FDA has done a good job trying to find all the possible risks assoicated with the drug, and informing the public about those risks so that we can make a knowledgeable decision about whether or not we will take that chance to go on this drug.

 
Old 03-25-2001, 06:01 PM   #13
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adh01au HB User
Re: Long-term Accutane Health problems

Nice analogy

 
Old 03-26-2001, 04:33 PM   #14
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kara HB User
Re: Long-term Accutane Health problems

accutane sucks. for alot of people it causes hairloss

 
Old 03-26-2001, 08:04 PM   #15
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Saundra HB User
Re: Long-term Accutane Health problems

I took accutane back in the 1980's. Not much information was available then on the adverse effects of accutane except birth defects. My son took the drug in the early 1990's. Still not much information was available on this drug. My dermatologist put my then 14 year old daughter on the drug (she didn't even have cystic acne). I questioned the side effect of depression and was told he had not heard of it (this was in 1996) and to not worry about it. Three weeks later my daughter was dead. Do you think for one minute had I known the serious side effects of this drug I would have put my only daughter (who means the world to me) on this drug? This drug company is interested in one thing - the bottom line. I will have to live with, for the rest of my life, the fact I let her be put on this drug. I do not blame her doctor. I blame the drug company for hiding all their research from the public for the sake of profit. When I researched this drug later I found out this drug company has known since at least 1985 that this drug had a hypervitaminosisa effect on the brain of some teens who took it. This drug gave a $600 million dollar profit in 1998. How many other teens are going to have to die before something is done? Surely, in this society we have now, someone is smart enough to create a drug for acne that does not have such deadly consequences. Accutane has been found to close the growth plates of teens. Bet your dermatologist didn't know that either. How many parents would put a teen on a drug that will stunt their growth, that is if it doesn't kill them first? The long term side effects of accutane are just now coming to light. It has just been long enough to determine what the consequences are. Don't say we don't research, the information has not been there. We, the public are naive, and trust our doctors to help us. The sad thing is dermatologists have been just as in the dark as we are, and even the pharmacists have been ignorant to the effects of this drug. The blame lies in one source and that is the drug company. Visit the website Roaccutane Action Group to find out the truth about accutane. Then pray for those who have lost their children to a drug that they thought would only help them.

 
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