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Acute Respiratory Distress Syndrome (ARDS) Message Board
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Old 01-22-2006, 01:05 PM   #16
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Re: Nurse called back and I'm mad!!!

Canyondweller~

I have been told by many that i was lucky to have survived ARDS...I had no idea what was going on when i came off the ventilator just saw everyone smiling and crying and then i was told what happened..I cried for days it's scary to know i might have died and didn't even know it... Anyways now i'm just cautious..Believe it or not this is my 2nd baby since I got ARDS and nobody has ever told me to see a pulmonologist since i went through the ARDS ordeal..I did go find an ARDS website at the same time that i found this one for thyroid..A very nice person there told me that i really needed to see a pulmonologist after going through that as well...so i'm going to try to find one or ask my OB dr to refer me to one as i live in a little town so i will have to drive to get to one...I have read alot of info on the restrictive lung disease as well as thyroid levels on the net through research and alot of it is conflicting...Most of the reading i did on the TSH says that alot of new studies show that poeple are feeling best with a TSH of around 1 but then others have the levels i show on my blood results for the normal....I figured everyone here would know more than i would and it's been a great support to come here and write to relieve some stress...Like i said Dr.'s haven't always been my best friend in the past. If you dont mind me asking what were you on a ventilator for? I got clamydia pnemonia which then resulted in ARDS...I recovered quite well though considering....thanks for replying i know i'm not alone!!

~jessica~

 
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Old 01-22-2006, 06:51 PM   #17
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Re: Nurse called back and I'm mad!!!

I had to be put on respirator after I went into pulmonary failure. I had been taken to hosptal with severe carbon dioxide retention but recovered once there very quickly as I was unconscious when I got there. The retention was because I have emphysema and had the Sydney flu, they think. Was doing well the next day and planning to be released when I started to feel myself losing consciousness and called the nurse for help. Woke up on respirator. I think I was on about 5 days and diagnosed with severe emphysema but no one really knows why this happened when it did as I was so stable. One of life's scary things. That was in 98 and I have done very well since then with limited meds and oxygen only at night which actually I may not need that much now as I was borderling when I got it. So overall my condition has gotten some better probably due to quitting smoking and exercise. About the thyroid. I have never heard that about people feeling better at 1. That is a pretty broad statement that seems would depend on a lot of factors. But to say the range is antiquated seems a little strong as every lab and at the hospital they use this range and I certainly don't think a Dr. is a dope for not considering a person hypothyroid when they are a 2. The endocrinologist I go to for osteoporosis is not only a DR. but has a PHD in endocrinology research of something and she never said anything. Of course mine is off the charts at times as I am not always compliant. I have tried to take more when I was given it but it made me so nervous and my breathing was worse so I had to cut back. I hope you get some answers so you can relax. I know it can be touchy when you are pregnant so a heart to heart with your OB is definetly in order. Lots of luck. Stay well.

 
Old 01-28-2006, 07:04 PM   #18
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Re: Nurse called back and I'm mad!!!

The problem with the ranges on the labs, and I use Quest as well, is that they haven't changed the ranges for years.

The research states that people with a TSH higher than 2.5 should be considered for treatment.

No one has a good reason or explanation of why that TSH range goes up to 5.5, but 5.5 is not, nor has it ever been, a normal number for non-hypothyroid people.

The ranges don't matter a bit - not a bit. The ranges should be a guide, but how can they be a guide when people still feel sick and their numbers are "ideal" within the ranges.

What matters more is where your numbers are in T4 and T3.

 
Old 01-28-2006, 09:20 PM   #19
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Re: Nurse called back and I'm mad!!!

Well, mine are normal there but very high on TSH so what does that mean. Why have a range if it is worthless. They have ranges for all blood tests. I feel just fine, have no symptoms, very thick hair and nails, lots of energy, not constipated so why is my TSH always so high. I don't plan to argue but I am still looking for some info on it. It would seem that somewhere on the big wide web there would be some information on that.

 
Old 01-29-2006, 07:45 AM   #20
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Re: Nurse called back and I'm mad!!!

Reference ranges really aren't that indicative. See the link below for an explanation on how they are determined.

[url]http://www.questdiagnostics.com/kbase/topic/special/zp3409/sec3.htm[/url]

Note in that article that the range for normal is determined by testing what they deem to be healthy people. So, its the old chicken and egg issue. If we use the lab ranges to determine who is healthy but the lab ranges are based upon who is healthy which is correct? Labs shouldn't be determining who is healthy, doctors should using the lab ranges as a guide. For instance the society for endocrinologists consider the range for determining hypo to around 3 for TSH (even though most of all the labs still use the higher 5 something limit or in some cases 6) and some researchers think it should be even lower. If someone is clearly out of the ranges, extra attention should be paid by the doctor.

Last edited by beabonnet; 01-29-2006 at 07:51 AM.

 
Old 01-29-2006, 02:24 PM   #21
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Re: Nurse called back and I'm mad!!!

So what causes people to have normal T# and T4 and be way out of range on TSH and feel great with no symptoms. We would be happy to get my TSH down to 5 but anytime I take more than .75 I have heart palpatations and feel like I am on speed.

 
Old 01-29-2006, 10:23 PM   #22
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Re: Nurse called back and I'm mad!!!

Hello again~

I have been doing some research on the TSH levels since I have been told that the ranges may not always be right...All I did was google Normal TSH levels and it came back with alot of articles saying that most and i say most people feel their best when their TSH level is at 1-1.25....All i do know is that i've felt crummy for the last couple of years and not knowing why and never thinking that it could have anything to do with my thyroid..Now that i've had these blood tests and my free T4 are low and i'm finding that i still could have a thyroid problem although my TSH is in the normal range...All it is, is research that i've done but there are things on the web that state that the normal ranges may not be correct....sorry for butting in i just wanted to say that i did look around on the net and that's what i found...

thanks,
Jessica

 
Old 01-30-2006, 04:08 PM   #23
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Re: Nurse called back and I'm mad!!!

You are not butting in at all. This is an open discussion. I just don't appreciate someone insinuating that my Drs. are all idiots especially since they are specialists. I have never discussed what the best number is for TSH because I have never been able to get in the range even without feeling like my heart was going to jump out of my chest. You have the opposite of me, I guess as all my other thyroid tests are normal excep for my high TSH. Everyone is different and feels differently and I think that needs to be taken in to consideration. I have no symptoms of hypothyroidism at all which constantly surpised the DRs. Most people would kill for my hair, nails, skin at my ate particularly, I am not tired, not constipated, not sensitive to cold, none of the normal problems that indicate hypothyroid so it is confusing. Maybe most people do feel best at 1 but I know I wouldn't and would not even try to get there.

 
Old 01-30-2006, 07:55 PM   #24
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Re: Nurse called back and I'm mad!!!

I understand what you mean about everyone being different... I have read the symptoms as well for hypothyroidism, I have loss of hair while i'm in the shower i will see alot of hair on my hands... and my skin is extremely dry i put lotion on everyday and my skin is still flaky and dry.. I've had alot of trouble with weight and the tiredness my goodness the fatigue is the worse....I dont ever feel like i get anymore than 3-4 hours sleep even if i've had 10....I see my OB Dr. next tuesday and if he brushes me off then i'm going to find a primary dr i can see just to get a 2nd opinion especially with 3 kids soon i need all the energy i can get....I think all dr's are different and as you said we all have different bodies and ways of handling things i think that's why these ranges are so hard to understand...I did read a post earlier that helped me understand the "normal ranges" better. Well best of luck to you, and i will post again after i see my OB dr to let everyone know what he says....thanks

Jessica

 
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