help me figure out what this is!! - Addison's Disease Message Board

hello2u · 04-07-2003, 01:49 PM

Alright. This is my fourth post on this topic. I am in my freshman year of highschool and for a couple years now ive been sick. Its not constant but it when it comes, i get really bad.
my symptoms are:
-nausea(feel like im going to throw up but never do)
- weak/sore body all over
-tired all the time, never feel rested when i sleep
-my hair is falling out, mostly when i take a shower i get a good amount.
-trouble concentrating on one thing
-my eyes bounce around from time to time when i look at something for too long.
-ive gained 10-20 pds every year since 3rd grade
-my eyes burn and get tired easily
-constant mood swings.
Those are my main symptoms but someone told me to look into cushings syndrome and i have these extra things
-round face
-intoleration of the heat/cold
-purple/pinkish lines on my stomach, i always thought these were stretch marks, and they very well could be but its just a thought.
-weight seems to be just around stomach down to my thighs.
Those are pretty much it. I have posted under thyroid problems and some other categories. I was told to post here so ill see what i get. Anyways i went to the doctor about this and i was tested for thyroid problems and before i was tested for diabetes but my blood was normal. The doctor and my parents think its all in my head and want me to go to a phsycologist but i know its not that and i dont want to go.Im kinda lost on what this could be so any comments would help a bunch! Thanks!

hello2u · 04-13-2003, 10:49 AM

please guys if you know anything about what this could be, it would be such a big help! another thing i left out was, when my last period came, it lasted for half a day and it never came back. im not sexually active and i know im not pregnant. please help!!!

PVS · 04-13-2003, 12:36 PM

Hi Hello-

I've honestly got to say that although some of your symptoms sound like addisons- many of them don't and are actually contrary (like gaining weight- with addisons, you lose weight). Many of us have been to the point you may be at.... nothing seems to show up and a shrink is the next suggestion. Happens to the best of us (myself included). I can tell you that I finally WENT to the psych. doctor- mostly to try to prove my point that that wasn't the problem! No harm done in trying. Actually- I was willing to try ANYTHING at that point. So I guess- what have you got to lose? If nothing else it will eliminate another possibility and diagnosing the more difficult type problems many times are done by finding out what it is NOT rather that finding out what it IS. Hang in there and keep searching. PVS

hello2u · 04-14-2003, 12:54 PM

thanks for your help. i just wanted to clarify a bit. someone told me to post under here for cushings syndrome. i know its not addisons i was wondering if it could be cushings. but thanks for your comment, it did help.

siucra · 04-17-2003, 01:26 PM

Hello Hello,

I sympathise with you and what you are going through, been there, done that etc...

I ran myself into the ground trying to get my doctor to understand what was happening to me, he didn't and still doesn't, I felt like I was banging my head off a brick wall to no avail. I had "it" figured to be a thyroid problem, seemed logical to me - all the symtoms, everything.

I did a lot of searches on the internet under *hypothyroidism* and found a wonderful endocrinologist who I made an appointment with, who listened to all my self-diagnosis but looked beyond that and eventually found what WAS wrong with me.

I live in Europe so my search info will be useless to someone in the US, but you should look for SOMEBODY, a doctor or whoever, who will help you - what you need is help. The diagnosis that you are trying to do is impossible without the various tests that they run. So many symtoms of the various illnesses and dis-orders criss-cross, it's impossible to tell from reading your list.

As I say, I do know how you feel, it has taken me so long to get here, and I'm only *here* 9 days, so I'm no expert coz it's quite a learning curve.

I want to wish you the best of luck with your search, it's painful and frustrating, and when you feel as crap as you do mentally and physically, it's a battle.

Siucra