just diagnosed 04/08, need help! - Addison's Disease Message Board

siucra · 04-11-2003, 12:46 PM

Hi, I'm new here in Addison's - never even heard of it before Monday.

I finally got my test results and they confirmed everything for the doctor, at least I get some peace of mind in that I am NOT going mad nor is all this just a symtom of my imagination, but I am scared. Is this curable, am I always going to feel this crap - although I feel so much better already having started the steroids, has anyone ever completely 100% recovered from this or will be an on-going battle for the rest of my days.

Also, does anyone know where I can get some DHEA. I have the steroids etc but my doc recommended some DHEA, does anybody know a website or even a reliable brand?

Sorry, this is all a mess, brain is fuzzy, I hope it makes sense to someone.

Thank you.

Siucra

JulieJules · 04-11-2003, 02:56 PM

I've tried DHEA - try a health food store or a GMC. I felt no different on the over-the-counter drug other than I broke out a little. My doctor did stress that I should try it.

PVS · 04-13-2003, 12:27 PM

Hi Suc-

I am happy to tell you that I have lived with this "disease" or "illness" for over 10 years now. (After going through hell and I'm sure you can relate).

I virtually live a normal life. No one would know I have a problem unless they saw the pill bottles or read the medical bracelet I wear. Once I recovered my strength and stabilized on the meds - life was better than it had been in years! Keep searching the net for websites- there are some great ones in addition to this one. Best of Luck-
PVS

siucra · 04-13-2003, 02:08 PM

Hi JJ & PVS,

Thanks for taking the time to reply, it's comforting to know that there are fellow sufferers out there. I do think that this is very much a *silent disease*, I certainly had never heard of it before or met anyone who had it. I've spent quite a bit of time trawling the web looking at related sites, so I am learning a lot about it.

One thing I am curious about though, has anyone adjusted their diet or found that certain foods make their condition worse or trigger really bad attacks? Whar are those foods or does it vary from person to person?

Thanks

again.

Siucra

Doby · 06-01-2003, 05:28 PM

In response to your DHEA question, my doctor has prescribed Pregnenolone 30mg because she says that straight DHEA can create too much testosterone for women and that Pregnenolone is safer for us. I too was diagnosed on 4/23/03 and having a hard time finding a program that works. Also noticing that PMS changes all the rules.