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Addison's Disease Message Board
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Old 02-03-2003, 06:20 PM   #1
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Post Do adrenal granulars work?

I was diagnosed with adrenal fatigue and my doctor wants to put me on adrenal granulars. Any good experience with these?

 
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Old 02-19-2003, 05:58 PM   #2
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Hi - I am on adrenal glandulars and natural cortisol for my adrenal insufficiency and I love them both. I personally will never go on prednisone/cortisones ever again. They've helped with sleep disorders and chronic pain.

 
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Old 02-19-2003, 07:22 PM   #3
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What natural cortisol are you on? I started the adrenal glandulars a week ago and along with my iron and thyroid change in meds, I am doing much better.

 
Old 02-21-2003, 12:40 AM   #4
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Considering the risk of mad cow disease, I can't imagine that what your taking can be considered completely safe.


 
Old 02-21-2003, 02:01 PM   #5
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wenron - I get my natural cortisol from my doctor, who I think gets it from a compounding pharmacy. As best I know it's just called "natural cortisol" but I can find out. I take Ortho Molecular's Adrene Forte and have been for over a year now - it's a great product. After being tested, I take 10 mg nat'l cortisol early am and then again at noon, and 4 adrenals daily. I can't tell you the huge difference these have made in my life. I'm glad they're working out for you as well.

 
Old 02-24-2003, 01:27 PM   #6
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Thanks for the info cathy

 
Old 03-17-2003, 03:43 PM   #7
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Hi there,

I believe chronic fatigue and fibromyalgia symptoms stem from adrenal insufficiency. How did you go about finding a doctor that would prescribe cortisol? Did you go to an holistic M.D. or an endocrinologist, and did you take a saliva test or blood test to determine your insufficiency level? Thanks for listening. Janis Rafael

 
Old 03-19-2003, 04:18 PM   #8
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Janis - I found my doctor in Illinois after doing an internet search when I first had pain - specifically in one rib that was real bad. I went to his website and liked what I read - lots of experience with alternative and traditional medicine - especially since I was not going to get surgery or stay on the heavy meds as was suggested to me. My doc is an MD who uses both alt/trad modalities - mostly alt. He ran both the saliva and blood tests and my adrenals were really bad, with the highest number at 2 am, which explained why I was ready to get up and go at that time. However, I crashed by 5 am and went through the day exhausted. I eventually crashed from that cycle. By that time I had the full-blown fibro and TMJ issues. He has to prescribe the cortisol for me and it comes from a compounding pharmacy. Hope this helps.

 
Old 03-19-2003, 04:51 PM   #9
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janis - I forgot to ask if you did searches for a doc at american college for advancement of medicine, american holistic medicine associations, complementary alternative medical associations, etc.? They can be great sources for a referral. Often times you can email the doctor first before paying for a visit (I did) to find out if they do what you are looking for. I think there's a dr. jacob teitelbaum, MD, (or something like that) in your area. maybe you could check him out? let me know if I can help you. you seem to be very knowledgeable from what I'm reading from the posts - you just need a doc to help you out!

 
Old 04-09-2003, 12:20 PM   #10
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Hi KathyK, I have adrenal insufficiency and I was trying to locate a doctor in Chicago. Since you live here as well, I thought you could help me out. I am desparate.

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Old 04-09-2003, 12:45 PM   #11
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NikiB - Glad to help you out - I go to Dr. Ross Hauser MD, in Oak Park at their Caring Medical Clinic. You can find their information on the internet too.

 
Old 04-09-2003, 01:14 PM   #12
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Thanks so much Kathy. I did not think I would hear anything today. How are you feeling these days and what were your symptoms?
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Old 04-09-2003, 01:17 PM   #13
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Thank you so much! I was not expecting to hear from you so soon. So how are you feeling these days also what symptoms did you have?

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Old 04-09-2003, 02:53 PM   #14
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NikiB - I found the clinic when I was looking for a doctor who dealt with physical pain. He does - but everything else too! Basically I had deep body pain, headaches, low temp, salt cravings/sugar cravings. But the biggest thing was no sleep. I'd fall asleep OK at about 11 or so, then be WIDE awake ready to GO at 2 am. Then I'd crash real hard by 5 am or so and not be able to get through the day. The real problem was that I had been living on so little sleep for so long I thought it was great (because I didn't feel bad at the time). Normally your highest cortisol "should" be first thing in the morning and gradually increase through the day, decrease at night. Mine was highest at 2 am and lowest at noon. I'm still working through some of the pain but I'm nothing like I was before - and I feel I'm getting my life back.

I should also share with you that if you have BC/BShield for insurance I don't think they'll pay for going to see him - it's so political it's not even funny. All other insurance pay for him.

 
Old 04-09-2003, 03:35 PM   #15
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CathyK, thanks for the info I called the Dr.'s office and she was able to give me an appt in a couple of weeks. I was speaking to one naturopath and she was saying that even with natural cortisol vs. steriod cortisol there is a risk of Addison's disease because its not really healing the gland (something to that effect).

[This message has been edited by NikiB (edited 04-09-2003).]
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