Thank you for replying. LOL, I don't think there are anymore tests to run (I know that's not entirely true but that's how it feels)
. I was debilitatingly ill from Dec. 2003-Dec. 2005 and have had thousands of dollars worth of testing done
...makes my head spin just thinking about it!
I've seen a variety of drs (endo, 2 rheumies, ob/gyn, neuro, PCP and a chiro...I've had appts with a cardio, perinatologist and the fertility clinic at U of M hospital in Ann Arbor Michigan but cancelled them because of finances). I've also researched extensively on my own over the last 3yrs.
All in all the above makes it sound like I must be suffering from a mental disorder, LOL, but honestly, I'm not
(my family is riddled with anxiety and depressive disorders so I'm very familiar with them).
I've considered seeing a naturopathic MD (Dr. Brownstein in particular who has written several books about balancing thyroid, adrenal and ovarian hormones...he's 3hrs away) but haven't been able to afford it.
I would like to have my cortisol level tested again but I'm pretty certain my endo wouldn't do it...she is very stubborn and completely dismisses my symptoms (she said her job is to make sure my labs are in range not to help me feel better
). She was leery about doing the testing last time because she said it was "tricky" to interpret results during pg. I also feel she's not very knowlegeable in that particular area (there's only one other endo in this area and she's in the same office...they specialize in diabetic treatment).
As for switching drs, I don't see a good reason to...I'm not sure what else they could do for me. Which is why I'm considering trying supplements before seeking out further medical care (if my symptoms became severe again I would definitely contact my dr...not that they did anything for me before but who knows).
It's been over a year since I've had a flare up and my symptoms aren't too bad at this point: weakness in my hips, shoulders, neck and jaw; tremors; alternating between insomnia and sleeping 12-16hrs; no appetite, fatigue, hands and feet ache; feels like I have "restless leg syndrome" but in my whole body; allergies getting worse; arrhythmias; low blood sugar and low blood pressure symptoms.
All of them are mild at this point (used to be severe and I had many others). I was diagnosed with arrhythmias (harmless PACs) in 2005. I've had reactive hypoglycemia since 1997 (oddly my fasting glucose levels show I have "impaired glucose tolerance") and "symptomatic" low blood pressure for 3 years (although, my blood pressure runs between 88-98/48-58). I was diagnosed with allergies/asthma last summer (primarily causes chronic tonsillitis and low-grade fevers).
I've had 2 MRIs with contrast and my pituitary looks fine. As for my adrenals, I think I'd have to be in an addisonian crisis for them to even consider testing other than the cortisol (am blood draw and 24hr urine).
Sheesh, I didn't mean to write another book
I wasn't sure what the response here would be since I know it's an Addison's board and there's a lot of controversy about whether or not "adrenal fatigue" is a legitimate condition. I figured I'd venture in and ask anyway...can't hurt
Thanks again for your reply!