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Old 01-01-2008, 07:48 PM   #1
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Exclamation What got 'destroyed' in you?

For me, it was both Adrenal Glands and my thyroid which is now way underactive.

My specialist told me that my immune system went after my glands.

 
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Old 01-02-2008, 07:51 AM   #2
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Re: What got 'destroyed' in you?

Gall Bladder, Thyroid, Ovaries, Adrenals, Pituatry, Arthritis, Psoriasis, Chronic allergies, short term memroy and hmmm probably more but off hand can't think of them.....Not certain on the memory but I used to have a much much better one so I believe it was slightly affected also. Pancreas could be next they are monitoring me for diabetes right now. So pretty much a lot of stuff, I too have an immune system that is attacking my organs. Bleck!

What can ya do though but be happy with life as it is? I am. I have a lot of fun and a great life now that I have been diagnosed. It was crappy to be sick all the time. I feel so good now.

 
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Old 01-02-2008, 10:14 PM   #3
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Re: What got 'destroyed' in you?

My adrenals, although I have no idea how bad, I want to ask for an ultrasound just to know. My parathyroid and my body is just now starting on my thyroid and I am currently being tested for celiacs disease. I am only 23 and feel like an old lady already!
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Polyglandular Autoimmune Syndrome
Addison's Disease
Hypoparathyroidism
Hashimoto's

 
Old 01-14-2008, 02:53 AM   #4
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Re: What got 'destroyed' in you?

So do you mean there is life after Addison's? How long did it take to get to feeling better? It seems I'm being attacked from all sides.Before all this came along I only had terrible back pain and had learned how to live with it.Now it's a whole new chapter.Please give me some advice on dealing!

Last edited by sherryE57; 01-14-2008 at 02:54 AM. Reason: Dianne44

 
Old 01-14-2008, 10:51 AM   #5
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Re: What got 'destroyed' in you?

Quote:
Originally Posted by sherryE57 View Post
So do you mean there is life after Addison's? How long did it take to get to feeling better? It seems I'm being attacked from all sides.Before all this came along I only had terrible back pain and had learned how to live with it.Now it's a whole new chapter.Please give me some advice on dealing!
Oh my YES, there is life with Addison's, a good one too! It took me a good 6-8 months after diagnosis before I realized that I felt good again. I was getting stronger and could do just about anything I wanted again. Not that I didn't get knocked down a few times in there, I sure did when I got sick and it would take a hospital visit and weeks to feel myself again. But all in all, I take my prescribed meds on time each day, eat healthy and think positive even if something could get me down. I am a firm believer in the power of positive thinking and God. Those two things get me through anything and I feel wonderful and totally enjoy my life. Most days I don't even think about having Addison's or any of the many other ailments that I have. I just smile no matter what I feel and before I even know it, it is better.

When I was diagnosed I wanted to cry instanly, I was so happy to know what was wrong with me but so mad about what I had, but, my husband was there and I did not want to break down in front of him, he was so worried about me already. I told myself to be strong and that when he left later that day and went home I'd cry myself to sleep and have my pity party. Well, all that afternoon and evening all I did was talk positive to all my kids, friends etc. so that they would stop worrying about me. By night time when I was alone and said ok Cry now, I couldn't. I could not think of one good reason to be sad, depressed, mad or unhappy. All the things I had said to people over the course of the day were true, I really meant them. I was lucky and it wasn't so bad. I have never since day one let myself be depressed or sad about what I have because there is so much worse out there. Now you might think that I don't have it that bad then but I do. I really do. I have so many ailments and when I am sick I am SO sick and end up in the hospital everytime. I was so close to dying when I was diagnosed, I wasn't able to walk anymore and I was in crisis, throwing up, falling down etc. I had not one drop of cortisol left in me when they did the test. My BP wouldn't monitor anymore on the machine and the pulse was so low that they could not find it. They got an ambulance to take me from my Dr. office visit to the hospital ER. I was checking out. So sorry to rattle on but oh I just really want you to hang in there and it will get better.

How long have you had Addison's? The back ache could have been the start of the symptoms. I had a back ache too and found out it was a symptom when I read the list of them. I had pretty much every single one.

Take care.
Diane44

Last edited by Diane44; 01-14-2008 at 10:09 PM.

 
Old 01-14-2008, 08:58 PM   #6
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Question Re: What got 'destroyed' in you?

Quote:
Originally Posted by Diane44 View Post
Oh my YES, there is life with Addison's, a good one too! It took me a good 6-8 months after diagnosis before I realized that I felt good is better.



Take care.
Diane44
Diane44 Did you have weak legs and arms? The back pain is from 3 surgeries so I have had that since 1990. I have learned what and what not to do with that.The dr says that my weak legs is NOT coming from my Addison's diagnosed in Oct.2007.But I think you said you were weak.Is that true?
I have high blood pressure,hypothroyid,cholestrol of 540,burning eyes,weak legs, and now weak arms,crave salt am shaky,very easily irritated,do not go to the rest room any more than before,also menapausal. All these things appeared after my Addison's diagnosis.Do you have all these problems? I went through so much with my back and laying flat on it that this is almost the same except I didn't feel as bad.Please write back :

 
Old 01-14-2008, 10:06 PM   #7
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Re: What got 'destroyed' in you?

Quote:
Originally Posted by sherryE57 View Post
Diane44 Did you have weak legs and arms? The back pain is from 3 surgeries so I have had that since 1990. I have learned what and what not to do with that.The dr says that my weak legs is NOT coming from my Addison's diagnosed in Oct.2007.But I think you said you were weak.Is that true?
I have high blood pressure,hypothroyid,cholestrol of 540,burning eyes,weak legs, and now weak arms,crave salt am shaky,very easily irritated,do not go to the rest room any more than before,also menapausal. All these things appeared after my Addison's diagnosis.Do you have all these problems? I went through so much with my back and laying flat on it that this is almost the same except I didn't feel as bad.Please write back :
Hi Sherry,

I did have weak legs and I couldn't even walk at times. Even had some paralysis but that was due to high potassium and have not experienced that since my potassium levels have gone back down. I now find that occasionaly when I overuse my legs they are very weak also. They feel kind of rubbery and I am not so sure that I will be able to continue walking. They may just collapse. Not so much pain though, just weak, tired. I have not had that in my arms however. I also have high cholesterol and I eat pretty healthy. Mine is just over 300, my BP was opposite of yours, mine was low but I am now maintaining a healthy 130 over 80. I thought that was high (130) but the doc reassured me that this is not. I never went through meno pause my ovaries stopped working when I was about 38 which was about 6 years before I was diagnosed. No night sweats or irritability or any of the other stuff that goes with that.

Do you use eye drops for the burning eyes? I learned from my eye Dr a few months ago that auto immune disorders such as we have will make our eyes dryer. I was given an eye drop to use every few hours and it has helped so much. It is a milky white and you even see white when you put them in but only for a few seconds. I have a condition called blepheritis (sp) and have had it for a long time already. I have a daily eye routine which has helped very much with that. I wash my eyes with a cotton ball and baby shampoo, then take a q-tip and run it around the inner edges of my eyes to get anything else left. I do this every morning. No more plugged ducts and no more dry itchy painful eyes.

That stinks about your back. My husband has a bad back and has had surgery too. He is having a tough time again with it so although I don't know what it feels like to have had surgeries and that type of pain I do know somewhat what you are dealing with and how it affects your life and for that I am sorry.

What kind of meds are you on for the Addison's and what dosages? It sounds like some of what is going on, bathroom issues, shakyness, irritable could be due to the meds not being just the right dosage for you yet. You are a very new diagnosis and it takes a while, hang in there!

For meds. I take levothyroxine for my thyroid, Cortef and Florinef for my Addison's, Clarinex and Ranitidine for my chronic allergies, eye drops for dry eyes, Alleve for arthritis, dovenex and clobetasol creams for my psoriasis
DHEA for energy and some hormonal balance and calcium is a must too. I think that covers it.

Autoimmune disorders cover a lot of ground but we can handle it. This board is so very helpful! I am so glad I found it and that you did too.

 
Old 03-29-2008, 06:53 PM   #8
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mmee HB User
Re: What got 'destroyed' in you?

Hi everyone,
I was diagnosed as having hypoadrenalism. I was wondering what tests you did to get a diagnosis of Addisons? I have alot of the same symptoms as you all did, and I have a high ANA titer for autoimmune disease, it is 1:640 and it is supposed to 1:80. They have never found out (and it has been a year) why my ANA is so high.
Thanks.

 
Old 03-30-2008, 06:42 PM   #9
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Re: What got 'destroyed' in you?

I have Hashimoto's, secondary hypoT, hypoadrenalism (adrenal insufficiency, suspected Hashimoto's encephalopathy, and allergies (rhinitis and vaso motor rhinitis), joint issues, exzyma, contact dermatitis.. uh.. GERD.. chronic sinusitis.. uh.. That is all I can think of right now. But then again the whole memory thing you know.

MG
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