New to Addison's - Addison's Disease Message Board

nickrightnow · 01-06-2009, 04:08 PM

I'm 24 and just got diagnosed with Addison's a couple months ago through a blood cortisol test. I'm taking 30mg Hydrocortisone daily. My endo said when I started the meds I should feel 100% in just a couple of days. Well, its been 2 months and I still feel like crap. I've seen my endo a few times since and is now blaming my botched recovery on a seritonin deficiency and he expects me to only recover to 50 - 60%. I'm positive I don't have depression, but I'm taking the trazadone he prescribed anyway, which makes me feel even more tired all the time.

I'm trying to get a 2nd opinion from another endo, but the next open appointment is a month away.

I'm also having money issues due to my inability to perform my past jobs. I kind of got laid off due to the number of days I had to have someone cover for me. Unfortunately most every gig in my field is paid under the table.

Thoughts? Opinions? Suggestions?

Thanks

shelbe · 01-06-2009, 07:39 PM

I was also diagnosed a couple months ago. I would say that I started feeling better after a couple weeks on 25mg Hydrocortisone and Florinef daily. Are you also on Florinef? Drs. usually prescribe them together for Addison's. It helps regulate blood pressure as well as balance sodium & potassium levels. What symptoms are you still suffering from? Hope you get relief soon.

nickrightnow · 01-06-2009, 10:13 PM

I get tired after doing any kind of exercise like walking up hill or even standing for more than a few minutes. If I'm standing and bending over for a couple hours my legs get almost visibly shaky. My heart will race and then slow down over a period of about 5 - 6 seconds. Trouble concentrating. I get a sort of tunnel vision that makes it hard to see accompanied with dizzyness and slight pressure around my eyes.

I am not on florinef.

Maybe i need some kind of blood pressure help? Explain the pressure on my face and heart doing weird stuff?

I just saw a GP and she recommended seeing a neurologist as well.

too tired · 01-07-2009, 08:36 PM

I know when they put me on anti-depressant it mad me depressed and very tired. They say if your not depressed the meds will do that.

nickrightnow · 01-08-2009, 02:15 PM

I've been seeing a psychiatrist because for the first 7 months or so of dealing with this doctors told me it was anxiety. She's the one that initially diagnosed me with an adrenal problem. I hadn't seen her since I started seeing my endo until a few days ago. She took me off the trazodone saying that it was fairly weak for what my endo wanted it to do. She ordered serotonin, norepinepherin, GABA, and dopamine blood tests. Just had them done today. She also recommended that I see a neurologist. I asked my GP about it today and he said I should wait until they sort out the Endocrine side of things first.