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Old 10-02-2010, 04:52 PM   #1
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alexcateye HB User
Can anyone interpret ACTH stim test results?

I missed a phone call from my endocrinologist on Friday afternoon. I have my test results and I'm supposed to call back next week. I'm a little confused by the results.

baseline cortisol = 5.0
30 min post = 7.0
60 min post = 5.0

He told me that it should double and continue rising until it got to around 20 when he was pushing the ACTH. He thought I might have hypopituitarism.

I suspect that I have adrenal insufficiency. I feel sick, tired, and dizzy a lot. My fear is that my endo won't treat me because my baseline is above 2.0 and "normal." Is there a chance that I'm in the early stages of this condition?

If you were in the low end of normal and felt sick all of the time, what would you do? I really think it will break my heart if another doctor won't treat me.

Thanks for your time.

 
Old 10-09-2010, 07:43 PM   #2
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Re: Can anyone interpret ACTH stim test results?

It was Addison's.

(Just in case anyone does a search for ACTH stim test results and finds this thread.)

 
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Old 10-09-2010, 08:23 PM   #3
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pacerpilot HB Userpacerpilot HB User
Re: Can anyone interpret ACTH stim test results?

Howdy Alex, welcome to the club! Sorry you've got Addisons, however, now you'll be all fixed up and ready to run! I don't check this board often (I'll admit to not paying much attention to my condition) but when I do I like to offer support/help to fellow Addisonians. The good news is you'll probably out live all your friends (and even enemies) because you're under a docs care. Also, since you'll keep yourself in better shape than everybody else you'll do more things than those aound you. You might need a second job to support your new hobbies of mountain climbing, flight lessons and, scuba diving (tropical of course). Hope they get you squared away soon! Be well!!!

 
Old 10-09-2010, 09:10 PM   #4
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alexcateye HB User
Re: Can anyone interpret ACTH stim test results?

Thank you very much. How long does it take to start feeling normal? I've been replacing the cortisol for a week but still feel awful.

 
Old 10-09-2010, 09:40 PM   #5
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Re: Can anyone interpret ACTH stim test results?

Not long at all. You should feel a difference within days and be race ready in a couple months. The trick is to not let having this condition run your life. Beat it. Get mad at it and tell it your in command. That means stay healthy. You need to do things, walk, ride, whatever. You can eat whatever you want and yes, you can party like a rock star-just stay hydrated. Remember this, addisons will not kill you, hurt you or, even slow you down if you don't let it. I just wrote a post because I'm very worried about what I'm reading from some people. Sure addisons is a serious condition, but it's extremely managable. If your feeling somewhat nervous about your new condition and what it means to have it here's a list of some of the things I do and have done-all while having addisons: I'm 46, work-hard (harder than most), I'm a truck driver, fabricator and millwright, my wife and I have raised two kids, fly (I hold a commercial multi-instrument cert), scuba (open water, wreck, confined space, rescue), US Coast Gaurd Aux Pilot, sailing, fish, hunt, ski, race offroad (bikes and cars), drink (not as much as I used to), construction (I just finished rebuilding my fourth house), trialthlete and, on and on. I've been sick and injured too. The flu really sucks. Hangovers really really suck. I've crashed during desert races a few times, a broken back x2 (those still hurt), 3 broken necks, punctured lungs, ruptured spleen, got smashed square in the face with the boom of my sailboat during an offshore race (fractured skull) took third anyway. In a nutshell, you will feel great soon. I do however recommend forgoing the rough and tumble stuff. My wife says I have a death wish-I told her I don't wish for her to die..LOL. Take it easy and I'll check back, Be well!!

 
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