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Old 10-26-2010, 09:40 AM   #1
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Question Addisons & Type 2 Diabetes

Hello everyone - I am new to the forum.
A bit of background: I am 52, female and about 4 months ago I was diagnosed with type 2 diabetes, although it is closer to type 1 diabetes in it's treatment (odd fact number 1) - About 2 weeks ago I was diagnosed with Addisons disease, and am being treated with Hydrocortisone 10mg am, 5mg noon, 5mg pm.
My diabetes is being treated via injection, Levemir pen, 33ml am and 33ml pm.
The problems I am experiencing now are awful, my morning blood sugar is perfect, but my evening blood sugars are all over the place, I feel very ill, like my insides are raging and fighting. I cannot sleep properly.
The only information I can find is about Type 1 Diabetes and Addisons, but as I have not been diagnosed as type 1, I can find nothing online about type 2 diabetes and Addisons.
I'm beginning to feel like a medical freak.
I look like I should have Cushings - but I have Addisons (odd fact number 2).
My cholesterol is brilliant and my glucose at cell level is also A1.
I eat as healthily as a Gorilla (in not such large portions obviously - lol!), but unfortunately I also look like a Gorilla (odd fact number 3).
Health specialists are confused which is giving me no confidence whatsoever, and I am finding the situation quite frightening, as I know from reading online that Type 1 Diabetes and Addisons is notoriously hard to treat.
Anyone else out there with type 2 diabetes and Addisons?
If there is please tell me about your experiences, treatment etc as I am totally lost.
I may be raging on the inside - but I am smiling on the outside.

*I should also mention I am also going through the menopause (as if that helps things at this time...so NOT!!), I also have Irritable Bowel syndrome with Diverticulosis, a stomach hernia and reflux disease and asthyma.
I won't go too far into my family's history as it is a catalogue of auto-immune and rare disorders/diseases.
All of the women - without exception - die before 60, and as the UK NHS - in it's wisdom - chose to destroy all my mother's medical records (she died 20 years ago), I am paddling around looking for answers to the genetic mystery that affects me, my daughter (back to front pelvis and hip deformation), my sister (rare liver disorder), her children and grandchildren (profound deafness/bone disorders), and my brother (2 kidney transplants and a major open heart operation/diabetes).

Last edited by lljwagg; 10-26-2010 at 09:54 AM. Reason: Additional medical info - could be important?

 
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Old 10-27-2010, 08:58 PM   #2
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Re: Addisons & Type 2 Diabetes

Hi
I also have diabetes type 2,Addison's & asthma/lung issues--I am on oxygen therapy 24/7- and have been since 2007. Was dxed with addison's in 2006 and put on O2 in July of 07 and dxed diabetic Oct 2007-- I too look like Cushings rather than Addison's & have since Dx...lol I had been taking Prednisone for breathing issues and had "blown up" like a balloon. I take Cortef for my Ad- usually 10 mg 3 times a day--also take fludrocortisone & DHEA for AD-- I take Januvia 100mg am--and Nova-log short acting insulin (meal times) and Lantus long acting insulin at bedtime. they are very much tied together--when having bad breathing days I require more steroids(and sometimes Medrol in addition to my Cortef) which in turn drives my sugar up requiring more insulin. You are not alone. do you belong to the Addison yahoo group yet? or Dusty's support group/blog? both are great groups full of very knowledgeable people willing to help,listen & support. I fyou want I can give you the web addresses for both.
Hang in there.

Last edited by Beachpeach; 10-27-2010 at 11:59 PM.

 
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Old 10-28-2010, 02:30 AM   #3
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Re: Addisons & Type 2 Diabetes

Hi there ,
Thanks for your reply.
Interestingly I have an urgent appointment with an endocrinologist this morning, so will post more later.
I have never believed I am a type 2 diabetic - more of a late onset type 1 (though they hate to say this for some reason nowadays).
I was put on injections for diabetes from the start, Levemir long acting morning and evening, which seemed to sort out the diabetes really quickly.
It all went pear-shaped after the Addisons diagnosis and the introduction of Hydrocortisone.
Now they are going to try and introduce a short acting insulin at lunchtime - however I can see the problem that is glaringly obvious, I am likely to suffer from Hypos on a more regular basis as we are having to try and second-guess how high or low my evening glucose reading will be (they are either very high or low at the moment as a result of the steroids).
It doesn't help that I also have to use a Seratide steroid inhaler because my breathing is hampered all the time (I do not have true asthma or a copd, but I suspect the Addisons has caused the problem).
My speech slurs all the time, words come out wrong, my typing is dyslexic these days - it's taking me ages to do this - again this can be symptomatic of Addisons, although I am seeing a neurologist in a couple of weeks.
I have joined the Yahoo Board, but at the moment there is so much going on around me that I am awaiting what else is in store for me once I have been to the Endo. My family is blighted by rare auto-immune conditions, so the Diabetes/Addisons combo may not yet be the end of it all.
I feel as if my insides are raging. All this at a time when the UK government is least sympathetic to people with illness - especially those illnesses they have no knowledge of.
I guess I could bleat on all day with the 'Woe is me' stuff. It makes me miserable.
What I find so astounding is the statistics, it is said that Addisons is rare, only 8/10 people per million are diagnosed per year in the UK, but there seem to many more people than that since I have been googling, and lots of them have (or think they have) Addisons and Diabetes (Schmidts Syndrome), so not so rare after all. Me thinks the stats are wrong.

Last edited by Administrator; 10-28-2010 at 11:17 AM.

 
Old 10-28-2010, 05:20 AM   #4
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Re: Addisons & Type 2 Diabetes

Hi
Just a thought have you had your Thyroid checked?? this could account for the weight gain and some of the symptoms you describe.
I am Type 1 Diabetic and when I have had to go on short steroid use it really increases my insulin injections,infect it double the amount of Insulin I use. It is such a hard balancing act and trying to balance blood glucose results with other hormones is a nightmare as they are all interlinked and have a knock on effect with each other.
It really is a matter of trial and error and experimenting with your self and keeping a diary and even then it will throw you a curve ball
you could try testing your sugars before your evening meal and if they are in the normal range ,eat first then test again an hour later and have your injection then that seems to stop the peek with me after an evening meal which I get later on even with a rapid acting insulin....but drop the dose down a little so you don't plummet into Hypo.
Hope you get things sorted. what doses of insulin are you on?

 
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Old 10-28-2010, 06:25 AM   #5
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Re: Addisons & Type 2 Diabetes

Hi lljwagg,
I was put on insulin right from the get go & I too believe mine is like between type 1 & 2-- my breathing is also not true asthma or copd (both of which was dxed and then another dr said no not asthma, not copd) I believe it took so long to get dxed with Addison's (at least 3-4 years maybe more & 17 dr's) with my breathing getting more & more difficult. Till I was put on Oxygen therapy a year after I was dxed with AD & started on Cortef. I believe the damage that was done during that time is what I am left with. I am 44 & never smoked. My BS stays higher, in fact when I get down to 115-110 I FEEL low BS symptoms. My BS raised UP when I haven't eaten in a while instead of dropping lower. & just taking my Cortef raises my BG level without eating anything...does yours do that too? do you have sleep apnea too? I do but then that stands to reason given all the trouble I have breathing while I am awake..lol

 
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Old 10-28-2010, 08:25 AM   #6
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Re: Addisons & Type 2 Diabetes

Well back home now.
As I expected, I have got to have a barrage of tests, looking for some of the strange conditions my own mother suffered from before her untimely death.
The endocrinologist is also going to test me again for Addisons AND Cushings, as I look more like a Cushings sufferer than an Addisons.
So, he as taken me off the Hydrocortisone as it was likely I would have been in hospital as an emergency patient within another few weeks, I looked so very ill (and still do).
Thank goodness for all the 'Disease' keyfobs they give you (lol!), my key fob sounds like a plumbers toolbag when it drops on the floor (lol again!).
At least if I am admitted as an emergency patient they will have some clue as to what is going on instead of just wiring you up to heart monitor, telling you you haven't or aren't having a heart attack and sending you home when you are in pain and having a 'fight or flight' episode and don't know why.

I have had sleep problems since 2003 including apnea, they wanted to give me an oxygen mask and machine thing that clanked all night - and I said no! I will never meet a potential partner as it is such a turn off! It just felt like a lazy (and expensive) answer to a problem that has come about via other means.

I am going to be having further Thyroid testing along with the Addisons (which I thought was a definitive diagnosis - apparantly not??) and Cushings.
I have been very ill since 2003, and have run the gammut of 'You have Chronic Fatigue Syndrome', 'You are depressed and should have therapy' etc etc, no wonder I am now angry, tired, fed up and ready to swing.
I tell you - there is more to all this - and I will post it as it happens.
Thankyou for replying to my initial post.

Last edited by Administrator; 10-28-2010 at 11:17 AM.

 
Old 10-28-2010, 11:37 AM   #7
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Re: Addisons & Type 2 Diabetes

Hey I just really hope you get a few answers and get to a better place healthwise...it really is not easy here in the UK with the NHS they are good at Emergency care but diagnosing new illnesses, well it's a bit like pushing water uphill sometimes

Good luck Hun and keep us posted

 
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