Please help - baby has problem with cortisol level
I'm looking for a bit of advice or help.
Here is what I know about my son's condition (he was born early):
Sodium levels always been fine, blood sugar levels always fine, appears completely normal and healthy. He has had 2 brain scans, and mri scan which have come back normal. He has had adrenal gland scan and that came back normal. Pituitry gland working fine and all hormones being produced normally from there.
Initial random blood tests showed v. low cortisol levels on 3 different occasions and normal level on one occasion. ACTH test done - was advised that levels did rise, not quite high enough, but Doctor said that it wasn't due to that he had to go on steroids but due to the random blood tests.
ACTH test done again (7 months later). Advised by Doctor that this time, where the baseline cortisol level had been 'undetectable' before it was now normal. However cortisol levels did not rise as much as they should. His rose to 400 and Doctor said should be about 600.
No one has ever told me what the diagnosis is or what condition he has. If you could shed any light or have similar experiences please share!