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Addison's Disease Message Board
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Old 07-08-2011, 11:18 AM   #1
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bd6720751 HB User
Seeking Addisons Disease Specialist in MD, DC, VA or DE

I have been diagnosed with Addison's Disease as well as Hashimotos, Vitiligio, Auto-Immune Hypothyroid, low Vit. D....I'm trying to find a specialist that actually has experience with this disease. I feel like I'm a guinea pig right now and need some answers. A year of treatment and I feel worse not better and frankly I'm tired of living like this. Everytime they say this should help, it aggravates something else. I need someone that actually knows what to do with this disease and has experience with it, successfully. Any suggestions?

 
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Old 08-16-2011, 09:45 PM   #2
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Re: Seeking Addisons Disease Specialist in MD, DC, VA or DE

Hey there,

Did you find a specialist in your area? A good endocrinologist is needed. Mine is in Reno, NV. That's very far from you, however, patients go to him from all over the country.

If you haven't found someone that can help you, I will email my doctor and see if he knows of someone out there that he would reccommend. I used to live in Md and De. I know how hard it is to find someone good back there for certain things.

Have you tried John's Hopkins? They have satellite clinics where the doctors from the main hospital practice at least one day a week. One of those is in Howard County.

My advice to you is this: don't give up. Hang on to your quest for these things like a dog with a bone. Seek and you shall find.

I wish you mega blessings in your life! Hugs.

Mela

 
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Old 01-01-2012, 03:59 PM   #3
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Join Date: Jan 2012
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wanky HB User
Re: Seeking Addisons Disease Specialist in MD, DC, VA or DE

I left DC in 08 but became an Addison while I was there. The endocronology department at Johns Hopkins can recommend one or try physician finder for an endocronolgist in your particular area. Make sure they're familiar with addisons. I used Dr. Gary Wand @ Johns Hopkins. I also saw Dr Nicholas Argento in Laurel, MD. He's right across the street from Prince George's County Regional hospital. Hope this helps.

 
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Old 01-05-2012, 11:38 AM   #4
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Join Date: Sep 2011
Location: Washington, D.C.
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SeptemberTwin HB User
Re: Seeking Addisons Disease Specialist in MD, DC, VA or DE

I see Dr. Tab Moore at Georgetown University Hospital in D.C. for Hashimotos. He thought I could have Addison's but after doing some testing, I do not have it yet (high ACTH levels but normal cortisol).

Also, NIH has a great resource for finding an endocrinologist that specializes in adrenal disorders. You can go here: http://www.hormone.org/FindAnEndo/index.cfm

Also, if you are willing to travel, the Mayo Clinic has the top endocrinologist center in the country. It is in Rochester, MN. I have not been but I have comtemplated going. Currently, I am happy with seeing Dr. Moore at Georgetown. He will listen to all of your concerns and will investigate.

I hope you are able to find some help soon! Hang in there.

 
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Old 09-13-2012, 07:34 AM   #5
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Join Date: Sep 2012
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mmcg HB User
Re: Seeking Addisons Disease Specialist in MD, DC, VA or DE

Quote:
Originally Posted by love2knit View Post
Hey there,

Did you find a specialist in your area? A good endocrinologist is needed. Mine is in Reno, NV. That's very far from you, however, patients go to him from all over the country.

If you haven't found someone that can help you, I will email my doctor and see if he knows of someone out there that he would reccommend. I used to live in Md and De. I know how hard it is to find someone good back there for certain things.

Have you tried John's Hopkins? They have satellite clinics where the doctors from the main hospital practice at least one day a week. One of those is in Howard County.

My advice to you is this: don't give up. Hang on to your quest for these things like a dog with a bone. Seek and you shall find.

I wish you mega blessings in your life! Hugs.

Mela
I am looking for an endo that will see my 14 year old daughter. She also has celiac disease and is anxious. Would you mind sharing your endo's name? thanks!

 
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