Hello fellow Addisonians. I have been diagnosed with AD for 12 years. The first 7 years were a wonderful time and i was thriving on life, but the last 5 years or so has been utterly miserable as I suffer from severe chronic nausea and occasional vommitting. It has caused me to lose my career job and now I am losing my marriage. I have had every test it seems that can be taken to find the cause for my nausea and retching and vommitting. I have even been to the Mayo clinic. All to no avail. After a few years I attributed it to chronic thrush. I cannot get rid of it. I attribute the thrush as a side effect of the steroids. I go through cycles of severe fatigue and nausea. I call in sick to work quite often and i function inadequately in my home life, as I am always in bed with a trash can at my side.
Has anyone out there experienced this? Does anyone have any suggestions? I am 38 years old, I have 3/4 of my life yet to live and to thrive! I am desperate to find tricks to help me out, a treatment plan, a cure!
Anyone? Any input would be welcomed with open arms. My life is passing me buy and I WANT TO BE WELL!!!
First I want to thank you for replying to my two recent posts.. i really appreciate that you took the time to respond. I will look for the supplement you suggested for sexual energy/fatigue, and I already take DHEA. And in regards to my second post, I am also going to try to take more of my steroid earlier in the day, and get away from the late night dose. Seems a little scary as this is what my body is used to, but i also think that i've gotten myself into a bad habit.
As far as your situation goes, I am very sorry to hear that you're having such a difficult time (i definitely know how it is.. i struggle with my health often) I don't know what to say about the constant vomiting, but as for the nausea, I get that frequently and I've found that it's usually due to low cortisol. As for the thrush.. if you have systemic candida, that is a HUGE burden on adrenal health/cortisol needs and your immune system. I believe that your body may need a little more cortisone just for that constant stress in your system. I suggest that you try to find some sort of holistic or integrative doctor. I have seen lots of different doctors over the years, and have always had the best results from holistic practitioners. They think outside the box, and are much more into healing the body. They also have much more knowledge about conditions related to adrenal dysfunction, weakened immune conditions (candida), etc.
And do your best to keep your spirit up and believe that you will get help, you will feel better, and you will live the life you are meant to. I can tell that you've got a very positive attitude, and that is HUGE when it comes to living with chronic illness.
So don't give up the fight in trying to find someone to help you.. they're out there.. you just haven't met them yet.
Thank you so much, Mollie. I feel so alone in this sometimes, so I appreciate your response. As far as the extra cortisol, it is a two edged sword. The more cotisol I take the more it feeds the thrush, and the worse the thrush the more I need the cortisol. I'm stuck between a rock and a hard place. So I just kind of maintain myself, without getting better. I know I need to quit smoking. That might be a big help. There, I admitted it. Maybe the next step is to do something about it!