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Addison's Disease Message Board
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Old 10-09-2011, 07:17 PM   #1
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Help!!Please help me with addision due to pituitary gland tumor

I have the idrenal gland insufficiency due to the pituitary gland tumor (micro size less than 1cm). It caused me a lot of problems (tired, short of breath all the time...) and take me 02 years to find out the reason.

I have gone thr the surgey for pitutary gland tumor by gamma knife 02 weeks ago, and currently take the hirocortosil 20mg per day. However, my situation does not improve at all, and i am now losing weight.

I am wondering why i aldreay taken hysrocortosil and the replacement of the hormon since 1 month ago, why I am still losing weight? and tired all the time.

Any one suffer like this before? how long does it take for me to recover ? ANy comment? Pleasehellp

 
Old 10-10-2011, 08:03 PM   #2
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luvthesun HB Userluvthesun HB Userluvthesun HB User
Re: Help!!Please help me with addision due to pituitary gland tumor

one of the signs of insufficient steroid replacement is weight loss. 20 mg of hydrocortisone is usually not enough for most people w/ Addison's Disease or Adrenal Insufficiency. It depends if your adrenals are producing any cortisone on their own. Remember... any stress in the body, whether it is physical stress or mental stress, requires that the adrenals produce cortisol. So if you have any other stresses (allergies, cold & flu, or personal problems -relationships, financial problems, etc) the adrenal glands must pump out cortisol. The typical replacement dose is 25 -35 mg/daily.

I would bump your dose up to 25 mg/daily and see if you feel any better.

Take care..
Mollie

 
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Old 10-20-2011, 12:08 PM   #3
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Re: Help!!Please help me with addision due to pituitary gland tumor

I'm sorry to hear you have not been feeling well. I'm not sure how to answer your questions, but I do have a question for you, as I've been having similar problems. It was discovered through MRI three months ago that I had a tumor on my pituitary of 5mm in size. I had the same tumor back in 2004. The doctor is not convinced, however, that the tumor is what is causing my symptoms, since my prolactin levels are normal. He can't explain why I've been lactating, however.

Anyway, since I had my daughter more than one year ago, I've been experiencing several symptoms, including extreme fatigue, joint pain (sometimes so severe I can't function), unexplained weight loss, headaches, dry eyes/blurry vision, heart palpitations, upset stomachs, heartburn, mouth sores, salt cravings, dizziness, confusion, low blood sugar, depression and anxiety. I also have had low blood pressure for some time and 10 years ago was diagnosed with PCOS. All of these symptoms have been incredibly diffuclt for me, as I am a military wife who has a child to care for, and my husband is deployed pretty much around the clock.

I did have a 24-hour urine collection done, and many of my catecholamine levels were low or borderline. I'm still waiting for the hospital to schedule my ATCH stimulation test, and I'm getting tired of waiting for treatment. How were you diagnosed, and how did the doc determine it was a result of the pituitary tumor? Is it possible that I have Addison's, in your view?

Thanks for any help you can provide! I hope you're feeling better soon!

 
Old 10-20-2011, 06:37 PM   #4
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Re: Help!!Please help me with addision due to pituitary gland tumor

Hi Paisleyowl, for my case, dodctor found out the pituitary gland turmor by MRI check. It is found after the idrenal gland insufficiency was discovered.

After I increase the HC dose to 25mg/day for a week, I am ok now, feeling better. However, it seems that the face become a bit bigger (round shape).

 
Old 10-27-2011, 04:42 AM   #5
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Re: Help!!Please help me with addision due to pituitary gland tumor

bigger buttock. rounder face, bigger gut, are all side affects of hydrocortisone. you are on a low dose of hydrocortisone. that will more than likely be increased as addisons progresses. then more of the same side affects.

 
Old 10-27-2011, 06:17 PM   #6
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Re: Help!!Please help me with addision due to pituitary gland tumor

Is there any way to prevent from the side effects? Herbal or accupuncture or whatever can help? I am in Vietnam, so dont know whethere in your country or elsewhere, is there any advance method can help to treat this disease permanently?? (i.e dont need to use HC as a replacement)??

 
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