New to the Board; Not to Addison's
Hello all, I hope everyone is feeling and doing their very best.
I am new to the board. I have been diagnosed with Addison's since 1989. I have a cluster of auto immune illness. Hypothyroid since 1982, sjogren's syndrome since 2003 and lupus in 2006. It keeps me busy.
I am posting today with a problem that i can't seem to get help with. I live in Canada where the healthcare system is supposed to be so great. True we have a paid system but with government cutbacks our system is way past crisis. I have had a pretty ok time with coping and living with Addison's, doubling when I need to, understanding the ebs and tides of life and the direct impact on how I feel as related. Problem since the spring of this year i have kind of lost the control I have always enjoyed. I was put on methotrexate for the lupus/inflamation plaguing my body but had to be taken off when my liver began to complain. I haven't felt great since. Then this fall about September I began to feel really sick. Addison's sick, nausea, dehydration, vomitting, comatose fatigue, severe muscle cramping, blood pressure issues (high???) and racing heart, painful chest and breathing. I tried my best to get into my specialist but it really is near impossible, so when I finally did I was really sick.
He did some tests that showed electrolyte issues, low sodium and potassium, kidney issues, liver issues and of course high white blood cell count. He wanted to see me within 3-4 weeks to discuss that was in the first of October...and i finally got an appointment for the 20th of December. With everything that goes on with me it's real hard to figure things out but I feel after much experiance that the symptoms i am having are Addison's related. For some reason I become dehydrated now. I never did before, i am always careful. There are time now though when I just cannot get enough to drink, my mouth is burning, paiful dry, I suffer ridiculous constipation and I feel like I am burning, hot to the touch. I get the jitters and feel physically anxious but not really mentally, but know cognitivly I am not the same. I have read a bit about addison's and kidney issues and infact came across some article a new syndrome callled "addison's with microangiopathy and renal failure"... sorry about the life story/background...
is there anyone here that has experiance with addison's and kidney issues? Or any understanding why after all this time I might be experiancing this problem?
thanks so much, Sandra