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Addison's Disease Message Board
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Old 07-28-2012, 11:20 AM   #1
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Join Date: Nov 2011
Location: Central Virginia
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Jaynelovesyou HB User
I need help. Should i get tested for addisons? Symptoms listed.

I have endometriosis, and after some treatments for that (medical menopause) all these other things started happening. They've gotten really bad. Ive seen a lot of specialists, and spent 2 weeks in the hospital last week trying to figure out why my upper abdomin hurt so damn bad. I'm 20, and no one can figure out whats wrong with me. My therapist noticed they havent tested for addisons and that a lot of my symptoms fit. Please let me know if i should see an endocrinologist?

Extreme Fatigue
(have to take a nap almost everyday no matter how much sleep i get)

Decreased appitite ( but no weight loss)

When i am hungry i crave salt, bad.

A lotttt of sweating/ hot flashes.

Darkening of a patch of tanned skin(even though it hasnt been in the sun)

Fainting, occasional low blood pressure

Nausea and diarrhea (one or both almost every day,...violent)

Skin peeling in my mouth

Severe muscle and joint pain/pressure
(daily basis, to the point of not being able to move)

depression

Chronic infections (26 in a year and a half)

Chronic uti’s

Chronic abdominal pain, under the ribs on both sides. (uncontrollable crying during ultrasounds, especially over the kidneys) (fetal position and unable to move, eat, breathe during a "flare")

Heart palpitations- cleared by cardiologist, nothing wrong with my heart.

also i forgot... when im in alot of pain i tend to "see things" or "smell things" that arent around. Usually smell ammonia or something like that to the point of making me want to vomit or faint. I'm guessing that's pain messing with my head?

I promise i am not crazy, and please don't get mad for me posting here, i'm just trying to find some answers. This isnt normal and i don't know where to go next.

Last edited by Jaynelovesyou; 07-28-2012 at 11:48 AM.

 
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Old 07-28-2012, 11:21 PM   #2
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Join Date: Jul 2012
Location: Staten Island, New York
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Lisa0422 HB User
Re: I need help. Should i get tested for addisons? Symptoms listed.

Hi! I think you should definitely take the test... I had all the same symptoms.. In today's times you are lucky that they know what Addison's Disease is. When I was going through it they had no idea ..take the test better knowing then not knowing.... : ) Good Luck !

 
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Old 08-04-2012, 02:34 AM   #3
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Join Date: Aug 2012
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Eric2 HB User
Re: I need help. Should i get tested for addisons? Symptoms listed.

You definitely need to get that done. I had a lot of the same problems.
The fetal position, the passing out, etc... really sound like Addisons.

You mentioned chronic infections, well, I had a recurring eye injury that wouldn´t heal. What I am saying is that some of the symptoms are individual and most docs only know about the darkening of the skin which may need not be present.

But be aware that unless you have an excellent doc, you have to push for it. YOU have to know that you need to get that test done.
GO GET IT DONE NOW!!!

All the best.

 
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Old 08-04-2012, 09:26 AM   #4
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Join Date: Nov 2011
Location: Central Virginia
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Jaynelovesyou HB User
Re: I need help. Should i get tested for addisons? Symptoms listed.

Thank you both so much for responding, i definitely feel significantly less crazy. You probably know how that feels, the "the results were normal so the pain must be fake" vibe that most doctors give out and it's really starting to get to me.

Yeah i don't have all the symptoms, but i definitely have enough that i know something is going on. The joint pain and abdominal pain got so bad the other day that i almost had to call 911. So, it's getting worse, and i'm just doing my best to find some answers.

And don't worry, i'm being my own advocate. If i don't agree with or like how a doctor treats me, i move on to a new one, it's been so hard to find trustworthy doctors. I have an appointment with my GP soon. (one of the only doctors who believes i'm sick) So i will talk to him about getting tested, but i also am trying to get in to see an endocrinologist.

Again thank you both so much for responding and helping me out.

 
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