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Old 07-22-2011, 01:23 PM   #1
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Tiredness, brain fog, etc. all the time EXCEPT when not eating for half a day...??!?

I'm struggling with cascade of symptoms for more than 14 years:
- brain fog, poor memory, concentration
- fatigue
- tinnitus
- heart palpitations
- sort of dizziness
...
Basically, all the symptoms that a fellow member so diligently posted in this thread: http://www.healthboards.com/boards/showthread.php?t=635143
In fact it was this thread that made me realize (a few weeks ago) that I am not alone in this terrible condition and gave me another boost to start searching for a solution again. Information within this and similar threads gave me ideas which test to i need to do: B-12, iron, folic acid deficiency, candida and celiac (gluten intolerance).

BUT, what i have been noticing for several years now and haven't found in any forums, web pages is this seemingly paradoxical situation: the only time I feel really close to normal, close what I used to feel before, is when I don't eat for at least half a day. If I'd wake up at 9 a.m. I'd start feeling clarity coming back somewhere after 3-4 p.m. Of course, soon the hunger takes over and I need to eat. Then i start to drift back. Much faster if I eat a lot and/or carbs and/or junk food. But the sobriety lasts longest if I eat only proteins (meat!) with some vegetables. Hence the upcoming testing for celiac and candida.

So, my question: does anyone else have similar experiences, better yet, explanation why hunger would induce a period of mental clarity?

 
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Old 07-24-2011, 08:00 PM   #2
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Re: Tiredness, brain fog, etc. all the time EXCEPT when not eating for half a day...?

Oh, one more thing - joint pain. I read that is very common symptom but I don't have any (well just one...but that has developed recently). Would that exclude the Lyme?

 
Old 01-25-2012, 11:39 AM   #3
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Re: Tiredness, brain fog, etc. all the time EXCEPT when not eating for half a day...?

Quote:
Originally Posted by MJ1978 View Post
Oh, one more thing - joint pain. I read that is very common symptom but I don't have any (well just one...but that has developed recently). Would that exclude the Lyme?
I guess you should have a blood test done to rule out lyme. As far as I know it is pretty easy to identify it that way.

 
Old 02-04-2012, 07:30 PM   #4
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Re: Tiredness, brain fog, etc. all the time EXCEPT when not eating for half a day...?

Ruling in or out Lyme Disease is not that straightforward. Until recently, you would have a Western Blot blood test for Lyme. This test looks for Lyme antibodies by their molecular weight in kilo daltons. Unfortunately there are other proteins in your blood that can have a weight close to the actual Lyme antibodies. The CDC and Infectious Disease Docs require 5 of the 10 possible bands ( weights) in order to give a positive test because of the possibility a meaningless molecule might be mistaken for a real antibody.

There are a group of docs who call themselves Lyme Literate. Any doctor can call themselves Lyme Literate after reading some literature. Many of them are quacks while others mean well. They will diagnose Lyme on a whim and some give people months of IV antibiotics.

This has caused a large rift between the CDC and mainstream Infectious Disease Docs and the "Lyme Literate Docs". Ill people are very willing to go along with the Lyme Literate bunch because they are sick and need help. This makes them suseptable to inappropriate diagnosis and treatment.

So Lyme Disease diagnosis is fraught with problems unless you caught the tick and developed the bulls eye and tested positive. If you don't know if you were bitten and get caught in this Lyme Literate debacle, it can be messy.

Recently a test has come out which uses a real culture to grow the Lyme bacteria. If this test turns out to be successful, it might help end the controversy. Growing the spirochette by culture is potentially bulletproof since a culture is the gold standard.

 
Old 02-07-2012, 03:51 PM   #5
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Re: Tiredness, brain fog, etc. all the time EXCEPT when not eating for half a day...?

Based on the fact that you feel better when you're not eating, I'd definitely consider going on a food elimination diet for a couple of months and see how you feel. I'd start with cutting out all gluten and dairy, and also have an IgG food allergy test done with the help of your doctor to see what else you might be allergic to. Try it for about 2 or 3 months and see how you feel. Hope this helps.

jman74

 
Old 02-07-2012, 04:28 PM   #6
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Re: Tiredness, brain fog, etc. all the time EXCEPT when not eating for half a day...?

Actually, soon after first posting this, that's exactly what I did - eliminate all gluten from my diet. And it did work quite a bit. Less fatigue, more energy. I also went to check for the allergies and scratch test showed allergy to mites, dog/cat hair, grass, but no food allergies. I'm still waiting for the IgA, tTG and SIgE (wheat) lab results, but the doc admitted that gluten sensitivity won't show (especially since I was gluten-free for a while before the test...hell, didn't need a lab to confirm what I already felt), however, the doc also said that she had seen too many people who said that avoiding gluten made them feel better to dismiss the idea as a 'new age quack'.
Anyways, my numerous health problems are far from resolved (currently looking at adrenal/thyroid insufficiency and/or B12 deficiency) but removing gluten from my diet definitely lifted some stress on my body. And i do feel significantly better now. Plus, loosing quite a few pounds wasn't so bad either.

 
Old 02-29-2012, 10:04 PM   #7
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Re: Tiredness, brain fog, etc. all the time EXCEPT when not eating for half a day...?

I have all these symptoms. I'm also gluten intolerant - but avoiding it did not solve that many problems. How is your digestion? Do you have undigested food in your stools? low stomach acidity? this could be caused by insufficient levels of thyroid hormones

 
Old 03-01-2012, 12:11 PM   #8
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Re: Tiredness, brain fog, etc. all the time EXCEPT when not eating for half a day...?

It is amazing how fast one can forget how terrible one had felt before improvement. Yes, gluten-free diet did alleviate some fatigue, brain-fog,... but like you said, not that much... especially thinking about it now, half a year after avoiding gluten and getting used to 'the new normal', which is better than it used to be, but not that great either.
Thyroid, adrenals, b12... read bunch of books on those subjects and every time I read any of them I thought 'yeah, this is it'! But...I don't think it was. Got b12 tested - above normal, TSH was good and other thyroid malfunction symptoms are inconclusive (some are hyper- , some hypo-). Adrenal fatigue might be an issue but again, so hard to conclusively diagnose it and then so long (and expensive!) to treat it; don't want to go down that alley if I'm not really sure... or really, really desperate. What I don't like about this hypothyroid/adrenal self-help books is that all of them seem to offer 'one diagnose fits all' cure. That gets me extra suspicious...and a bit turned off.

Instead I quit smoking. At least i hope I did. It's been only the 2nd day without a smoke, but after having 30 or so cigarettes a day, every day for the last 10+ years. I want to get past the cold turkey, get used to normal non-smoking life, then see how I feel and try to solve my health issues. I'm sure smoking has/had a noticeable impact on my well-being, especially symptom (miss-)reading, so after quitting I'll have a much clearer picture of what the core problem is. I'm pretty sure in two months, maybe sooner, I'll first try an elimination diet. If I'm sensitive to gluten, allergic to mite, dog/cat hair, etc... there's a distinct chance I might also be intolerant to some other foods. But, hey, first I have to make it through the cold turkey.

 
Old 03-11-2012, 11:17 PM   #9
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Smile Re: Tiredness, brain fog, etc. all the time EXCEPT when not eating for half a day...?

I have the exact same thing, been gluten free, dairy free, and low sugar intake for the most part over many years. Seems to be getting worse. But when I don't eat and push past the hunger then 5 to even 8 hours later feel better, more like my old self. But I am starving and can't afford to lose weight.

I read that when the body goes into extreme hunger it releases a lot of cortisol to maintain blood sugar levels and that may be the reason we feel better then. So I am tring some adrenal meds to see if they help. Some suppress immune function a bit, but the same thing is happening if I don't eat. And I want to eat and not feel like crap afterwards.

The other issue may be a fungal or bacterial infection that when you eat gets feed and then releases neurotoxins (which are most ignored by doctors but some specialists recognize it) and you feel worse.

I've tried many things and it seems for me it's the adrenal issue, what's cause that I don't know. Hope you find some help.

 
Old 03-12-2012, 01:18 AM   #10
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Re: Tiredness, brain fog, etc. all the time EXCEPT when not eating for half a day...?

Hey, glad to find someone who knows what I'm talking about. Maybe we can solve this one together.

Yes, cortisol insufficiency makes sense, doesn't it? Body detects food intake, releases insulin to store the sugar, but not (enough) cortisol to burn the already stored sugar to supply the body with energy; since digestion itself is energy demanding, extreme fatigue sets in. If this is the case, it should be relatively easy to detect it by simply following blood glucose levels with a home-test monitor. (I am planning to get one and follow my glucose level for a week or so). One more thing - it could also be the glucagon deficiency, not cortisol... actually, this would be more likely since glucagon is the closest thing to the insulin's opposite; and they are both secreted by the pancreas. ... Like I said, it's seems to be worth the investigation.

Neurotoxins released by gut bacteria seem a bit far fetched idea to me. Mainly because the fatigue sets in about 20-30 min after the meal (right?) but it takes at least 1-2 hours for food to move from stomach to the small intestine and another 4-6 hours to get to bacteria friendly environment, the large intestine. So, it would have to be a bacteria infesting the stomach, plus, the neurotoxin would have to be able to cross the blood barrier within the stomach, too, and this is a place notoriously impermeable - i think only alcohol and salt goes through. Ok, I'm not saying it's impossible, just that it's very unlikely.

But, tell me, why do you think it's the adrenals - any successful therapy?
And have you ever looked into food intolerances... trying out the exclusion diet?

 
Old 03-13-2012, 06:39 PM   #11
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Re: Tiredness, brain fog, etc. all the time EXCEPT when not eating for half a day...?

My doctor is believes that it is adrenal exhaustion and had me on hydrocortisone but I only noticed it helped when I used 20 to 25 mg. But I got worried that it had pro's and con's so went off it. Plus there are other hormones like DHEA. I'm thinking of get tested just not sure how good the tests are.

But, I am going to try the hydrocortisone again soon temporarily, just to see how I feel. I think the adrenal exhaustion part makes sense for me and from what I read, it takes a long time with miminal exertion so the body can rebuild ATP stores. Is there a test for this I wonder?

Thanks for the tip about the glucagon deficiency, I will have to look into that one. I wondered what was the counter to insulin.

My fatigue sets in about 1 hour after eating and lasts for about 2 hours. So I think it's small intestine related as well as I have bloating and discomfort. My diet is very healthy and restrictive so I don't know what else I could eliminate. If I eat anything else (which I sometimes do) I feel much worse.

Like you still trying to figure it all out.

 
Old 06-20-2012, 11:44 AM   #12
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Re: Tiredness, brain fog, etc. all the time EXCEPT when not eating for half a day...?

Quote:
Originally Posted by MJ1978 View Post
I'm struggling with cascade of symptoms for more than 14 years:
- brain fog, poor memory, concentration
- fatigue
- tinnitus
- heart palpitations
- sort of dizziness
...
Basically, all the symptoms that a fellow member so diligently posted in this thread: http://www.healthboards.com/boards/showthread.php?t=635143
In fact it was this thread that made me realize (a few weeks ago) that I am not alone in this terrible condition and gave me another boost to start searching for a solution again. Information within this and similar threads gave me ideas which test to i need to do: B-12, iron, folic acid deficiency, candida and celiac (gluten intolerance).

BUT, what i have been noticing for several years now and haven't found in any forums, web pages is this seemingly paradoxical situation: the only time I feel really close to normal, close what I used to feel before, is when I don't eat for at least half a day. If I'd wake up at 9 a.m. I'd start feeling clarity coming back somewhere after 3-4 p.m. Of course, soon the hunger takes over and I need to eat. Then i start to drift back. Much faster if I eat a lot and/or carbs and/or junk food. But the sobriety lasts longest if I eat only proteins (meat!) with some vegetables. Hence the upcoming testing for celiac and candida.

So, my question: does anyone else have similar experiences, better yet, explanation why hunger would induce a period of mental clarity?
Just wondering if you ever found out what it was that was causing your problems or a solution ? I have the same symptoms but the doctors don't seem to have an answer. I have to get some thyroid tests done. The past ones didn't show anything.

 
Old 06-20-2012, 01:03 PM   #13
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Re: Tiredness, brain fog, etc. all the time EXCEPT when not eating for half a day...?

Hi snowbell60,

I also have the symptoms you quote for 1 year, I was wondering if your tests didn't show anything it might be that your thyroid is ok?
I myself got referred to a psychologist and am receiving therapy for stress (which seems to work, I have much more energy now).

 
Old 06-20-2012, 02:13 PM   #14
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Re: Tiredness, brain fog, etc. all the time EXCEPT when not eating for half a day...?

Hi Pengu19,

That's interesting, did the psychologist suggest any medications or supplements along therapy?

I am getting a full hormone pattern done next month...

Anything to reduce the fatigue would be great!

 
Old 06-21-2012, 01:33 AM   #15
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Re: Tiredness, brain fog, etc. all the time EXCEPT when not eating for half a day...?

Quote:
Originally Posted by luckandlove View Post
Hi Pengu19,

That's interesting, did the psychologist suggest any medications or supplements along therapy?

I am getting a full hormone pattern done next month...

Anything to reduce the fatigue would be great!
Hi luckandlove,

I did not receive any medication prescriptions (apart for some painkillers for 1 week because of muscle tension in my neck).
Stuff I changed in my life which made me feel better:
-cut down on coffee when not working (drink caffein free tea instead)
-I take a vitamin supplement in the morning
-eat more fruit
-eat an egg every morning
-go out and sport more often
-when you feel you can not work because of your tiredness, simply stop working and accept that you are tired. Instead, take some rest, it really helps for me.

Hope this helps

 
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