I was diagnosed with Hashis back in the mid 90s. In all this time I have never been to an endocrinologist but rather have been treated though my primary. I've had lab work done of course, but I think that it is checking for TSH only. Over the years my levoxyl dosage has gone up from 50mcg to a high of 200. The 200 was too high (heart palpitations, etc) so it was cut back to 175 a few years ago.
Everything was pretty stable until just recently, when my primary called to tell me that my TSH was down to .125 and that she needed to cut my dose of levoxyl from 175 to 125 right away and reevaluate in 8 weeks. When I asked what could be up, she told me that it was most likely because I've recently lost 10-15 pounds (300 down to 285 or so). But my weight has fluctuated at least that much before and my TSH didn't go that low. (BTW, my weight got so high because I always feel like I don't have enough energy and tend to eat to compensate; i.e., I feel as if I eat I will have more energy. I am working on that, which is why I lost the 10-15 lbs since New Years).
I'm pondering if now wouldn't be a good time to go ahead and see an endocrinologist to get a second opinion. Could there be something else going on (rather than weight loss) to make the TSH go down that low? Or should I just wait out the 8 weeks and see what happens?
The paranoid part of me wants to see the endocrinologist, while the happy go lucky don't need doctors part of me says to just go along with the plan, which seems reasonable enough on the surface.
Thanks in advance for the replies!