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Old 02-17-2012, 11:49 PM   #1
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Soooo frustrated!

I know this subject has been covered plenty of times but here I go, I am so frustrated and at the end of my rope with trying to resolve my hbp issues. I have been dealing with it for years and have tried numerous meds. I have been on Cozaar for 7 years, Metoprolol, Clonidine, Amlodipine, Lisinopril and others that I cant even remember now. I cannot take diuretics, within a couple of days of taking them I end up at the hospital with severe dehydration. The cozaar doesnt lower my bp at all, the metoprolol I cant take everyday as my pulse is usually too low to take it. The only thing that seems to help is the clonidine but I have to take my bp readings all day and night long and never know how high i will be. I cant even sleep through the night w/o waking up atleast a couple of times to check my bp. The worst time for me is when I wake up, everytime I go to sleep, even just for a nap and wake up my bp has spiked to dangerous levels. And here I am again sitting here not being able to go to bed as the clonidine is not lowering it enough, I have taken in the last couple of hours, 2mg of Clonidine and a mg of xanax and it is still not low enough for me to go to sleep. I know that it can take more than one medicine for alot of people with hbp, but I am getting so frustrated and tired of living like this, if they could just find something that would control it a bit better so I wouldnt have to spend my whole life checking my bp and figuring out how to try and bring it down. I dont know if it could have anything to do with it, but I get adrenaline surges frequently. I can feel the adrenaline pumping through my body. I have had all the blood tests, urine tests, kidneys tested, everything comes back fine. I am 47 years old and hate it that I cant even keep up with taking care of my house when I always feel exhausted, achy, etc. Please if anyone else has had similar experiences or can just respond so I dont feel so alone in this battle I would greatly appreciate it!
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Old 02-18-2012, 12:02 AM   #2
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Re: Soooo frustrated!

What are your current numbers that you don't feel safe to sleep? BP generally gets lower during sleep...

 
Old 02-18-2012, 10:16 AM   #3
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Re: Soooo frustrated!

Just a thought that if your blood pressure is typically >160/100 with >3 meds, you may meet criteria for at least one clinical trial for radiofrequency ablation therapy for hypertension. This is a catheter-based treatment where the renal sympathetic nerves (accessed at the renal artery) are ablated with radiofrequency energy.

There also exists a carotid stimulator for refractory hypertension.

Just a thought in case this not an avenue that you have considered.

 
Old 02-18-2012, 02:00 PM   #4
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Re: Soooo frustrated!

Hey aten ive read about this on BBC news. How much does the procedure cost? Is it suggested for younger patients "23" or only older patients? Also do you think there is any way my insurance would agree to pay for it?

 
Old 02-18-2012, 09:08 PM   #5
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Re: Soooo frustrated!

My numbers are somewhat controllable during the day, basically in the 150's, but as soon as I sleep at all they spike. Some of my readings when I wake up are 206/102, 209/109, 204/113, etc. The highest reading I have ever had is 284/140. Then I have days like yesterday where I cannot get my bp to respond to the clonidine no matter how much I take. My doctor says if the top number hits 200 or the bottom number hits 90 I have to go to the ER, I would be at the hospital every day at that rate. I never know where my readings will be which is why I have to check it often, last night my poor son who is so good to me sat up with me because I just could not get it to come down no matter how much clonidine I took, and then when I would fall asleep he will wake me up every so many hours as I cannot go more than 4 or 5 hours top without taking the meds or it will be way too high. Just frustrated as this has been going on for years and they dont seem to be able to find something to level it off and keep it somewhat normal, it just bounces up and down all the time. And thank you very much for your replies, helps to know that your not alone.
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Feb.2003-ACD w/o fusion at C5-6.
Oct.2003-C4-5 disc bulging, C3-4 disc protrusion.
Degenerative Spondylosis, DDD, Arthritis, Spinal Stenosis, Bone Marrow Edema, etc...

 
Old 02-19-2012, 04:16 AM   #6
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Re: Soooo frustrated!

sroman,
I recently read that the American Society of Hypertension (ASH) launched a new initiative this past July for certain medical Centers and practices to be formally recognized as "designated hypertension centers", to assist patients who have difficult-to-treat hypertension. (Also to assist their doctors!).The designated centers have to have demonstrated expertise in treating patients with complex hypertension and its co-morbidities. I know that Rush University Medical Center Hypertension Clinic in Chicago is one. You might want to check out ASH and search "designated hypertension centers" for more info.

zuzu

 
Old 02-19-2012, 07:04 AM   #7
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Re: Soooo frustrated!

It sounds like you need a hypertension specialist to alter your medications. Further, you might be a candidate for one of the procedures that are effective in lowering BP. I would find a hypertension doctor to discuss.

 
Old 02-19-2012, 07:12 AM   #8
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Re: Soooo frustrated!

Quote:
Originally Posted by dantescritic View Post
Hey aten ive read about this on BBC news. How much does the procedure cost? Is it suggested for younger patients "23" or only older patients? Also do you think there is any way my insurance would agree to pay for it?
Your numbers are not high enough to qualify, if I recall your BP correctly. These devices/procedures are being tested for patients with malignant hypertension that cannot be controlled with 3+ medications.

The two that I am familiar with are the carotid stimulator, and radiofrequency ablation, both of which are in clinical trials phase. I know a bit about the second procedure, and frankly, even if you could find someone to do this procedure for you, it would be of little benefit because your numbers are not high enough. And Id think that it would be an out of pocket expense.

In the future, there will likely be a treatment available for someone like you and I, but for the most part, none is avail now.

 
Old 02-20-2012, 06:25 PM   #9
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Re: Soooo frustrated!

I have been seeing a hypertension specialist for about a year now. I am wondering if anyone else gets adrenaline surges? I also have anxiety disorders but even when my anxiety isnt acting up I still get surges of adrenaline, anyone who gets them will know the feeling. You can feel it pumping through your body. I have often wondered if that could be a contributing factor. Today I slept 7 hours and when I woke up by reading was 215/119, I have to get up and take meds within usually 5 hours of my last dose. Bleh, just venting as it gets frustrating. I really do hope they come out with new things to help us all suffering with hbp.
__________________
Feb.2003-ACD w/o fusion at C5-6.
Oct.2003-C4-5 disc bulging, C3-4 disc protrusion.
Degenerative Spondylosis, DDD, Arthritis, Spinal Stenosis, Bone Marrow Edema, etc...

 
Old 02-21-2012, 12:38 PM   #10
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Re: Soooo frustrated!

Have you considered renal nerve ablation?? It is a promising procedure that I think would likely benefit you given your BP and symptoms.

 
Old 02-29-2012, 02:27 PM   #11
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Re: Soooo frustrated!

Have you taken any ARBs? If so, have you tried ALL of them? If not, then start now and try every one of them. Avapro is pretty good - 150mg controls my BP.

 
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