Re: How often should they check me?
Thanks for the reply.
I had no saliva test done. I had ACTH blood work done, asked to fast and come in first thing in the morning. However our clinic didn't open till 8 am so was the first one in line. When I had the previous ACTH blood test done last July, I had to come in at 7:30 to another clinic which changed nothing because I still had to wait till around 8 am. I also had to go back in around 5 pm for more blood work. These first tests are the ones that came back borderline. The follow up came back normal according to the doctor. I assumed the ACTH test was my cortisol levels???
I had taken an occassional prednisone to help with the diarrhea, but it was only one 5 mg and then I wouldn't take anymore because I'm not supposed to go back on pred because of osteoporosis. I know this sounds crazy, but I would actually feel better for 2-3 days afterwards in general, with less body tightness, muscle weakness, pain and even a decrease in diarrhea, although it didn't take it all away plus I would actually have an appetite for those brief days. Lets say it lessened it for a very short time. After the 3 days, symptoms came back but twice as bad. Twice I tried this with the pred.
I have periods of fatigue around supper time, but it was worse before when the GP doctor said it came back okay... I sleep in late in the morning, so I don't really feel the fatigue then. I go to bed very late, like around 2 am and sleep till 9 or later in the am.
It's all confusing.