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Old 02-12-2004, 06:32 PM   #1
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HAIRDOER HB User
Smile What finally cured my chronic hives

I am editing this so everyone will read the last post on here by me. I have been hive free 4 months now and off the drug that fixed me. It has been awhile since I posted. I just wanted to give you all the info that may help you as much as it helped me. I have had Chronic Ideopathic Urticaria for well over a year. Well, sorta. Someone on here told me about a med that helped that person so I asked my Dr. about it. She said it was not used for hives but worth a shot. The drug is sulfasalizine. 4 pills a day. It is commonly used to treat Chrons disease, arthritis and colitis. I have to take several supplements as well. Had to have blood work done first. But I took it for two months and was completely clear of all hives for a month. So I stopped the medicine and the hives are returning but it took about a month before I got any. I get pressure hives too. SO I am starting the med again and we will see what happens. The first time I took it, it was about 6 weeks before they started to go away. I hope it works again and I plan on taking it longer if the hives are gone anyway just to make sure. I really enjoyed my life not revolving on how bad the hives were day to day. I hope this may help someone out there like it did me.

Updated this information at the bottom and the new post tells about my new diagnosis. I am on different meds now and will do a new thread later.

Last edited by HAIRDOER; 10-07-2007 at 10:28 PM. Reason: that fdrug stopped working and now after a new medicine.....I am hive free. Read to the end!

 
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Old 02-14-2004, 03:17 AM   #2
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Imjustwondering HB User
Re: What finally cured my chronic hives

Hey, this is interesting to me as Im suffering from chronic pressure hives. for years now Ive had them. can you tell me your symptoms? and what meds you took before. eg. reactin or claritin. is sulfasalizine a safe drug to use? cya

 
Old 02-15-2004, 11:13 PM   #3
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HAIRDOER HB User
Re: What finally cured my chronic hives

Quote:
Originally Posted by Imjustwondering
Hey, this is interesting to me as Im suffering from chronic pressure hives. for years now Ive had them. can you tell me your symptoms? and what meds you took before. eg. reactin or claritin. is sulfasalizine a safe drug to use? cya
Humm. Symptoms...very large hives that appear on any body part that is under any stress. Like bottom of my feet. Can't wear tight pants, belts, or put much pressure anywhere without getting welts that itch and get red and drive me nuts. The hives itch but mostly hurt. I have developed hives just from shopping for an hour and having the hangers over my arm on my way to the dressing room. Within a couple of hours I will get hives if I get a massage. I also get hives in places that have had no pressure and then they usually go away within 24 hours only to pop up in a new place.
Last winter I tried every anti itch medicine. I did the benadryl, allergra, and a few others that do a good job making me sleepy. I have two kids and no time for resting most days. I also did 4 or 5 rounds of steriods last winter. I got a couple of cortizone shots. The steriods helped when I was on high doses but as soon as I got down to 20mgs a day the hives would come back with a vengence. I have had them internally. Head to toe.
I got on this board and someone said they took the sulfasalizine and had taken it for 5 years I think till it quit working. I went to my Doc and said, hey can we try this medicine. She said she had not tried it before for this but it may be worth a shot so wa laaaaaahhhh. She listens to me cause she knows I KNOW more than she does about it!! I got it and it took awhile before the hives went away completly but they did so I decided to taper myself off. It took about the whole month of Jan. before they started to appear again so I am taking it again and I will see if it works again. I sure hope so. I had a big hive on the bottom of my foot all night last night and could not walk on it this morning and was itching all night so I could not go to church this morning, but by noon the swelling was starting to do down and it is almost gone now. I have a few small welts on my tummy and back but they do not bother me very much. Wonder where the next ones will be.
If you do a search on the drug name you will find info about it. No where did I find that it is used to treat chronic hives but it worked for me and at least one other person. I think it is much safer than anti-histamines forever and steroid use long term. I think these hives are not caused by allergies but something internally that is all mixed up. It has to do with IgE antibodies and the autoimmune system. It is so complicated that there is no know cause that can be pinpointed by Drs. SO it is up to us to do as much research and help ourselves so that we can someday figure out a way to stop this. Keep reading all you can. Good Luck to you too!!!

 
Old 02-16-2004, 08:38 AM   #4
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Hogan Grimm HB User
Re: What finally cured my chronic hives

Well Hey Hairdoer,

Glad to see you around again. I have been gaining some ground on finding ways to stop breaking out as well, I will post more about that later today.
I didn't want to say anything untill I was sure that what I was doing was working, but I think I can post it now.

Let me get my notes together and I will post what I have found.


Hogan grimm
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The answer has got to be here somewhere.

 
Old 02-16-2004, 07:34 PM   #5
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PinkBanana HB User
Re: What finally cured my chronic hives

That's great..do you know if it work for hives/rashes that are triggered by allergies/dry/cold air?
I've been lucky not to have an outbreak in a long time..but often when it comes, it's EXTREMELY difficult to get rid of..

 
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