angioedema, allergy tests
Where to find info on angioedema?
My name is Angel. I've just been diagnosed with angioedema. My throat swells up after eating multi-various foods. I don't know anything about this condition and have looked on the internet for a support group/association for angioedema, to get some reliable written info to show my GP, who is clueless, but I haven't been able to find anything. Anyone know who to contact?
I am sure it is food related. But the 'allergy specialist' says it is fine to continue eating what I like, though my tongue might 'swell up the size of a golf-ball', but not to worry, because it's not dangerous. Surely this can't be right!
I had the allergy tests -which apparently showed I'm an 'allergic person' but have 'no clinical allergies'. What does that mean??? I was still taking antihistamines just before the tests.
Any advice, comments, experiences would be greatly appreciated. ((((Thankyou))))