My name is Angel. I've just been diagnosed with angioedema. My throat swells up after eating multi-various foods. I don't know anything about this condition and have looked on the internet for a support group/association for angioedema, to get some reliable written info to show my GP, who is clueless, but I haven't been able to find anything. Anyone know who to contact?
I am sure it is food related. But the 'allergy specialist' says it is fine to continue eating what I like, though my tongue might 'swell up the size of a golf-ball', but not to worry, because it's not dangerous. Surely this can't be right!
I had the allergy tests -which apparently showed I'm an 'allergic person' but have 'no clinical allergies'. What does that mean??? I was still taking antihistamines just before the tests.
Any advice, comments, experiences would be greatly appreciated. ((((Thankyou))))
My name is Angel. I've just been diagnosed with angioedema. My throat swells up after eating multi-various foods. I don't know anything about this condition and have looked on the internet for a support group/association for angioedema, to get some reliable written info to show my GP, who is clueless, but I haven't been able to find anything. Anyone know who to contact?
I am sure it is food related. But the 'allergy specialist' says it is fine to continue eating what I like, though my tongue might 'swell up the size of a golf-ball', but not to worry, because it's not dangerous. Surely this can't be right!
I had the allergy tests -which apparently showed I'm an 'allergic person' but have 'no clinical allergies'. What does that mean??? I was still taking antihistamines just before the tests.
Any advice, comments, experiences would be greatly appreciated. ((((Thankyou))))
yes i have andgioedema and they call it idiopathic however it is allrgy related to me as i go outdoors and my tougue swells and my thorat also to indoors now too !!! my allergist is at a loss and i do recomend carrying around a epipen as it can close off your airways !!! also liquid benedryl to take when it happens!! it is scary and it can be dangerous my dr asked me why i was so concerned too !!! let me tell him he doesn't have a clue about chocking on a tougue!!
sk
