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Old 12-28-2004, 06:49 AM   #1
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Angelee HB User
angioedema, allergy tests

Hi

Where to find info on angioedema?

My name is Angel. I've just been diagnosed with angioedema. My throat swells up after eating multi-various foods. I don't know anything about this condition and have looked on the internet for a support group/association for angioedema, to get some reliable written info to show my GP, who is clueless, but I haven't been able to find anything. Anyone know who to contact?

I am sure it is food related. But the 'allergy specialist' says it is fine to continue eating what I like, though my tongue might 'swell up the size of a golf-ball', but not to worry, because it's not dangerous. Surely this can't be right!

I had the allergy tests -which apparently showed I'm an 'allergic person' but have 'no clinical allergies'. What does that mean??? I was still taking antihistamines just before the tests.

Any advice, comments, experiences would be greatly appreciated. ((((Thankyou))))

 
Old 12-29-2004, 05:22 PM   #2
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reader1 HB User
Re: angioedema, allergy tests

If those were really the kind of comments and info you got from the allergist...I would get a second opionion.

 
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Old 04-18-2005, 06:48 PM   #3
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Join Date: Apr 2005
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skilgore HB User
Re: angioedema, allergy tests

Quote:
Originally Posted by Angelee
Hi

Where to find info on angioedema?

My name is Angel. I've just been diagnosed with angioedema. My throat swells up after eating multi-various foods. I don't know anything about this condition and have looked on the internet for a support group/association for angioedema, to get some reliable written info to show my GP, who is clueless, but I haven't been able to find anything. Anyone know who to contact?

I am sure it is food related. But the 'allergy specialist' says it is fine to continue eating what I like, though my tongue might 'swell up the size of a golf-ball', but not to worry, because it's not dangerous. Surely this can't be right!

I had the allergy tests -which apparently showed I'm an 'allergic person' but have 'no clinical allergies'. What does that mean??? I was still taking antihistamines just before the tests.

Any advice, comments, experiences would be greatly appreciated. ((((Thankyou))))

yes i have andgioedema and they call it idiopathic however it is allrgy related to me as i go outdoors and my tougue swells and my thorat also to indoors now too !!! my allergist is at a loss and i do recomend carrying around a epipen as it can close off your airways !!! also liquid benedryl to take when it happens!! it is scary and it can be dangerous my dr asked me why i was so concerned too !!! let me tell him he doesn't have a clue about chocking on a tougue!!
sk

 
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