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Old 01-02-2005, 12:20 AM   #1
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Lady Madonna HB User
Hives and Doxepin

I have been having hives for 9 months.
Claritin and benadryl worked ok, but the claritin didn't last the full 24 hours, and I would still have breakouts. I also get angiodema (associated w/ hives = swelling of lips/tongue/eyes/hands).

My general practitioner put me on Doxepin. It works wonders. I take claritin in the morning and doxepin at night- as it's supposed to make you drowsy. Well, the doxepin is making my insomnia worse, and I'm exhausted in the morning.

Anyway, I just wanted those of you who don't know about doxepin for hives/angiodema to know, it may help. And I also wanted to know if anyone has taken doxepin and whether your body got used to the drowsy side effect?

Thanks for listening.
-Lady

 
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Old 01-05-2005, 10:44 AM   #2
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Re: Hives and Doxepin

Sorry no one has replied to your post. I just saw it and thought I would let ya know that I have tried the doxipen. It did nuthing for me except make me very sleepy. Most people take it only at night and it helps sleep so you are not up at night miserable with the hives. I suppose it helped me sleep but as for the hives going away it did not at all. I have been doing this for three years now and have tried 15 different meds. Nothing except sulfasalizine helped me at all. Bebadryl helps with itching but the swelling is the worst part of it so I am on to stronger stuff now. More dangerous but I have high hopes. I am on Neoral. I refuse to do this forever. I have a huge notebook full of hives info and know more than I ever wanted to know.
I hope yours does not last so long and you don't suffer through the Dr. maze and medicine rollercoaster. If you want you can click on my username and read all my posts about hives on this board. There are a few older threads on here too about it if you want to do a search.
Good luck to ya!!

 
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Old 01-05-2005, 10:51 PM   #3
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Re: Hives and Doxepin

Thanks for the reply. I don't have insurance, so I can't really go through the maze of doctors (unfortunately). I tried to get an appt. just to test for mold and my dog, but the nurse was not very helpful and just kept telling me it was too expensive if I didn't have insurance!!!

I had a whole battery of allergy tests done 2 years ago, and I was not allergic to dog. Someone told me some dogs are different and to be tested specifically for her (my dog). The nurse had no insight.

I just had my thyroid tested (a cause), but evidently it came back negative, since dr. didn't call. I have an appt. next week.

Good luck. I understand about not wanting to be on meds. If mine don't clear up (and even if I have to find another home for our sweet beagle), I will move somewhere else....drier maybe. Have you tried a different town.....I know that's drastic, but people move for health purposes all the time.


-Lady

 
Old 01-06-2005, 08:43 AM   #4
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Re: Hives and Doxepin

Hi 'Lady Madonna', do you know what's your diagnosis? If you have chronic urticaria (CU), usually the cause wouldn't be due to allergic stuffs like dustmites, dander, food...etc though the person that has the CU might also already have this allergies. A number of people with chronic urticaria are sensitive to salicylates which might make their hives worse, you might want to watch it to see if you are sensitive to it too. Usually CU is due to underlying infection(root canal, sinus infection...), autoimmune diseases, autoimmune hives, cancer, thyroid problems, etc. Allergies are seen in acute urticaria.

The long term antihistamines and CU has greatly affected me. I get so tired easily and even now when I don't need to take antihistamines daily, I still have the fatigue...

However if you have the money and support of your doctor, there's actually a long list of tests to look for a cause. But sometimes you might just never find one. Do keep a diary about your symptoms, e.g. a) where are you at, is the place cold or hot, b) what food did you take, c) did you go any special place or did any special thing, d) were your hives worse when you are sick with a cold/fever/flu. There are just so many things to add on and if you can be as detailed as possible, it might be more helpful. You can take the diary and discuss the symptoms with your doctor.

Anyway, I'm glad that you found a med that works for you! Good Luck!

 
Old 01-07-2005, 09:02 AM   #5
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Re: Hives and Doxepin

hi Lady Madonna, welcome to the world of chronic uritcaria - I hope the docs do find a cause for you, as then you might be rid of the problem. I would give jsut about anything for the doctor to say "this is the cause, this is how we stop it" , but it doesn't seem likely after all this time. I have had hives daily for two years now, and intermittently before that. Sucks. I have tried umpteen meds, and have a pharmacist friend of mine doing searches and making suggestions for treatments all the time. No luck so far. Sucks. The only suggestion I have is to keep researching, and keep reading the posts. I have found them helpful, even when it is just to let me know that I am not crazy, and that other people get this too. I t is hard when the people you work with dont' get it, and treat you like a hypchondriac or a leper. Argh. sorry to sound so depressing, it is just that the past week or two have been depressingly itchy fo rme.

 
Old 01-07-2005, 12:44 PM   #6
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Re: Hives and Doxepin

I think my hubby thinks I'm a hypochondriac. Now he's says "well, you found a med that works, that's good". However, I've been falling asleep in the middle of the afternoon. The doxepin is making me sooooo drowsy I think I'm going to stop taking it (after my appt. next week). I would rather take the claritin and have an ocassional break-out. However, I think I need to ask for a ?stiptic pencil??? I get angiodema too, and am concerned about my throat swelling up.

I'm living in a fog on this med. ugh!

 
Old 01-09-2005, 10:25 AM   #7
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Re: Hives and Doxepin

Hi Lady Madonna, I can relate to you! You aren't alone , I guess you should take the doxepin before bed and the claritin in the day. There are other medications out there, have you been on them? I can totally understand about the 'living in a fog with the meds'... my studies, life and everything was affected! Until now, I have a hard time remembering stuffs past and present...

It's an epipen and yes you need one!

Cheer up!

 
Old 01-10-2005, 02:43 PM   #8
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Re: Hives and Doxepin

All, just curious - do the sedative effects of doxepin go away after a few weeks/months of use?

 
Old 01-10-2005, 07:45 PM   #9
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Exclamation Re: Hives and Doxepin

They told me the side effects would go away after a couple weeks. They haven't gone away for me and I've been on it for 21 days. I DO take it at night, it doesn't help me get to sleep, but the next morning I am useless/exhausted.

I have an appt. on Thursday to talk w/ the doc about it, I am going to stop taking it, but have it there as a backup. I can't go through life like a living zombie. I react differently to meds than others....I'm kind of a lightweight. Also, nyquil and stuff that are meant to help you sleep keep me up all night. Like it says "may cause excitability in children".
-Lady

ah yes, epipen....thank you cheerangel. I'm hard-of-hearing too, so sometimes miss how things should be said/spelled.

 
Old 01-11-2005, 08:07 AM   #10
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Re: Hives and Doxepin

Hi guys, side effects like drowsiness do go away after a period of time but it also depends on the type of medication and individual. As for me, the drowsiness stayed with me. Even the newer antihistamines like claritin has a sedative effect on me though might not be as strong as the generic types.

Another thing is that some people will be 'immune' to the medication after taking it for some time... Good luck!

 
Old 03-06-2005, 03:08 PM   #11
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Re: Hives and Doxepin

Where would you get one of those epipens? I have never had the neck swelling, but have had swelling on my face, shoulders, arms and feet. Also, what type of doctor are you seeing for the angiodema and chronic urticaria? After reading what some of you are saying here, I feel this is what I have had for the past 10 years.

 
Old 03-14-2005, 08:53 AM   #12
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Re: Hives and Doxepin

Hi 'bestest', epipens can only be prescribed by a doctor and can't be bought OTC. If your doctor thinks that you might have a potential to develop anaphylaxis, he/she would prescribe 1 or 2 epipens to you. However, some patients would ask for a prescribtion of the epipens from their doctors even though they didin't say they need it. Sometimes it's better to be safe than sorry.

Quote:
Originally Posted by bestest
Also, what type of doctor are you seeing for the angiodema and chronic urticaria?
I think you might be asking someone in particular but I thought I might put in my 2 cents... a dermatologist, immunologist, rheumatologist, allergist are some of the specialist that patients go to for the CU and angioedema. If the CU is cause by autoimmune urticaria, an immunologist or rheumatologist would be helpful. Some people see more than 1 type of specialist at a time. Good luck!

 
Old 03-14-2005, 11:55 PM   #13
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Re: Hives and Doxepin

I was wondering, let's say you do become immune to the effects of an anti-histamine after a while but stop taking it for a few months. If you decided to take it again would it work the way it once did or will your body always be immune to it?

 
Old 03-15-2005, 08:25 AM   #14
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Re: Hives and Doxepin

Quote:
Originally Posted by Ambush347
I was wondering, let's say you do become immune to the effects of an anti-histamine after a while but stop taking it for a few months. If you decided to take it again would it work the way it once did or will your body always be immune to it?
Sometimes your body builds a tolerance rather than being immune to it. So you may or may not benefit from that same antihistamine again. Hope someone who's better in this field will help answer your questions.

 
Old 03-15-2005, 10:12 PM   #15
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Re: Hives and Doxepin

But generally this takes a long time to happen right?

 
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