child with food servere food allergies - Allergies Message Board

kstaal · 11-04-2005, 08:04 PM

I am just looking for some suggestions. last September my son who is 2 was diagnosed with severe food allergies to egg and cashews (we were advised to avoid all nuts) he has an epi pen which we have had to use once (nothing like learning your one-year-old is anaphylaxis to eggs by going to breakfast at Ihop). This past year we have gotten good at knowing what we can feed him (and haven’t been back to Ihop since) . Then last week we started having reactions to dinners we have been feeding him for the last year. The first reaction consisted of facial hives and swollen lip which we gave him benedryl for the allergist had us come in and decided to conclude that he must have gotten egg and if it happened again we'd retest him well he has continued to happen this week a total of 5 times the allergist has set an appointment for 11/30/05 until then I have no idea what to do until then at first we thought it could be wheat and have tired to keep that out of his diet and then we wondered if it was corn. has anyone else had this where their child developed additional allergies? How did you deal with it until you could get additional testing? any suggestions would be greatly appreciated.

gec · 11-06-2005, 10:51 PM

Hi there, first of all let me say I know how scary and frustrating this all can be. My son started off with Milk and soy allergies, and was diagnosied later with egg and pork allergies. My son is now almost 8. I taught him at a very early age that he has to check with me before he eats anything. I started this at age 2 with him.

Is there a common thread to the meals you are serving? I know I have to read the ingredients very carefully because there are hidden names for the foods he is allergic to, the food allergy network has a sheet with all the names "hidden names of egg products".

The only thing I can think of is when he has a reaction, note what he ate and drank, keep a chart of it all. Do not let anyone feed him anything without ur knowledge and keep a daily chart. How fast after he ingests a food he is allergic to does he have a reaction to it ? I know with my son if it is a milk product it is immediate usually. If it is a soy product it is gastro and will be hours after the fact, and causes him to have colitis.

Last year my sons behavioural specilist almost killed my son by giving him a milk product, fortunately for me he first had an immediate gastro reaction. When the ambulance reached the ER room the Dr. said we got there just in the nick of time.

I am going to give you a heads up for when your son enters public school, make sure before he enters school you set up for a 504 meeting, they will be required to help you prevent him from injesting those foods, and also all the staff will have to be trained to use epi pens, ( in my state the bus drivers are as well).

Let me know how things go.

Oh ya, one more thing, my son is not only allergic to foods but also environmental things too, so we had one full allgery testing earlier this year and have to have another set done later this month. One of the things he tested postive for was every type of mold they test for. I guess this is highly rare to test postive for all of them.

I hope this is helpful to you, and please know that you are not alone. If I can help you or you want to talk more feel free to post, good luck.

monacks · 11-07-2005, 08:36 PM

I have just been diagnosed with multiple food allergies. It seems I am allergic to practically everything. But I don't have the severe reactions. My doc told me to go on a "rotation diet". Where if you eat a food today, you don't eat it for another 4 days. So I can eat apples for 24 hours, then I have to leave them alone for 3 days after the 24 hours. He said to do this with EVERYTHING I eat and to look at food groups. So let's say I eat oranges, rice and chicken today. I can't eat any citrus foods or poultry or rice until the 4th day. It sounds complicated and as I just found this out today, I have no idea how I'm going to tackle this. But it might be something to look at with your child. Good luck.