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Old 07-18-2010, 06:52 PM   #1
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Exclamation Possible Answer to Strange Symptoms

Hi,

As Iíve been suffering from strange symptoms for over 18 months now, I would like to share my experience as I know many people out there endure the same kinds of problems for so long without finding the true cause of their symptoms. If routine blood and urine tests, allergy tests, CT scans, MRIs and other tests have failed to demonstrate your problem and/or if youíve taken different medications without results, please read this post. You might be suffering from chronic heavy metal poisoning or a parasite.

This issue is very complex. As I am no doctor or scientist, my intentions are not educational, but rather informative. Although the effects of heavy metals in the body are not entirely precisely well known, the following has been confirmed :


 We are exposed to numerous toxins every day, from the air, water, food, household products, beauty products, etc. ;

 It's perfectly normal to have traces of heavy metals in our bodies, however it becomes a problem when they accumulate due to overexposure and/or an inability of the body to eliminate them efficiently ;

 Chronic heavy metal poisoning can happen to anyone and is not strictly reserved for people working in high-risk environments (industrial exposure) ;

 Symptoms vary according to the type of metals involved (mercury, arsenic, lead, cadmium, iron, aluminum, manganese, beryllium, etc.), the speed and quantity of intake (chronic, sub-acute or acute), the route of absorption (ingestion, inhalation or cutaneous) and origin (organic or inorganic) ;

 Symptoms may affect the nervous system, gastro-intestinal system, respiratory system, renal function, liver, cardiovascular function, ears-throat-nose, skin, muscles, glands, articulations, sleep, appetite, mood and behavior, etc. ;

 Chronic heavy metal poisoning may be wrongly diagnosed as fibromyalgia, polyneuralgia, psychosomatic disorder, chronic fatigue syndrome, multiple sclerosis, arthritis, myofascial strain syndrome, etc. ;

 Intoxication can range from asymptomatic to debilitating ;

 Heavy metals may be detected by specific tests using a sample of urine, hair and/or nails (and perhaps saliva?) ;

 Treatment usually consists of removal from potential sources of toxins and chelation therapy administered orally or intravenously.


All this being said, if you suspect chronic heavy metal poisoning, some doctors in conventional medicine might practically laugh at you and refer you to a psychiatristÖ I would suggest you consult an MD specializing in alternative, integrated, functional medicine. The money you spend will be worth it.

As far as parasites are concerned, these alternative doctors may have you tested for them as well, via a sample of your stool. My mother suffered from literal crawling under her skin, all over her body (even around her head) and it was so bad she could no longer sleep. This went on for almost two years before she was finally referred to a tropical diseases specialist who was able to diagnose and treat her properly. The alternative doctor who is currently treating me for chronic arsenic poisoning wouldíve suspected parasitic activity right away in her case! He inquires about your work, hobbies, eating habits, recent travels and anything else that may provide clues. His clinic is equipped with experts in nutrition, naturotherapy, massage, homeopathy and more. Everything under one roof. People from all over (even from North-East U.S.) come to this clinic located near Montreal, Quebec. The same goes for a similar clinic in Toronto, Ontario. Here they are :

<edited>

Because a list of symptoms on paper says nothing about how they are experienced by the patient, here are the symptoms I personally experienced with chronic inorganic arsenic intoxication along with additional information to allow you to better understand what this all translates to. All my symptoms are intermittent and any given day may bring a different combination of them. They get more intense during flare-ups which can last from 5 to 21 days in my case.


WEAKNESS: Probably a drop in blood pressure, however I have not measured it when this happens. Every time it was measured at a doctorís office it was fine. Affects my whole system, so this is not muscle weakness. May last anywhere from 25 minutes to 4 hours. Difficult to keep head up and eyes opened during this time.

GENERAL MALAISE & DISCOMFORT: Hard to describe, but itís a general feeling of discomfort or uneasiness. Might force me to adopt a particular position and maintain it, such as keeping my shoulders up.

FATIGUE & SLEEP: Body feels heavy when I get up from bed. Once I fall asleep, I will sleep 11-12 hours straight if nothing exterior happens to wake me up. If I do not sleep enough, it will make me feel worse during the course of the next day.

DIZZINESS: Varies in intensity. Sometimes itís typical dizziness, but other times itís rather a strange feeling in my head, as if both sides of my brain were magnets trying to bond together while charged to repel from one another. This sometimes forces me to apply pressure on my face, forehead or neck in order to make the feeling less unbearable.

ULTRA-SENSITIVITY: Eyes sensitive to light, ears sensitive to sound. At some point, I was sensitive to the vibration resonating in my body from each of my footsteps when I walked. Also, lower threshold to pain making it feel much stronger and last longer.

MYOFASCIAL PAIN / INVOLUNTARY MOVEMENT: Sensation of pulling in cheeks, pain at forehead or at temples, pain in cheekbones, facial muscles contracting heavily on their own. The involuntary contractions can be so intense that they physically tire me and I would expect to see my face deformed when I look in the mirror. Heaviness of forehead sometimes leads to an appearance of droopy eyelid(s). Discomfort sometimes strong enough to give me a hard time falling asleep.

EARS, THROAT & NOSE: Ear spasms and occasional pain or tension in them. My MRI showed light to moderate thickening or hardening of most of my sinuses. Throat constantly irritated and sore for the last 18 months, sometimes feels like a bubble of air is stuck in one side of my throat/neck which changes the sound of my voice. Alternative MD recently discovered tonsil stones behind one of my tonsils (and not ON it, which made them invisible to two ETNís even with a nasolaryngoscopy), which might or might not be linked to my intoxication and/or responsible for some of my symptoms. One swollen sublingual salivary gland visible on MRI (although radiologist failed to report it and I discovered it by looking at the images myself) was acknowledged by doctor and treated with an injection.

PARALYSIS / LOSS OF SENSATION IN LEGS: I sometimes lose all sensation in my calves. No tingling or numbness, I simply do not feel them at all! When this occurs, itís like my feet are welded into the floor. Sensation usually returns slowly during the course of the next 4-5 hours. This cycle can occur several days in a row and it makes walking very difficult. During my last flare-up, one leg was worse than the other, which made me walk like if I had "foot-drop". This time was different because I could feel the calf muscle, it seemed hardened, heavy and detached from the bone. This appeared along with swelling of the veins in my hands, thoracic tightness, pinching in chest, and discomfort in my knees-elbows-wrists as bones were protruding as if I no longer had a single ounce of fat in my body.

HANDS: Veins in hands often enlarged and sticking out more than what can be considered normal. The doctor says this is due to circulatory congestion. Hands are easily hurt by pulling a door open, cutting my nails, opening a bottle and other simple things. Sometimes the pain is constant for many hours, other days hands just feel fragile and pain occurs only upon movement. This is uncomfortable enough that I have to use both hands to put my car from "park" to "drive" and has given me the habit of using my elbows instead of my hands to close the door of my car or to get out of bed. Also, I never use my hands to lift myself up from the sofa. This is to avoid making the pain worse and because the sudden feeling upon movement/effort is like I had a thin bar of metal jumping while twisting in my hands.

EMOTIONAL: Depression, frustration, anxiety due to absence of explanations when faced with such strong and weird symptoms no one seems to understand or take seriously, etc.

OTHER: Memory loss, difficulty concentrating, changes in vision, pressure behind eyes strong enough to induce fear that something will burst inside my head, dizziness when moving eyes, pain in eyes, pain in back of skull, stiffness in neck, pimples on cheeks and forehead, pins and needles behind thighs a couple of times, etc.

POSSIBLY UNRELATED: Blood-like smell when breathing in at night (could be the tonsil stones), unexplained lumps behind ears and on forehead appearing and disappearing mysteriously, pulsing engorgement in lower gum along with tooth ache, pain and stiffness in lower back after sleep making it difficult to physically get out of bed, etc.


I truly hope this will help someone somewhere at some point to get a diagnosis and treatment. Please do not hesitate if you have any questions for me.

 
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Old 07-30-2010, 10:27 PM   #2
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Re: Possible Answer to Strange Symptoms

Hi
Thank you for sharing your story. I hope you are making progress with your recovery now you know what is wrong. I am waiting the result of a hair analysis test myself, as conventional medicine has brought few answers. I am thinking it was not such a silly move after all after hearing your story.

How long do you expect the treatment to take to help you? What does it involve?

Thanks

gjoy

Last edited by Administrator; 02-23-2011 at 12:41 PM.

 
Old 07-31-2010, 11:17 AM   #3
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Re: Possible Answer to Strange Symptoms

Hi Gjoy,

From reading a couple of your previous posts, I see you have pressure in your ears and that your bloodwork came back normal. What are your other symptoms? Did you get a scan or MRI? For how long have you been suffering?

When are you expecting the results from your hair analysis? Usually, urine is best to detect heavy metal poisoning, but hair can be good in detecting certain metals.

If you have chronic heavy metal poisoning, the treatment has at least two components. First, they should tell you to remove all possible sources of toxins by eating organic, switch your household products to natural formulas, etc. Second, they should offer your chelation treatments. I do not know if intraveinous chelation is legal or not in Australia, but that usually is what's most effective. A guy I talked to who suffered for 9 years before being diagnosed said he felt much better after 3 months of IV chelation treatments. If it's illegal where you live, they should offer it orally, which implies a ton of different nutritional supplements. A chelation agent will bind to the metals in your body in order to flush them out of your system. When doing this, you need to take more vitamins as you lose some of the essential nutriments in the process. I had started feeling better a couple of weeks after taking ''UltraClear'' by Metagenics < edited >. All this can be expensive, but well worth it.

After all this, there might be residual symptoms which will have to be treated locally. As an example, myofascial pain might require physiotherapy or injections. Or, as in my case, massages and exercize are necessary in order to counter circulatory congestion and my salivary glands have been affected (they do have a part in eliminating toxins from the body) so I will see exactly what needs to be done about it after my ultrasound scheduled for August 12th.

I hope you will get answers soon. If you do have heavy metal poisoning, I hope it is better understood in Australia than here in North America... Please let us know how it all turns out and don't hesitate if you have more questions. Even the internet fails to provide all the pertinent information in this regard, so we need to stick together and share.

Wishing you all the best!!!

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Old 08-01-2010, 03:38 AM   #4
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Re: Possible Answer to Strange Symptoms

Thank you for your info. I shall suggest to some of my friends with mystery conditions that they read your thread.

I was to get the results of the hair analysis test on Friday but they weren't in so can't be far away. I don't think my probs are from metals. It is more like a bacteria as I have improved considerably on antibiotics. The pressure is in my whole head, but I also have pain behind my right ear, and have had problems with my ear oozing. I have light and sound sensitivity. This seem to start things off such as breathing probs, difficulty walking and stammered speech. I have digestive probs too. I have been seeing doctors for a year this month, but putting up with things for a long time before that. I have had some recent luck with doctors. I hope I will get the assistance I need soon, as I like you have had a lot of trouble having anyone believe my problems.

When I find the solution I will post a thread like you have, so others can have some help. I find it hard to believe i am the only person in the world with all my problems but one doctor told me she has been searching the net for someone like me and there isn't anyone.

By the way intraveinous chelation is legal and readily available in Australia. I see they use it for heart blockages too. I hadn't heard of it before so it was interesting to read about it, and am glad it worked for you.

Gjoy

Last edited by Administrator; 02-23-2011 at 12:42 PM.

 
Old 08-01-2010, 08:51 AM   #5
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Lightbulb Re: Possible Answer to Strange Symptoms

Gjoy,

There is absolutely no doubt in my mind that someone out there is having or has had the same problems you are experiencing right now. I just hope the diagnosis you will get will be black-on-white precise and reversible. I also wish for you that it's something generally better understood than heavy metal poisoning. When I got my diagnosis, I thought it would be clear for all doctors, however the medical community here is still skeptical about this. It's hard to deal with something like this when no one understands nor takes your seriously.

As you are having stomach issues while responding well to antibiotics, I must ask: Have you been tested (stool analysis) for parasites? If the antibiotics don't allow you a full recovery, this test might be pertinent. Before the symptoms appeared, did you travel? Do you eat alot of fish, seafood and/or sushi? Among other things, these two points could be red flags.

And finally, did you have a cerebral MRI? If so, what did it show? In my personal opinion, I believe it is an important element (especially if you test negative to metals and parasites).

Take good care and keep us posted,



SingingAngel

 
Old 08-02-2010, 01:14 AM   #6
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Re: Possible Answer to Strange Symptoms

Hi
Thanks for your interest. I know there will be someone like me out there. I have found a few people with similar problems. maybe I am further down the track than them. I hope I will be of help to them when I am solved.

I have not been tested for parasites, nor have I been overseas. I do eat a lot of fish, usually fresh which I think is good quality or canned tuna.

I have had an MRI brain and spine. The only abnormality was fluid in the right mastoid. I was told this was nothing but I had been complaining of pain there since November. I had the MRI in January. I had a ct scan in February of the temporal bones and the fluid was still there. I have seen 4 ENT specialists. Three out of four only said if you had a mastoid problem you would be deaf. I have hyperacusis ( super sensitive hearing) and have to wear ear plugs all the time. They gave me antibiotics in the first place to see what would happen with the head pain, then my ear started oozing watery fluid. I asked the ENT if it was a Cerebrospinal Fluid leak but he said it would have shown on the scan and basically I should see a psychiatrist. No-one has been able to explain it though. I think the best response was I would have to see it to know what was happening. When I improved considerably on the antibiotics and then went backwards I was told go back to the psychiatrist. Not logical to me.

The last ENT was helpful. He tested my hearing and ear pressure and found the right has abnormal pressure and less hearing than the left.He said if you don't get the aswers you need from one doctor go to the next. He has referred me to a neurologist specializing in neuro-otology to do with the ear. They have fitted me in to see him on Friday this week.

Whether they will be able to help without anything too radical I am not sure. At this point it is a little scary when you have searched for so long and may be close to an explanation.

Although I have unwell for years the pain in my head, which I think is the cause, has only presented itself more recently, ie since November. That is when things became more complicated. I first had some of these symptoms when my son was born 24 years ago. I tried to get an answer then but was told it was anxiety. I have not felt 100% since, always this unwell feeling hanging around. I think now head pressure is a better description. I realize how little hope I would have had anytime over the years. Even with all my current problems, it is hard to dodge an anxiety diagnosis.

I see myself as a lucky person. I have a support network of family and friends. My husband and kids are great. I worry about the people without the backup or the means to search for answers. I am sure the ones like me are on psych meds and no longer able to think.

Sorry this is so long winded but you did ask and it is complicated. Thank you for thinking about my problems,

Gjoy

Last edited by Administrator; 02-23-2011 at 12:48 PM.

 
Old 08-12-2010, 01:56 AM   #7
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Re: Possible Answer to Strange Symptoms

Hi
Well I have the results of my hair analysis and it was quite a surprise. I was found to have excessive levels of mercury. I also have high levels of copper, tin and zirconium.

Did you find the medical profession believed these results? My General Practioner (GP) said he doesn't know how the mercury would get in my hair . It must be my shampoo. Doesn't have much imagination, but did send me for a blood test for mercury.

I have been given some supplements that are meant to bind to the mercury and remove it. The naturopath says it is a long process, taking one or two years.

I am a bit confused as I know I am a lot better on antibiotics, but I also know my symptoms are consistent with heavy metal toxicity.

Did your head feel like it was full of pressure? Any other insights would be helpful.

Thank you

Gjoy

Last edited by Administrator; 02-23-2011 at 12:42 PM.

 
Old 10-13-2010, 04:01 AM   #8
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Re: Possible Answer to Strange Symptoms

hey,

i have been sick for 4 years and have suspected a parasite for a long time. i've posted many times on here as well as other boards searching for a solution to my health problems. over the period of time i have been suffering i've had numerous doctors visits as well as blood tests. they cant tell me whats wrong and looked at me like i was a lunatic when i suggested i could have a parasite. between unhelpful doctors and unsuccessful attempts to treat myself i feel helpless.

i have all the symptoms and have seen physical evidence that its a worm of some sort. i get the crawling feeling too. i need help and want this thing out of me but have basically given up on doctors. im paying for health insurance yet getting no answers. i even tried to get an appointment with a naturopath and endocrinologist with no success. they said my doctor had to refer me to them and they never did.

what can i do now? is there a natural cure that could actually work?

 
Old 10-13-2010, 01:19 PM   #9
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Re: Possible Answer to Strange Symptoms

Gjoy,

Did you get tested for LYME DISEASE ???

If you get better on antibiotics, there's a chance it could be Lyme. As regular tests aren't very accurate, I would suggest you order a kit from www.igenex.com

I thought you would get intravenous chelation treatments if it's legal in Australia, but one way or another, if it doesn't work, it would be wise to get tested for Lyme.

My own symptoms did not resolve with oral chelation treatment, so I saw a specialist in internal medicine who diagnosed a ''central pain syndrome''. I asked if I could get tested for Lyme and he declined, as all doctors seem to do around here. I will see the internist again in two weeks and I'll INSIST this time around.

By the way, I saw a psychiatrist specialized in psychosomatic disorders and he said he didn't see how my symptoms could be psychosomatic! I knew it... Take THAT, doctors! LOL

How've you been, since your last post?

Hoping all is getting better!

 
Old 10-13-2010, 01:27 PM   #10
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Re: Possible Answer to Strange Symptoms

Quote:
Originally Posted by byrdganggoonies View Post
hey,

i have been sick for 4 years and have suspected a parasite for a long time. i've posted many times on here as well as other boards searching for a solution to my health problems. over the period of time i have been suffering i've had numerous doctors visits as well as blood tests. they cant tell me whats wrong and looked at me like i was a lunatic when i suggested i could have a parasite. between unhelpful doctors and unsuccessful attempts to treat myself i feel helpless.

i have all the symptoms and have seen physical evidence that its a worm of some sort. i get the crawling feeling too. i need help and want this thing out of me but have basically given up on doctors. im paying for health insurance yet getting no answers. i even tried to get an appointment with a naturopath and endocrinologist with no success. they said my doctor had to refer me to them and they never did.

what can i do now? is there a natural cure that could actually work?
Byrdganggoonies,

I understand how you feel. It's awful to be treated like this!

I went to your other posts and read about your rash, rapid hair loss and stomach issues. As I told Gjoy, you might want to get tested for Lyme (ask for tests 188 and 189, they cost approx. $100 USD each) as well via www.igenex.com

I hope this helps. Please let me know how it all goes.

Wishing you all the best!

Last edited by Administrator; 02-23-2011 at 12:43 PM.

 
Old 10-16-2010, 10:19 PM   #11
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Re: Possible Answer to Strange Symptoms

Hi

Good to hear from you. I am sorry you are still searching. How much did you improve? Did any of your symptoms resolve all together? Did you have the urine test again? Are you clear of heavy metals? Maybe you still need to balance your body chemistry after that chelation treatment. The nutritionist and the naturopath both said not to have the chemical chelation as it is too harse. I am taking glutathine and lipoec acid also chlorophyll. Overall I will say I am not much better though no worse. I am going to have my amalgam fillings replaced end of November, early December. Luckily I only have 6 left. I have a lot of trouble with my fillings breaking over the last few years and am wondering if this caused things to get worse.

I have not been tested for lyme disease but I am over doctors and tests. I am tired of being treated like an idiot. I am following through with the metal screen. I have done the 24 hour urine test but results will take 2 more weeks to come through. If anything shows there I will be able to be referred to the main poisons centre in our state. I am not holding my breath. I only want to get something in writing to show I have indeed a physical problem and not a psychiatric condition.

You were game to go to a psychosomatic disorders but it was worthwhile. I would be worried they would lock me away and throw away the key. Congratulations on your success there. How good it must have felt. I am looking forward to the day when I can get that tag of my back. The psychiatrist I see is still sitting on the fence regarding a diagnosis. If she would only say it can't be psychosomatic maybe I would get some help.

It is about 5 weeks since I have taken antibiotics and the pain in my head is getting worse again. It is behind my right ear, the ear that has a problem. The ear specialist wanted me to sort out the mercury problem. He thought it might be related to the odd ear. Last night I was awake in the night for a long time with the pain bothering me. That has not happened for ages. I know I am going backwards again. I dread the thought.

Byrdganggoonies I understand your frustration with the medical profession. I hope you can get to see a naturopath. The health food store may be able to recommend a supplement that can help with getting rid of parasites. Good luck.

Best wishes
Gjoy

Last edited by Administrator; 02-23-2011 at 12:49 PM.

 
Old 10-17-2010, 12:49 AM   #12
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Re: Possible Answer to Strange Symptoms

i just dont know anymore. i simply dont trust any doctors and am scared to go back now. pretty sure it is not lyme disease......i cant see how its not a parasite infection whether a tapeworm, roundworm, or something else. ive looked up and researched anything it could possibly be with my symptoms. these doctors are not trained to deal with parasites and only believe it happens in 3rd world countries. i dont know how i couldve possibly gotten it but theres no doubt in my mind thats what has made me weak and caused me all these conditions.

you can look at me and know something is not normal. all you have to do is look at my face is completely discolored or look at my stomach. so why do doctors look at me like im a lunatic when i suggest i probably have a parasite inside there? im tired of looking like a freak and im tired of the depression this has caused me. i just want it over because i have suffered long enough. its literally ruining my life having something i dont know what is wrong.


i dont know what to do....whether i should call for a doctor's appointment on monday and even try to get my stomach x-rayed when im there to prove to them theres something inside me. with doctors not taking my seriously i really hoped to find a way to get rid of this naturally through alternative medicine but havent found a cure. i cant deal with this any longer



"Testing for Parasites

It has been determined that the average hospital or lab is only able to catch 20% of the actual cases. Over 1000 species of parasites can live in your body and there are tests available only for 40 to 50 types. This means that your doctor, should he decide to test you, can only hope to find 5% of the parasites that can be tested for at a accuracy rate of 20% We are automatically missing 80% and have only a 20% chance of finding the remaining 5% that we can test for.

This ends up being a 1% accuracy. This is why we can have such an epidemic and it is going unnoticed."

Last edited by byrdganggoonies; 10-17-2010 at 12:51 AM.

 
Old 10-21-2010, 04:02 PM   #13
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Re: Possible Answer to Strange Symptoms

I know that adrenal dysregulation can present a host of unusual symptoms- difficult to diagnose. Sometimes too, toxic build up can be the culprit. You should do some diagnostic testing to identify the trigger. Salivary Cortisol or Neurotransmitter testing may be helpful.

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Old 10-27-2010, 08:39 PM   #14
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Exclamation Re: Possible Answer to Strange Symptoms

Byrdganggoonies:

Did you check Metametrix's G.I. test? It may detect parasites not usually found in tests run by hospitals. I would strongly suggest it.


Gjoy:

I understand you are tired of being treated like a nutcase, so I would strongly suggest you get tested for Lyme disease via iGeneX tests 188 and 189.

Lately I have read alot about it, and not only does it affect the liver's ability to process heavy metals (mercury in your case, arsenic in mine), but it's exactly the kind of disease affected people say thay were treated like deranged freaks before getting their Lyme diagnosis.

The pressure in your head and the ear problems are known symptoms of Lyme. Also, it seems hormonal changes can induce symptom manifestation (you mentioned this got worse after your pregnancy?). Most of all, you said antibiotics usually make you feel better, which is a bright red flag here.

Please get tested for Lyme through iGeneX if it's the last test you get! Or, at least read about the disease! I promise you will find similar stories to yours. If it turns out you do have Lyme, I sincerely hope you will have more luck finding a LLD (Lyme Literate Doctor) to treat you in Australia than me here in Montreal, Canada. I am hoping my doctor will accept to sign the request form as a physician's signature is mandatory. My appointment is next Wednesday.


To the both of you:

I know it's very difficult, but we cannot let go. We deserve to find answers, receive proper treatment and finally feel good again. We'll have a story to tell, and hopefully our experiences will ultimately be usefull to others in the future.

 
Old 11-01-2010, 04:31 AM   #15
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Re: Possible Answer to Strange Symptoms

Thank youfor your thoughtful reply. I have been reading about lyme disease. They are still debating whether it even exists here. It has not been confirmed and consequently testing is behind other countries.The area I live does not have ticks, however I have holidayed in tick areas. I will contact IGeneX and see if they will accept samples from here. I will wait however and see how I get on with my fillings changed. I am still waiting on the result of the 24hr urine test. I will see what comes of that too before I work out the next step.


But you are right. We do deserve to find answers and feel good again. Thank you for the push. I hope you have some luck with your appointment on Wednesday. Let us know how you get on.

Good luck

Gjoy

Last edited by Administrator; 02-23-2011 at 12:45 PM.

 
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