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Old 08-27-2010, 07:13 PM   #1
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16yo with strange symptoms

Both tests of lyme came back negative."
anneh

Last edited by anneh; 09-13-2010 at 02:04 PM.

 
Old 08-28-2010, 04:09 AM   #2
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Re: 16yo with strange symptoms

You can have Lyme with a negative test, many people do. This is why Lyme is diagnosed primarily by symptoms, not tests. Also, where was her test sent? If to a lab other than Igenex in Palo Alto California it is pretty much useless testing. You might want to explore this further.

Best,

Jen

Last edited by jenj770; 08-28-2010 at 04:09 AM.

 
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Old 09-13-2010, 10:22 AM   #3
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Re: 16yo with strange symptoms

Quote:
Originally Posted by anneh View Post
My 16yo niece has the following symptoms and I was wondering if anyone has a clue to what it might be, the doctors are stumped. Chem screen/CBC/urinalysis/Lyme tests all negative.
"It feels like tightening or like something is twisting inside of me and i dont think its my muscles at all. Sorta like a wire is through under my skin? I feel it happen everyday or once every two days lasting minutes most of the time.
Located in all my limbs: my elbow to shoulder, wrist up to elbow, ankle to knee, knee to thigh. It started in April when i felt pain in just my left arm, now i feel it in both sides of my limbs. It now occurs more frequent rather than before feeling it every couple days. The intensity of the pain did not change much. The pain is not piercing, but very uncomfortable. I don't feel any difference after playing sports or running. And i don't notice it at night.
Both tests of lyme came back negative."
anneh

 
Old 09-13-2010, 10:23 AM   #4
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Re: 16yo with strange symptoms

Quote:
Originally Posted by anneh View Post
My 16yo niece has the following symptoms and I was wondering if anyone has a clue to what it might be, the doctors are stumped. Chem screen/CBC/urinalysis/Lyme tests all negative.
"It feels like tightening or like something is twisting inside of me and i dont think its my muscles at all. Sorta like a wire is through under my skin? I feel it happen everyday or once every two days lasting minutes most of the time.
Located in all my limbs: my elbow to shoulder, wrist up to elbow, ankle to knee, knee to thigh. It started in April when i felt pain in just my left arm, now i feel it in both sides of my limbs. It now occurs more frequent rather than before feeling it every couple days. The intensity of the pain did not change much. The pain is not piercing, but very uncomfortable. I don't feel any difference after playing sports or running. And i don't notice it at night.
Both tests of lyme came back negative."
anneh
what about a neurologist? Has she seen one?

 
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