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Alzheimer's Disease & Dementia Message Board
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Old 11-17-2003, 07:05 AM   #1
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myccec HB User
Unhappy Need Friends Now

Yesterday we went to see my Pappy. This the first time in 3 years that he didn't know me. I was there when he was diagnosised with colon cancer, when he had surgery, I go see him every other weekend. About 19 months ago, my husband and I had a beautiful boy. Pappy knew him until yesterday. My heart is breaking because Pappy and I were so close.
We got home yesterday and I cried real hard. How can I keep going if he has no idea who any of are? I love him so much and yet I can't see myself pretending anymore. My grandma says be yourself- all cheery and smiles. She says I am the one who helps him. I don't know that I can help him anymore.
Please help me cope. I am the strong one in the family now and don't think I can keep it up. I need encouragement, please.

 
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Old 11-17-2003, 05:45 PM   #2
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ChanceaDoo HB User
Keep going. I know that it is hard. My grandmother had Alz. & was at home with us for 10 years. I now work in an Assisted Living which features an awesome Alz./Dementia unit. There are days that the residents will know people and other days that they won't.

I know how hard it was to see my grandmother when she no longer remembered me, but remembered my husband. I was a granny's girl and it killed me that she remembered him when I had been around longer.

But - this is what you need to remember. Your pappy might not remember who you are, but he will always connect your face with good, happy thoughts. Alz. patients can connect the fact that you have brought pain or pleasure to them.

***YOUR GRANDMOTHER IS RIGHT - YOU DO HELP HIM. THE MORE SMILES AND LAUGHTER, THE HAPPIER HE WILL BE.***

Hang in there for his sake. You will feel better in the long run, I promise.

Also - you may find great friends and support from your local Alzheimer's Association. They sponsor a support group in this area that meets monthly. At my facility, we have just begun a monthly support group for our residents & family members.

I am new to this board. This is my first post. I was actually searching for a heart problem that my Boxer dog has when I ran across the Alz. section.

Feel free to post for me any time you need some encouragement.
There are friends out there who know what you are going through and we do care.

Have a wonderful night. With prayer and support, you will get through this.

ChanceaDoo

 
Old 11-17-2003, 10:37 PM   #3
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Bettyhere HB User
Coping

We all understand how hard this is for you, but your g'mother is right. My teen-aged g'sons had to see it happen to their g'father, my husband, and none if it was easy. But, yes, you can pretend. Like most things in life, you choose how to respond to them, and sometimes pretending is as good a way to deal as anything else. You are so blessed to have had this wonderful relationship w/your Pappy, many people don't have that, you don't want to let him down now. Practice being happy and cheerful in your room, practice talking to your beloved Pappy, keep doing it over and over until you can do it w/out crying so much, you have to give yourself some support before you go to see him and practicing will help. But you can cry about him, too, and what you are losing, it's good for you, releases tension and cleanses your system. This is one of the most difficult times you will have in life, but it can have pleasant memories as well if you'll look at it that way. In the normal course of events, we all lose our parents and g'parents but we never forget. If anyone had a magic spell to make it all go away, we'd use it, but in the long run, these sorrows make us stronger. You said you're the strong one in the family--so am I, but that didn't take away my profound hurt, but you just keep doing what you have to do. So pretend for the sake of your Pappy and let your emotions out when at home, and understand that you will hurt, really hurt, but you have a husband and a child, and like the rest of us, you may not believe it right now, but you'll get thru it. Bless us all.

 
Old 11-19-2003, 06:44 PM   #4
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camachinist HB User
My best advice:
Cope by remembering him for who he was. Accept and connect with him for who he is now. Try spending some time in his world and connect through emotion rather than intellect. You know who he is and who you are and that's enough.

Hum a song together. Enjoy a flower. Share a familiar smell, like a particularly well-liked food. Savor a shared silence and a smile.

Best wishes to you and your family!

Pat

 
Old 11-20-2003, 08:49 AM   #5
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myccec HB User
Re: Need Friends Now

I do share my smiles, but Pappy is so stoned faced nowadays that I visit shorter because he becomes aggitated. Thank you to all who are helping me through this.

 
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