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Old 03-28-2001, 07:59 PM   #1
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Rinoa HB User
Unhappy EXTREMELY rapid deterioration.. it's not normal.

Hello, my grandfather has altzheimers and dimentia... I'm seeking the exact cause of it. About 2 years ago he suffered what we think was a mini stroke, and about a year ago he broke his hip. He moved into a senior living center and was on independent living until about a month ago. He had had the symptoms of beginning altzheimers for quite a while before then, but he was still living on his own and pretty much independent. at that point we decided to move him to assisted living. they began to give him toprol (100ml), but a few weeks later we discovered that he was recieving 200ml. When he went on assisted living, he began to rapidly decline (and i do mean rapidly), so as to bring him to present day... where he has the advanced symptoms of altzheimers. ONE MONTH! we all know that this isnt natural- all of the nurses at the community where he lives says they have never seen anything like it. he was on excellon(sp?) for about a week and then was just taken off of it recently. if anyone has any theory as to something that may have caused this decline, PLEASE reply... thank you so much...

------------------
Nurse: "Take your pants off and lie down."
Grandpa: "I'll give you two cents."

It's amazing how a laugh can come out of something so horrible, isn't it?..
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Nurse: "Take your pants off and lie down."
Grandpa: "I'll give you two cents."

It's amazing how a laugh can come out of something so horrible, isn't it?..

 
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Old 03-30-2001, 02:26 PM   #2
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Rinoa HB User
Unhappy

just as a follow-up, he is now much worse than he was when i posted this originally. he doesnt talk, doesnt remember HIS GIRLFRIEND WHOM HE OBSESSED OVER OFTEN, he cant even stand, and he banged his head up. i often wonder how much time is left... please reply
__________________
Nurse: "Take your pants off and lie down."
Grandpa: "I'll give you two cents."

It's amazing how a laugh can come out of something so horrible, isn't it?..

 
Old 03-30-2001, 09:37 PM   #3
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Mace HB User
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Rinoa,
Both my father and mother in laws had Alzheimer's and the times we saw them progress the fastest was due to medications or pain. In their case pain was the most noticable factor with both. The problem with both is they didn't complain about pain saying it hurts but it's just not a problem. We were usually able to figure out where the pain was coming from, once it was a fall, another time a lung infection.

Good Luck. God Bless, Mace

 
Old 04-10-2001, 05:29 PM   #4
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rolla HB User
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Hello Rinoa,
Almost 12 years experience of the AD bring me some ideas about the evolution of the desease.
Our grand'ma went through all these years with strong degrading steps.
Two years ago the all medical corpus explained us it was the end ... she was totally dependant, partly unconscious, fixing away a point during hours, with no more sign of contact with anything. She could not eat, masticate and even drinking trough a "pipe" brought almost nothing. She was livid, hard alike a branch of tree, her intestinal transit didn't work anymore and she had terrible difficulty to breath because of a strong double pneumonia!
We decided to avoid a part of the prior medication she was usually taking and maintained her at home by us.
With intravainous antibiotic and a 24 hour's care of the family - and much love - she recovered pretty well!
Now, two years after, she almost never went through further negativ steps!
She recognizes the family members, has become stressless and smile very often. She is still uncontinent and cannot eat herself, but she has begun speaking a little again...after two years off! I mean she begins speaking and after some clear and accurate words she mixes again the words. But it is encouraging!
The experience is positive and brings hope that we are going to have her happy and painless for still quite alot of good monthes or maybe years. We communicate alot! The children are very often around her for playing, playing music, ....and we invite old friends of her she recognizes again. They are all very happy, herself also.
All this to share some private and non professional experiences with you and to encourage you to feel as well as possible in such a situation.
One always should stay positiv for ourself and for the suffering parent.
Another thing, when someone with AD falls - it seemes to be a consequence and not the source of the desease. It occurs when a next negativ step has just occured, alike an attack.
About medication, one thing is very important is to give a good vaccination against pneumonia!
We maintain our grand'ma in a normal rythm of living and her vital fonctions work again pretty well! Of course we know it is not an eternal situation...but life is better for her and all the family now! The experience is extremely positiv for our children who react very well. I help my wife as much as I can, but she is very courageaous!
Of course such a result is maybe only possible if we really take good care about the suffering parent.
We think alot about you and wish you much hope and even joy with your grand'father.
May God bless you and your parent!
With my best feelings.
A Swiss friend, Eric.

 
Old 04-10-2001, 05:34 PM   #5
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rolla HB User
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Hello Rinoa,
Almost 12 years experience of the AD bring me some ideas about the evolution of the desease.
Our grand'ma went through all these years with strong degrading steps.
Two years ago the all medical corpus explained us it was the end ... she was totally dependant, partly unconscious, fixing away a point during hours, with no more sign of contact with anything. She could not eat, masticate and even drinking trough a "pipe" brought almost nothing. She was livid, hard alike a branch of tree, her intestinal transit didn't work anymore and she had terrible difficulty to breath because of a strong double pneumonia!
We decided to avoid a part of the prior medication she was usually taking and maintained her at home by us.
With intravainous antibiotic and a 24 hour's care of the family - and much love - she recovered pretty well!
Now, two years after, she almost never went through further negativ steps!
She recognizes the family members, has become stressless and smile very often. She is still uncontinent and cannot eat herself, but she has begun speaking a little again...after two years off! I mean she begins speaking and after some clear and accurate words she mixes again the words. But it is encouraging!
The experience is positive and brings hope that we are going to have her happy and painless for still quite alot of good monthes or maybe years. We communicate alot! The children are very often around her for playing, playing music, ....and we invite old friends of her she recognizes again. They are all very happy, herself also.
All this to share some private and non professional experiences with you and to encourage you to feel as well as possible in such a situation.
One always should stay positiv for ourself and for the suffering parent.
Another thing, when someone with AD falls - it seemes to be a consequence and not the source of the desease. It occurs when a next negativ step has just occured, alike an attack.
About medication, one thing is very important is to give a good vaccination against pneumonia!
We maintain our grand'ma in a normal rythm of living and her vital fonctions work again pretty well! Of course we know it is not an eternal situation...but life is better for her and all the family now! The experience is extremely positiv for our children who react very well. I help my wife as much as I can, but she is very courageaous!
Of course such a result is maybe only possible if we really take good care about the suffering parent.
We think alot about you and wish you much hope and even joy with your grand'father.
May God bless you and your parent!
With my best feelings.
A Swiss friend, Eric.

 
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