Scared - Alzheimer's Disease & Dementia Message Board

matinee · 10-13-2001, 02:30 PM

Hello, I am new here but I have found it to be a wonderful site.I read quite a few of the messages and I laughed and cried and was inspired.It also made me scared to realize what may be upcoming for myself.I was diognosed with dementia about 6 months ago,doctors feel I have had it for at least 2 to 3 years.I've had an mri done and it showed frontolobe white matter lesions.I was on a experimental drug about 4 years ago that gave me a severe reaction I was hospitalized for two weeks. The doctors feel this may have triggerd this problem.When I was in the hospital I developed urinary incontinence wish has not returned to normal.I have had testing done by a Neurophycologist in wish showed a problein memory, cognition,and speech. Recently have re-done the testing and fell 7 basis points in two years.Have recently moved into a assisted living apartment so they can keep a better eye on me. The reason I am scared is not in only having this terrible disease is that I am a 41 year male divorced with two girls age 19 and 11,and no close family to rely on for support. That is why I am so glad to find this site as you all seem to be concerned about everyone on this site and all that will come.Thank you for letting me tell my story to you as I do feel better. Thank you and god bless you all.

a1godwin · 10-19-2001, 10:12 PM

I agree with Sandy. There may be much that a support group can offer. I hope you find one in your area. If you can't, ask the neuropsychologist you have seen. He or she may have more information for you.
There is much that can be done. I don't know if you have tried or are taking any medications for your diagnosis. Many neurologists offer help in assessing if these medications would be right for you.
In our area of the country, there are several research sites that are studying memory loss. There may be several where you are that would also be able to give you pertinent information.
Keep posting and let us know if anything we have suggested has helped please.

Annette

matinee · 10-22-2001, 04:27 PM

Thank you Sandy and a1godwin,for your messages and eveyone else that had a look.I am looking for a support group as we speak,I have my doctors looking as well as myself and hopefuly we will find one.Thank you again and god bless.