It appears you have not yet registered with our community. To register please click here...


 Home Message Boards Videos Join for Free User Blogs Board Index
Search
 
Forgot your username or password?


Alzheimer's Disease & Dementia Message Board
Post New Thread   Closed Thread
Share
 
 
LinkBack Thread Tools Search this Thread Display Modes
Old 03-13-2005, 05:00 PM   #1
Senior Veteran
(female)
 
Martha H's Avatar
 
Join Date: Dec 2004
Posts: 4,696
Hugs: 26
Hugged 111 Times in 110 Posts
Thanks: 3
Thanked 122 Times in 120 Posts
Martha H HB UserMartha H HB UserMartha H HB UserMartha H HB UserMartha H HB UserMartha H HB UserMartha H HB UserMartha H HB UserMartha H HB UserMartha H HB User
Angry Can an AD patient turn it on and off????

Well, dear friends, I did finally get e-mail from my sister.

Mom is doing fine. So much better than she thought. Not deteriorated as she had heard from both me and Bill.

She goes swimming with her and Mom finds her way alone back to the showers and dressing rooms.

E is so slow that Mom has to wait for her all the time, which is a great 'and very empowering'.

I am glad Mom is happy there and having a great time.

BUT, in between the lines of this glowing report, I feel horribly criticised and misunderstood. I think E is saying, not in so may words, 'you are exaggerating Mom's condition, nothing is really wrong with her, with me she doesn't feel rushed, she is much happier, I don't see any signs of mental trouble, what's wrong with you?"

it is nothing but what I expected - but it makes me feel angry and guilty at the same time. maybe I AM doing something wrong? Is Mom's confusion because I "rush' her all the time? In what way? Is she so less 'deteriorated' than E expected because I have horribly exaggerated her condition? So why did the doctor say 'progressing rapidly, MRI needed?'

Is he making it up too?

I am upset by good news. Mom is happy there, E finds her fun to be with, etc. No toileting accidents? No smells? No inappropriate comments? No wearing odd clothes? No asking you to do her eye drops 10 minutes after you did them? No telling you 'how I met Daddy' stories and getting all the facts wrong?

No seeing her departed sister in law at the Center?

How could that be? Or is Elsie just playing one-upmanship on me again: "You can't handle her, but I can?"

I think I'll send her that "well in that case, since it is obviously me, YOU had best just keep her there in Dayton! You apparently get along better and bring out the best in her - even way more than Bill and Anna do, so we could send all the rest of her belongings to you and let her just stay there?

This may well be the end of these types of letters. What do you think? Never answer in haste, I think ..just sleep on it one night and then answer ...

Love,

Martha

Last edited by Martha H; 03-13-2005 at 05:05 PM.

 
Sponsors Lightbulb
   
Old 03-13-2005, 05:49 PM   #2
Senior Veteran
(female)
 
Join Date: Nov 2004
Posts: 1,527
Hugs: 0
Hugged 46 Times in 44 Posts
Thanks: 0
Thanked 60 Times in 46 Posts
angel_bear HB Userangel_bear HB Userangel_bear HB Userangel_bear HB Userangel_bear HB Userangel_bear HB Userangel_bear HB Userangel_bear HB User
Re: Can an AD patient turn it on and off????

Oh Martha .........

All your asking for is verification that it's not YOU!!

But yes, they can 'bung it on' (Aussie speak?) for others ... MIL is so much better behaved for BIL .. ALWAYS ...!!!!! Of course, "Good behaviour" can last for a few days ...

Rest assured, Mum IS deteriorated, and is comfortable and trusting enough around you to be 'herself' .. whatever that is this week LOL .... I do believe she's on 'bestest behaviour' for now ... remember, she CANNOT keep up the momentum for an extended time .. her natural self WILL come out ..it's just a matter of when ...

I would have a chat to Bill and air your thoughts with him ... perhaps you can unite together and approach E ? Done in love and friendship of course, but seriously, if Mum IS happier with E .. then why wreck the flow??

My friends Mum 'behaved' for 6 months .. then broke into her 'usual' behaviour ... and got shafted off to another sibling, where she was on bestest behaviour for 3 months, then the usual behaviour came out and she got shifted again ...

Hang in there .. WE know it's not you !!!!

Hugs
Sally

 
Old 03-13-2005, 05:51 PM   #3
Senior Veteran
(female)
 
Join Date: May 2003
Posts: 2,368
Hugs: 0
Hugged 28 Times in 28 Posts
Thanks: 0
Thanked 29 Times in 29 Posts
BarbaraH HB UserBarbaraH HB UserBarbaraH HB UserBarbaraH HB User
Re: Can an AD patient turn it on and off????

Hi Martha,

Just what you expected - maybe not all the facts either, but only the highlights.

When my mother visited us for the last time in Texas, she had herself under tight control. She had bathroom accidents, used her glaucoma eye drops incorrectly twice, and opened that Christmas gift bag 3 times, like I've mentioned. We shopped and she bought oddly glitzy things: wreath, Christmas cards for the next year, and a sparkling bowl. She did dress at 11pm and say she didn't want to miss anything, but my sons were staying up, so she did, too, for a little while. My family and I thought hummmm, and exchanged some alarmed glances. The trip back to VA with her was not eventful other than she got very angry when she couldn't follow me down the ramp onto the airplane. I had fallen behind a few steps and motioned her ahead - WRONG!

All was normal at her home except it was cluttered and the refrigerator was scary. Nothing prepared me for the fight over the keys at 11pm 3 nights later when she couldn't read the clock or see the night sky with understanding, or her sudden lack of comprehension of the pronoun "you" as we looked at family pictures in the middle of another day. It was as if she was home and could relax - and let all of her confusion tumble out. I was so upset that I wrote it all down - all the crazy things Mom was doing and saying, and I cried a lot. If I knew your address, I'd copy what I wrote and send it to you.

For the previous 7 months, an accountant had come to her home monthly to help her pay bills and that had worked well. I suddenly saw that Mom could not continue to live alone at all because she could not safely cook, store food, drive, or manage at all.

I wonder if you mother's control will slip soon and Elsie will see what she wishes not to see. On the other hand, your mother may lose it after she gets home like my mother did. Be ready and talk to B. about that possibility.

Perhaps you should wait a day or two before sending the email!!

You've done nothing wrong, nothing to make your mother worse, and you know it. Banish those silly and negative thoughts. You know Elsie will talk a good line just to make everything as it should be - or to pretend it is.

Enjoy your days of freedom!! Cheer that your mother is still in Ohio. What Elsie says doesn't matter. Ha!

Hugs - Barbara

 
Old 03-13-2005, 07:18 PM   #4
Senior Veteran
(female)
 
Join Date: May 2003
Posts: 2,368
Hugs: 0
Hugged 28 Times in 28 Posts
Thanks: 0
Thanked 29 Times in 29 Posts
BarbaraH HB UserBarbaraH HB UserBarbaraH HB UserBarbaraH HB User
Re: Can an AD patient turn it on and off????

p.s. -

Hi again! Did you notice the time signatures on what Sally and I wrote? We were writing to you at the same time!!!! Support from around the world!!!!!!!!!

How about that?!! Hugs - Barbara

 
Old 03-14-2005, 01:19 AM   #5
Senior Veteran
(female)
 
Martha H's Avatar
 
Join Date: Dec 2004
Posts: 4,696
Hugs: 26
Hugged 111 Times in 110 Posts
Thanks: 3
Thanked 122 Times in 120 Posts
Martha H HB UserMartha H HB UserMartha H HB UserMartha H HB UserMartha H HB UserMartha H HB UserMartha H HB UserMartha H HB UserMartha H HB UserMartha H HB User
Re: Can an AD patient turn it on and off????

Thanks girls, for your moral support, that's what I needed! Elsie called Bill and told him the same thing - Mom is fine, no visible problems at all. Mom then got on the phone and spoke to him: all the facts wrong. Garbled stories. And E. stands by and doesn't register it? It's seeing the world through rose colored glasses and B is not surprised.

Meanwhile I do have 2 more weeks of respite, a lovely trip to Miami in only 10 days, and time to clear out all the junk and get ready for both of our moves.

I sent E only a friendly message. I know she will never ask Mom to live with her because according to her, Mom cramps her life style. She said this years ago when Mom was normal, just old.

Love,

Martha

Last edited by Martha H; 03-14-2005 at 03:24 AM. Reason: sp

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Semi- circular canal occlusion surgery patient Ilovemypets Inner Ear Disorders 20 12-19-2011 04:22 PM
Active Surveillance for Prostate Cancer: Age of the Patient IADT3since2000 Cancer: Prostate 22 09-23-2010 07:01 PM
Is there such thing as a patient list Dr's have access too applecollector Fibromyalgia 5 04-29-2009 12:21 AM
Combative patient options GrownUPdadsGirl Alzheimer's Disease & Dementia 20 01-22-2009 09:26 PM
if a patient ask you why you taking another x ray what do you tell them as a xray tec cecesunshine Healthcare Professionals 3 08-23-2008 07:10 PM
dementia patient taking avelox hallucinating jeubx Alzheimer's Disease & Dementia 15 03-17-2008 09:59 AM
Our Alzheimers patient mother rejects help. Please advise ANyeF Alzheimer's Disease & Dementia 5 06-02-2006 08:24 PM
Why can't I be patient? KimberlyV Parenting Issues 3 11-07-2005 10:20 AM
i need help as fast as u can plz! always smile Alzheimer's Disease & Dementia 16 03-29-2005 07:22 PM
Wife of possible MS patient....need help!! Chella Multiple Sclerosis 9 01-10-2004 10:21 PM




Bookmarks

Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off









Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Aricept
Aspirin
Ativan
Morphine
Namenda
  Reminyl
Risperdal Seroquel
Xanax
Zoloft


Message Boards
  • Open to All Other Health Topics
  • It's Life - Off Topic Discussions
  • Natural Disaster Sympathies and Support
  • Health News
  • HealthBoards Testimonials
  • Suggestions for New Boards
  • Registration/Membership/Site Problems
  • Health Issues
  • General Health
  • Abuse Support
  • Acid Reflux / GERD
  • Acne
  • Share Your Acne Story
  • Acne Tips
  • Acute Respiratory Distress Syndrome (ARDS)
  • ADD / ADHD
  • Addiction & Recovery
  • Addison's Disease
  • Aging Issues
  • Allergies
  • Alternative Medicine
  • Alzheimer's Disease & Dementia
  • Amputation / Prosthetic
  • Amyotrophic Lateral Sclerosis (ALS)
  • Anemia
  • Aneurysm
  • Anger Management
  • Angina
  • Anxiety
  • Share Your Anxiety Story
  • Anxiety Tips
  • Arthritis
  • Asperger's Syndrome
  • Asthma
  • Autism Spectrum
  • Autoimmune Disorders
  • Back Problems
  • Beauty & Cosmetics
  • Bell's Palsy
  • Bipolar Disorder
  • Birth Control
  • Blood and Blood Vessel
  • Bone Disorders
  • Bowel Disorders
  • Brain & Head Injury
  • Brain & Nervous System Disorders
  • Brain Tumors
  • Breastfeeding
  • Burns & Injuries
  • Cancer
  • Cancer: Bladder
  • Cancer: Bone
  • Cancer: Brain
  • Cancer: Breast
  • Cancer: Cervical & Ovarian
  • Cancer: Colon
  • Cancer: Esophageal
  • Cancer: Kidney
  • Cancer: Lung
  • Cancer: Oral
  • Cancer: Pancreatic & Liver
  • Cancer: Prostate
  • Cancer: Rectal & Anal
  • Cancer: Skin
  • Cancer: Stomach
  • Cancer: Testicular
  • Cancer: Throat
  • Cancer: Thyroid
  • Cancer: Uterine
  • Candida
  • Caregivers
  • Carpal Tunnel Syndrome
  • Celiac Disease
  • Cerebral Palsy
  • Chemotherapy
  • Children - Special Needs
  • Children's Health
  • Chronic Fatigue
  • Codependency
  • Colds & Flu
  • Swine Flu (H1N1)
  • Cosmetic / Plastic Surgery
  • Costochondritis
  • Crohn's Disease / Ulcerative Colitis
  • Cystic Fibrosis
  • Death & Dying
  • Degenerative Diseases
  • Dental Health
  • Depression
  • Share Your Depression Story
  • Depression Tips
  • Diabetes
  • Hypoglycemia
  • Diet & Nutrition
  • Digestive Disorders
  • Disabilities
  • Divorce & Separation
  • Dizziness / Vertigo
  • Down Syndrome
  • Drug Interactions
  • Dyslexia
  • Dysphagia
  • Ear, Nose & Throat
  • Eating Disorder Recovery
  • Endocrine Disorders
  • Endometriosis
  • Environmental Disorders
  • Epilepsy
  • Epstein Barr Virus (EBV)
  • Exercise & Fitness
  • Eye & Vision
  • Family & Friends of Cancer Patients
  • Family & Friends of the Mentally Ill
  • Family Planning / Adoption
  • Fibromyalgia
  • Foot Problems
  • Gallbladder
  • Genetic Disorders
  • Grief & Loss
  • Hair Loss / Alopecia
  • Hair Problems
  • Headaches & Migraines
  • Health Insurance Issues
  • Healthcare Professionals
  • Healthy Lifestyle
  • Hearing Disorders
  • Heart Disorders
  • Hepatitis
  • Hernia
  • Herpes
  • High & Low Blood Pressure
  • High Cholesterol
  • HIV Prevention
  • HIV/AIDS Living With
  • Hormone Problems
  • Hospice
  • Human Papillomavirus (HPV)
  • Hypochondria
  • Hysterectomy
  • Immune Disorders
  • Incontinence
  • Infant Care (up to 18 months old)
  • Infectious Diseases
  • Infertility
  • Share Your Infertility Story
  • Inner Ear Disorders
  • Interstitial Cystitis (IC)
  • Irritable Bowel Syndrome (IBS)
  • Kidney Disorders
  • Knee & Hip Problems
  • Lasik Eye Surgery
  • Learning Disorders
  • Leukemia
  • Liver & Pancreas Disorders
  • Lung & Respiratory Disorders / COPD
  • Lupus
  • Lyme Disease
  • Share Your Lyme Disease Story
  • Lymphedema
  • Lymphomas
  • Men's Health
  • Menopause
  • Mental Health
  • Mesothelioma
  • Military Health Issues
  • Miscarriage & Still Birth
  • Mononucleosis
  • Multiple Sclerosis
  • Muscular Dystrophy
  • Myositis
  • Nail Problems
  • Neurofibromatosis
  • Neurology
  • Neuromuscular Diseases
  • Neuropathy
  • Nutritional Disorders
  • Obesity
  • Obsessive Compulsive Disorder (OCD)
  • Occupational Health & Safety
  • Orthopedic
  • Osteoporosis
  • Pain Management
  • Chronic Pain
  • Share Your Pain Management Story
  • Panic Disorders
  • Paralysis
  • Parenting Issues
  • Parkinson's Disease
  • Personality Disorder
  • Phobias
  • Pituitary Disease
  • Polio
  • Polycystic Ovary Syndrome (PCOS)
  • Post-Traumatic Stress Disorder (PTSD)
  • Postpartum Depression (PPD)
  • Pregnancy
  • Share Your Pregnancy Story
  • Pregnancy Tips
  • 2010 Mommies
  • 2011 Mommies
  • Pregnancy-Teen
  • Prostatitis
  • Psoriasis
  • Rape / Sexual Abuse
  • Rare Disorders
  • Raynaud's Syndrome
  • Reflex Sympathetic Dystrophy
  • Relationship Health
  • Restless Leg Syndrome
  • Rosacea
  • Sarcoidosis
  • Schizophrenia
  • Scoliosis
  • Self-injury Recovery
  • Senior Health
  • Sexual Dysfunction Treatment
  • Sexual Health - General
  • Sexual Health - Men
  • Sexual Health - Teens
  • Sexual Health - Women
  • Sexually Transmitted Diseases
  • Shingles
  • Shoulder / Rotator Cuff Problems
  • Shyness
  • Sickle Cell Anemia
  • Sinus Problems
  • Sjögren's Syndrome
  • Skin Problems
  • Sleep Disorders
  • Smoking Cessation
  • Speech & Language Disorders
  • Spinal Cord Disorders
  • Stress
  • Stroke
  • Sudden Infant Death Syndrome (SIDS)
  • Teen Health
  • Thyroid Disorders
  • TMJ Disorder -TemporoMandibular Joint
  • Tourette Syndrome
  • Transplants
  • Trigeminal Neuralgia
  • Trying to Conceive (TTC)
  • Urology
  • Vaccination & Immunization
  • Vitamins & Supplements
  • Weight Loss
  • Weight Loss / Surgical
  • West Nile Virus
  • Women's Health



  • TOP THANKED CONTRIBUTORS

    Alzheimer's Disease & Dementia

    DGabriel10 (466), Martha H (122), meg1230 (92), ninamarc (83), angel_bear (60), ibake&pray (43), jagsmu (40), Beginning (39), TC08 (36), debbie g (34)

    Site Wide Totals

    thanbey (581), janewhite1 (528), BlueSkies14 (511), SpineAZ (484), DGabriel10 (467), mscat40 (424), tetonteri66 (421), jennybyc (404), sammy64 (391), jgrangran (364)

    All times are GMT -7. The time now is 07:28 PM.



    Site owned and operated by HealthBoards.com™
    Copyright and Terms of Use © 1998-2012 HealthBoards.com™ All rights reserved.
    Do not copy or redistribute in any form!


    SEO by vBSEO ©2011, Crawlability, Inc.