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Old 02-03-2006, 08:21 AM   #1
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needtoescape HB User
Who's Who

I am having trouble remembering (oh no...). There are times I would like to have reference to refresh my memory on the specifics. And maybe we could try having one post each on the thread and editing that post with our current status as things change? What do you think?

Reminder for those new to the boards: We are not allowed to post email addresses or other personal contact information.

Last edited by Administrator; 07-09-2007 at 01:38 AM.

 
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Old 02-03-2006, 08:38 AM   #2
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Re: Who's Who

Here's mine:

Family member: My husband (married 16 years) is 57 and showing signs of dementia. Most of the problems are very minor at this point. His other health issues are heart disease and damage from 2 heart attacks. He is on disability retirement (since his first heart attack about 6 years ago).

Diagnosis status: First appt. with neurologist was Dec. 29th 2005. All scans (CATSCAN, EEG, MRI/MRA, SPECT) came back normal. Blood tests showed high homocysteine (but no B-12 deficiency); Genetic test was positive for markers associated with AD. Neuropsych exam showed a "subtle neurogenic process" that has caused a difference between right and left brain function. They suspect a seizure disorder. The guy giving us the results said he did not think the problem is AD at this point. We are supposed to follow up now with neurologist again.

Other family members involved? Husband was an only child and his parents are both deceased. We have no children (except 2 dogs and 6 cats). I have one sister and my father who live locally.

Family history of disease? Hubby's father had AD but died from heart complications (at age 89) before the AD progressed very far.

About me: I am 45. Currently unemployed and seeking work. Since getting the results of the neuropsych exam, I have calmed down some and am not panicking any longer.

Odds and Ends: I play piano and violin and am trying to teach myself flute. I have a dream of working in an assisted living facility for aging musicians...

Last edited by needtoescape; 02-22-2006 at 07:50 PM. Reason: update info. since getting neuropsych exam results

 
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Old 02-03-2006, 08:50 AM   #3
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BarbaraH HB UserBarbaraH HB UserBarbaraH HB UserBarbaraH HB User
Re: Who's Who

I'm in! What a good idea. I, too, freak if I forget whose who has AD and all the rest of the connections we each have!!

I'm Barbara, still an only child , and I live in VA. My elderly mother had AD, beginning when she was about 84 (in my writing here, that age keeps changing as I think back and wonder when it really did begin!). I lived in TX when Mom caused us to become very, very concerned about her in 2001. I moved her into an ALF until we could move here after our younger son graduated from high school 5 months later. As it turned out, by July 2002 she was in no condition to move in with us as that time had passed. She forgot how to walk in January of '03. Despite a good appetite, she lost a frightening amount of weight in the summer of '04 and died Sept. 2, 2004. I had read that at the end, the brain forgets how to direct digestion, so weight is lost. That somewhat prepared me for her death. I miss her, but I missed her before she was completely gone, too.

I hate AD and my opinion is to do whatever works, use whatever medicines fix the problems, and addiction is okay since AD is terminal. I appreciate that my mother had already done the paperwork to give me DPOA and handed me a copy of her Living Will 15 years ago so I knew her wishes when I needed to decide about a feeding tube. Mom would have said no. I said no.

I'm here to give what help I can in memory of my mother, Dorothy, 2/29/16 to 9/2/04.

About me: I'm 54, retired because of lupus and its total fatigue (bother!), my DH and I have been married for almost 34 years (he's 8 days older than I am), our unmarried sons are 26 and 21, and I am a quilter! Love that fabric!!

Blessings to each of you and to your bundles - Barbara

Last edited by BarbaraH; 02-03-2006 at 08:55 AM.

 
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Old 02-03-2006, 08:56 AM   #4
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Sandyspen HB UserSandyspen HB User
Re: Who's Who

Hi Needtoescape, Might be a good idea for newbies.

I'm 59 (this month). I work at home. Been married 41 years. 4 grown children, 8 grandchildren.

I have 2 brothers who both work and have no wives, so I'm the lone caretaker for my mom.

My Mom was never particularly caring toward me or my brothers. Dissatisfied with her own marriage, she always worked a swing-shift to avoid him (by doing this she avoided her children as well.)

When she divorced and remarried nearly 16 years ago, we seldom saw her at all. When her 2nd hubby passed away about 6 years ago, she began needing our assistance in daily living. We believed it was because he did everything for her. But now, I think the Alzheimers had begun long before we knew or were aware of it.

She was diagnosed in April 2005. Stage 6. And came to live with me last year. Have also learned that one of her brothers died with AD.

It's been difficult for me, I think, because I never had the strong bond with her that I have with my own children. But dh is very supportive and that helps.

My experience with AD in a nutshell

Welcome to all newbies! This is the Place to be for caring and understanding!
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Old 02-03-2006, 09:41 AM   #5
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Re: Who's Who

Great idea!

I'm 46 (47 in July), never married (haven't found anyone who I can tolerate yet... ), and live with my parents - Mom is going to be 85 in June, and dad just turned 73 in December.

I have been employed at the same medical facility/HMO for the past 18 years, first as a receptionist in the Optometry Department, and for the past 10 years in the Business Office - first as the Deposit Clerk, and now as the Batch Clerk. My work has become my sanity the past few months!

Dad shows no signs of dementia/AD, but does have CHF, and diabetes.

Mom on the other hand has been displaying what I believe to be dementia symptoms for the past few months. She is also now on 5 different heart medications for CHF (diagnosed in October). We do not have an 'official' diagnosis of dementia/AD yet, as Mom refuses any tests that could diagnose either. No known family history on her side of AD, except for one uncle related by marriage, not blood. He exhibted much of the same behavior that mom is beginning to show.

This is a road I never wished to travel....if given the choice, I'd rather deal with a different terminal illness, but with the mind intact. This is SO hard!

Many blessings to everyone here!

 
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