Hi its Jo here, (just)
well its been a hard 2 weeks....mum visiting last weekend complains of pain sat arvo at about 4.30 pm...shows me the source of pain....an ugly infested red raw rash over her breast under her armpit and across her back...she didnt want to tell my brother (mon to friday carer) because it was on her breast (womens secret business)
we rushed to the doctors for the diagnosis of shingles (very painfully potentially chronic rash caused by the chicken pox virus ..can have bad complications)
more meds 3 times a day, topical ointment to be applied twice a day
A few frantic phone calls later it turns out that local council care will not apply the cream as it is deemed only a job for medical nursing stuff and they will now cancel personal care (showers!) until shingles is given the all clear by doctor 2-5 weeks possibly
so more panicked phone calls later and help is enlisted by the royal district nursing association who will visit morning and evening to apply the cream and
help with showering once a week...brilliant (not)
it just gets better and better....
shingles causes intense pain so we have beaten down a path to the drugstore for painkillers...codeine works, paracetomel doesnt
the wonderful thing about codeine......it causes constipation ....so now she struggles eating, has stomach pains...constantly trying to go to the toilet
aricept causes diarhorrea (I have read) i wish that would happen for my mum
we have to give her the codeine because if you have an AD victim moaning in pain you have to prioritise....the most important thing is pain relief
I have bought meds to aleviate constipation today and she is going back to the doctors tomorrow.
so what is more heart breaking than having your parent (my mum) go through the AD decline than having her in intense pain at the same time
moaning and crying and me saying "sorry , you cant have any more pain killers, you had some ten minutes ago" heeellooo .....what the?????
This is all so wrong in so many ways
we are to be blessed that our loved ones are not dying from a painful condition such as cancer,supposedly shielded from that...I am so ANGRY ...my mum SHOULD NOT be in pain
her poor soul, it was enough to have dad dying suddenly of a brain tumour and her grief struck and suffering from early AD
my daughter, incidentally, has been accepted into a prestigious course at Monash Uni, Melbourne studying Behavioural Neuroscience
A new course designed to have its star pupils investigate, research and treat
and find cures for diseases such as Parkinsons, Huntingdons, Alzheimers and any such brain related disease
any words of advice or encouragement badly needed right now