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Alzheimer's Disease & Dementia Message Board
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Old 01-27-2007, 02:47 PM   #1
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cheeps HB User
It's not Alz, it's lewy body dementia!!

Hi all, so many of our loved ones are being misdiagnosed with Alzheimers. Lewy's was diagnosed in Japan in 1996 and there are many Dr's that don't know what it is and call it Alzheimers. It has many of the same symptoms but the differences I found were Hallucinations and stiff limbs and body.

Hallucinations are like they think that people are there and stuff is happening and of course it's not.Stiffness in the body is like parkinsons but not that bad.

The main reason to understand a difference is because of meds. Lewy's people respond badly to med changes and don't do well with pain killers. A normal type lewys patient can go waay down hill after receiving pain meds from a surgery or a painful conditian....and you're like..."whoaaa, what just happened here. my mom is like...out of it....and before she was ok!!"

So its really important to get this word out. my father was so confused about why his wife was having all these strange problems and the drs just said,...Alz...and expected him to deal with it. cheeps

Last edited by moderator2; 01-27-2007 at 07:14 PM. Reason: Please do not post websites except as described in the posting rules section titled "How to share information".

 
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Old 01-28-2007, 03:52 PM   #2
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angel_bear HB Userangel_bear HB Userangel_bear HB Userangel_bear HB Userangel_bear HB Userangel_bear HB Userangel_bear HB Userangel_bear HB Userangel_bear HB User
Re: It's not Alz, it's lewy body dementia!!

I think too, the word Alzheimers is used too much to avoid any confusion.

You have:

Lewy Body Dementia, Pick's Disease, Vascular Dementia, Drug induced Dementia, Alcohol induced Dementia, Carer Stress Syndromes, Parkinsons and the list continues to grow.

I think it's just easier for many people to say Alzheimers to make others understand it's memory loss and futility in expecting an improvement.

Of course, any of the dementia's can't be REALLY diagnosed until autopsy. alzheimers itself CAN be diagnosed without autopsy because REAL Alzheimers is brain shrinkage and that CAN be seen on scans.

Finicky words this medical terminology creates !~

Cheers

 
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Old 02-11-2007, 06:35 PM   #3
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Lyn M HB User
Re: It's not Alz, it's lewy body dementia!!

Hi Folks:

To distinguish Louie Body watch the patient while they are walking.
The arms will be straight down by their sides, the head is hung down and they'll be taking little short shuffling steps.

Lyn M

 
Old 03-21-2007, 05:31 PM   #4
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Re: It's not Alz, it's lewy body dementia!!

Lyn --
You are describing NPH (normal pressure hydrocephalus) and Parkinson's, NOT Lewy Body Dementia (although LBD and Parkinson'a are often present together).

LBD is vastly underdiagnosed, and many physicians and neurologists seem to be totally unaware of LBD or its very prominent symptom (e.g. hallucinations, delusions, vivid dreams that the patient acts out and vocalizes in, severe reaction to neuroleptic drugs, etc.).

Correct diagnosis is critical as certain Alzheimer symptom medications can aggravate LBD, and neuroleptics can even kill someone with LBD.

PET-CT scans can help make a diagnosis and differential diagnosis for Alzheimer's and LBD, and Medicare has now approved payment for PET-CTs outside of clinical research settings under certain conditions.
Renata


Hi Folks:

To distinguish Louie Body watch the patient while they are walking.
The arms will be straight down by their sides, the head is hung down and they'll be taking little short shuffling steps.

Lyn M

 
Old 03-22-2007, 06:34 AM   #5
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Raffeer HB User
Re: It's not Alz, it's lewy body dementia!!

Actually the NPH - Normal Pressure Hydrocephalus gait is described as the feet sticking to the ground. The important thing as Renata has pointed out is that prompt correct diagnosis is critical.
NPH is diagnosed by CAT scan and spinal tap and treated by surgical implanting of a drain from the skull to the abdomen. NPH is reversible if caught in time.
Beatrice

Quote:
Originally Posted by raffcons View Post
Lyn --
You are describing NPH (normal pressure hydrocephalus) and Parkinson's, NOT Lewy Body Dementia (although LBD and Parkinson'a are often present together).

Correct diagnosis is critical as certain Alzheimer symptom medications can aggravate LBD, and neuroleptics can even kill someone with LBD.

PET-CT scans can help make a diagnosis and differential diagnosis for Alzheimer's and LBD, and Medicare has now approved payment for PET-CTs outside of clinical research settings under certain conditions.
Renata


Hi Folks:

To distinguish Louie Body watch the patient while they are walking.
The arms will be straight down by their sides, the head is hung down and they'll be taking little short shuffling steps.

Lyn M

Last edited by Raffeer; 03-22-2007 at 06:41 AM.

 
Old 03-31-2007, 11:50 AM   #6
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Re: It's not Alz, it's lewy body dementia!!

Quote:
Originally Posted by angel_bear View Post
I think too, the word Alzheimers is used too much to avoid any confusion.

You have:

Lewy Body Dementia, Pick's Disease, Vascular Dementia, Drug induced Dementia, Alcohol induced Dementia, Carer Stress Syndromes, Parkinsons and the list continues to grow.
...

Of course, any of the dementia's can't be REALLY diagnosed until autopsy. alzheimers itself CAN be diagnosed without autopsy because REAL Alzheimers is brain shrinkage and that CAN be seen on scans.

...
Cheers
I did not know that. If that is so, then perhaps my friend doesnot have AD (can you tell from an MRI? I would think so), but some other form of dementia. See my post "Alzheimers, not Alzheimers"

jb
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keep the faith ...

 
Old 03-31-2007, 12:13 PM   #7
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Re: It's not Alz, it's lewy body dementia!!

She should be seen by a Neurologist and a comprehensive diagnosis done. There is a tendemcy for the physician to ask a few simple questions of the "Who is the current President?" and "Can you count backwards by 4's?" type and then to diagnose. The only thing that this type of a diagnostic procedure will pick up is the symptom, dementia, but not what is causing the dementia.
Beatrice

 
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