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Old 04-09-2007, 12:44 PM   #1
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New Day More New Problems

Hi all,

O.K. so here I am again with more problems (like we all have) and need some advice. My husband was diagnosed 5 years ago this past February so his decline has been steady but up until just the past few months tolerable. The newest thing now is that he refuses to put his pajamas on to go to bed. He also insists on leaving the lamp in his room on because that gives him heat in his bedroom. I might add that his room is hotter than I could ever stand to sleep in. He strips the bed of the blanket and top sheet and goes to bed with nothing over him. It is almost impossible to get him to change clothes let alone shower. Showering him is an all morning job if we are allowed to do it at all. We do manage to get his hair washed and shave him.

He is on Aricept and Trazodone before bedtime. The doctor also had him on Risperdal but I had to take him off due to violent behavior. It was unbelievable!!

The other problem is he wants to eat all the time and I do mean all the time! I know that some Alzheimer patients forget they eat and I am wondering if this is what is going on. He just won't leave you alone until you feed him and I don't mean a snack either. I am at my wits end with this problem and I cannot spend my entire day and night in the kitchen. Oh and also, he gets up in the middle of the night and eats a bowl of Wheaties with enough sugar on it to choke a horse. Yipe! I could use a little help with suggestions please.

Thanks in advance for any helpful suggestions,
Jan

 
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Old 04-09-2007, 02:16 PM   #2
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Re: New Day More New Problems

You gotta pick your battles........

If he wants to sleep naked on a sheetless bed in a hot room with the light on, let him. At least he goes to bed - my grandmother would stay up all night!

The bathing part is more difficult. Do you shower him? He might be afraid to stand in the shower...my grandmother was more comfortable sitting on a shower chair. My mother used a handheld shower head to wet and rinse her. How long is his short term memory? You could trick him into bathing by saying that you are going somewhere, hopefully after he has showered and dressed he'll be on to something else.

The eating part, that is a toughie.

 
Old 04-09-2007, 03:18 PM   #3
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Re: New Day More New Problems

These problems are almost universal in AD. My Mom ate very erratically, one day a whole box of chocolates, then nothing. She never knew if she had eaten or not.

I prepared food and if she ate it, fine, if not, fine. She was neither overweight nor underweight so I ignored the odd eating habits.

I agree that PJs or not, hot room or cold, can be ignored. Getting the person to bathe is a hard one. Until Mom went to the NH she was bathing too little. It was such a battle that we just let it go. During the 3 months she lived with my brother and SIL, my wonderful SIL took showers with Mom whenever she could persuade her.

More important are taking meds incorrectly, driving, giving away money or getting 'taken' by some schemer, getting lost. It was Mom's wandering off the beaten track and getting lost that caused us to hire a home health aide for her. Then she said she felt like a prisoner, not allowed to go out alone. But she had forgotten what the red or green lights mean, and had walked in front of moving traffic a few times. This was in New York City! I remember how appalled I was when my sister said 'her freedom is more important than her safety - if she goes out and gets hit by a truck, she had a great life." I thought, and what about the life of the driver who hits her, or the passengers in a car that gets hit while someone swerves to avoid hitting her?

Drugs - Mom either forgot them, took too many, or not enough. I had to dole out one day's supply at a time, and since she was afraid of heights, I kept the pill bottles on a very high shelf. One day while I was at work she decided she hadn't had her pills, got up on a chair on top of a stepstool and a telephone book and got her pills down. She felt very proud of herself too. I don't know how many she took, or maybe none at all.

You have to keep one step ahead of the patient, and that is hard to do, especially if they are keeping you awake all night.

I am happy Mom is in a good safe nursing home!

Love,

Martha

Last edited by Martha H; 04-09-2007 at 03:21 PM.

 
Old 04-10-2007, 11:54 AM   #4
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Re: New Day More New Problems

Thanks for your input. I guess I omitted the fact that when he went to bed he was fully clothed. He wears his clothes all day, sleeps in them that night and then wears them, sleeps in them, etc. etc. It's like pulling eye teeth to get him in clean clothes. I'm having so much trouble dealing with this because he was always so clean and neat about himself and his clothes, etc. I guess if he would stay in bed at night that would help but he gets up many many times during the night and eats some of the time too.

I realize that nothing I do will change anything but it just helps to vent a little.

Thanks,
Jan

 
Old 04-10-2007, 12:43 PM   #5
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Re: New Day More New Problems

Keep on coming, and vent all you need - that's why we're here!

Love,

Martha

 
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