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Alzheimer's Disease & Dementia Message Board
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Old 10-09-2007, 10:50 AM   #1
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Ah the misery...

My father, who had an abdominal aortic aneurism plus vascular dementia (not serious), passed away on the 29th of Sept. He was in the locked AZ. ward with my mom who has fairly advanced AZ.

The last two weeks of his life, they had been able to be in the same room together. He was so delighted that they were together again as they had been married for 64 years. The burden of taking care of Mom and her disease had fallen on Dad's shoulders as I live on the East Coast and they are in Minn. and as the older generation is, they "didn't want to worry me." Dad never did figure out how to deal with Mom and how she acted as it claimed her mental powers and I ached to see him struggle to understand how his wife had slipped away from him, slowly but surely.

Dad passed Wednesday morning after he got dressed for breakfast. He sat down in his wheelchair, looking at my mother, who was still asleep, and he slipped away looking at his beloeved wife.

My mother looked for him in the unit....didn't ask, but she looked for him. Didn't eat much, just sat and looked.

I didn't take her to the funeral because that would have been for my benefit, not for hers. The weather wasn't good and I don't need her sick. After the service my husband and I went back to her NH and I told her that Daddy had passed and that we had had the funeral. She looked at me and told me to "get out." Then she sat and said "no, no,no." rocking back and forth and wringing her hands. The misery in her eyes almost did me in. I thought her guardian angels had insulated her pretty much, but she knew what I was telling her. I guess 64 years of marriage is hard to put aside even with dementia. She looked so miserable and sad it tore us apart as if losing your father isn't bad enough. We tucked he into bed with Daddy's blanket to keep her safe....

I don't know who I felt sorrier for....

 
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Old 10-09-2007, 12:25 PM   #2
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Re: Ah the misery...

My sympathy and prayers are with you and your Mom, IBake. I am so sorry for your loss. You can find comfort in the knowledge that your Mom and Dad were able to spend time together at the end. What a wonderful long relationship they had and a testement to their dedication to each other. I wish for you the strength and energy to continue on your journey with you Mom.

Love, Deb

 
Old 10-09-2007, 01:09 PM   #3
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Re: Ah the misery...

I'm so sorry. My deepest condolences. I am glad for both of your parents that they were able to be together, for the last little bit of his life.

I think you made the right decision in not taking her to the funeral.

If she asks for him again and again, it would be easier on both of you (if she forgets he has passed away) to say, " I am not sure where he is, he'll be back soon." That is a little white lie so she won't have to go through the shock of losing him anew every time she is told. ..

Love,

Martha

 
Old 10-09-2007, 03:29 PM   #4
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Re: Ah the misery...

Such challenges for you ibake&pray! So sorry for the loss of your father...and the sad feelings about your mother. This horrendous disease not only touches the inflicted...but everyone else too.

I sure agree with Martha...sometimes "the truth" is better left unsaid. .....Pam

 
Old 10-09-2007, 03:35 PM   #5
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Re: Ah the misery...

Yes, sometimes telling the truth ISN'T the right way to go.

You've told her once, you saw the reaction, I doubt very much you'll want to go THERE again !!

We had a lovely little lady who passed away a few months ago. Her husband had passed away a few months before that. She was told ... once ... and she said "yes, he was very ill, he's ok now" but for herself, she started slipping away to the point of asking us to help her die (now THAT'S hard) she finally had a horrendous fall and passed away within the week.

She got her wish.

The cold hard truth is most dementia people die a slow and miserable death. Whatever we can do to make them smile makes it that little bit easier.

 
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