The AL facility called me this morning and said that they wanted me to talk to Mom..........and I did talk to my MOM. It was a strong voice not the frightened little girl whisper voice thats been there for weeks, no confussion, she's hungry and complaining about the "girls" wanting to give her a shower. I was able to have a conversation with her, a real conversation. I heard laughter........honest to God laughter coming from Mom because the CNA'S were teasing her about the dreaded shower.
She told me where she was living and what city she was in. It was wonderful. She knew she had been "gone" as she put it but she was back and for me not to worry. I spent all day there Saturday and I called the pharmacy and went through every med. that she takes. I threw away two new ones that were started after her last hospital stay. One was carafate, for ulsers- 4 a day, the Dr. thought it would help with her reflux but she doesn't have an ulser. The other was a huge calcium+vitamin D- 2 a day, she has never been able to take calcium EVER. I also stopped Spiriva- 1 a day. She still gets the neubulizer and inhaler 4 times a day. When I left there Saturday night she was totally gone and wanted to go with me because she didn't even recognize her furniture or for that matter pictures on her walls.
I'm not sure about the "why" she is back but I have to think it had everything to do with one of the medications that I stopped. Something just told me to go over those medications. So it took 48 hours to leave her system. I'm not fooling myself into believing that Mom will stay this clear but I'll take anything we can get at this point. My sisters were beginning to discuss a NH for her because she was completely GONE.
I wanted to give you all, my dear friends, a good report for once instead of one that needed some towels...... I've prayed so hard for an answer to help her, if not then I prayed for the strength to move her to a NH. If this lasts for only a short while we'll be happy for any reprieve Mom can get.
This rollercoaster ride is something else and its NO FUN. But I'm smiling today my friends and its a good feeling.
Oh chris..... that post put a great big smile on my face. Who cares what it was that brought her back, She is back and that's what matters today. I can relate to your pleasure at hearing your Mom's laughter. Mom has been in good humor for the last couple of days. I think I have talked to her 6 times and told all the grandkids to call as well. Yesterday Mom told me Sister 2 had called and she was coming to see her. I was suprised she remembered. I called her several times about the expected snow. Each time we laughed and had a good conversation. The only down side was..... guess.... sister 4 !!!Sigh!!! Mom wanted to know why Sister 4 was angry with her. I explained that Sister 4 was not angry with her but just angry. I reminded her of all the times she and I would be standing at the stove cooking 2 pounds of bacon, a pound of sausage and 2 dozen eggs, and where was in Sister 4? She was in the bathroom angry. Mom laughed. I think she got the fact that Sister 4 was not angry with her, but just with life, because she didn't ask about it again. I called her today and yes they got snow as well. She was delighted talking about it.
And Dad has had over a week of good days since the new meds kicked in
I had snow as well. Between 7 and 8 inches which is amazing. The most snow we have had in a decade. It was the wet stuff that sticks to everything. It's beautiful but wrecked my trees. I am headed out to drag limbs for a while. Oh, did I mention that we were without power for over 12 hours. That's why I was missing last night..... but it gave me time to bury myself in bed with my book light and read
So I celebrate with you today Chris.... it is a good day for us both
I had half a day with Mom. She's gone again...............God help us all. I don't know what to do? Maybe new different meds to help her hold on. But which ones will work for her? A hospital stay is out of the question it will only make her worse if thats possible. She is on zyprexa 5mg a day. Maybe risperdol or the other drug which I can't recall the name at the moment. I can't think straight right now...........damn this horrid disease. I really want to scream and scream until this is gone. I want to tell her to leave me alone for just one night. Bless her heart if she only knew how much I want to help her but I can't!!!!!!!!!
What do I try now? What do I do now? I don't expect answers friends I'm just rambling. I'm actually sick to my stomach. The phone calls are heartbreaking. I'm sure you understand. I'll close now nothing left to say.
((CHRIS*)) You need a great big hug and a day off. I am so sorry. Hang on to that one good time for now. Sometimes there is no reason why. We search for the logical in the illogical. I know how much you want to make it all better but sometimes that is just not in our future. So hang on to your sanity the best you can. I do understand how frustrating it is to be up one day and down the next three. The best thing you can do right now is give yourself some time for you. Remember that answering her questions and calming her down is the best thing you can do for her. If you can't fix the underlying problem at least, for the moment, you can make her feel more secure. That is a lot Chris.
I do hope tomorrow is a better day. Hang in there! Know we are here to hear and understand your frustration. With that hug I will wrap you in a warm fuzzy towel to help sheild you just a bit.
oh Chris, i am so sorry. this is the most wicked disease. i pray that this episode is shortlived and you have more good days. i know the feeling of just wanting one day of peace, believe me i know. hugs to you and the strength to get through this.
P.S. how long has she been on the anti-psychotics? just wondering because sometimes they can cause MORE agitation and disorientation.
So sorry to hear mom is not doing well with the meds....It was so wonderful so see you get that reprieve. It's funny I see everyone here has the same thing in common with my Uncle and that is when your loved ones have a good day, it brings the biggest smile to everyone's face, and all the hardships go out the window for that short space of time. I think that just shows how much everyone wants so badly for them to have a little peace from this illness.
Hugs from me too..Sorry to hear your mom's return was short lived. My mom has moments and sometimes even a couple of days where her voice is strong and she seems with it and appears to know what is going on, but shortly after we get news that mom is confused and out of it again. There is always the hope that medication or some other factor may be causing the confusion and not the dreaded D or A. Hope your mom will return and stay that way. Like I said there is always hope.
Moms just the same today....gone. Our Drs. visit was "interesting" to say the least. He bumped Moms zyprexa by 2mg. for 4 weeks to see if the agitation decreases.
She is doing better physically so thats a plus. She looked so pretty but tired and confused. He said it would take as long as 6 weeks for her to adjust to her new apartment and to just keep trying to calm her and don't break her routine. We stayed until supper time and she seemed fine but I've had 5 calls since we've been home. She's not afraid anymore so thats a plus also. Just confused. Not a bad day actually because we've had much worse. So we'll just keep on keeping on and do the best we can for her. Thank you for being there for me again when I am so discouraged and sad.
The doctor gave you good advice and glad he tried the new med increase. It will take a while to see the effect of the meds as well. It was several weeks before Dad's new meds calmed him down. As for the move, you have to create a long term memory of routine. It's slow going. It took Dad about 6 to 8 weeks before he had any level of comfort where he was and Mom even longer. Some adjust quicker. Your Mom will do it in her time.
I am glad it's a little better. Every little bit helps. At least she is not afraid tonight. You do such a wonderful job of calming her down and are so patient with her. She is lucky to have such a wonderful daughter Hang in there Chris. This too shall pass and be replace with something new. Know I keep you both in my thoughts and prayers.
Bless your heart deb you must have a sixth sense!!! I'm sitting here this morning with my knee throbbing as I type, My husband is taking me today to get more shots in them. YIKES!!!!! They hurt but at least there is some relief from the pain for a few months after. I guess I'll talk to hiim about fixing them if possible. But with summer coming up and we are looking forward to the lake house opening and getting away, I don't want to do anything until next winter. Now thats my plan not sure what my surgeon will say about that plan? Thank you for asking about these "old" knees deb. Thats what my little one says about them "They're old aren't they Gram. You just need some new ones. Grandpa will buy you some won't he"? So sweet. Lord I hate getting older its not for sissys is it?
I know I must be patient with Moms questions and I will be until this place becomes a long term memory. I must have been naive in thinking she would get it in a few days? Actually I guess none of us thought it would be this much of a trama for her. Boy were we wrong.
Also when I was there yesterday I went through her med. box again like I did last Saturday and I couldn't believe what I found!!!! The pharmacy was giving Mom her zyprexa for her morning meds. Never, ever did I tell then to change that med to morning. It has always been given to Mom after her supper meal.........always. I called them and they said they didn't understand what happened or why it had been changed but they would fix the problem. I was so furious and looking at Mom and wondering why on earth she was so messed up at the Drs. visit???? You must check everything and I mean everything and sometimes thats not possible. Mistakes are made but with Mom they can't make mistakes. Geezzzzzz Give me a break.This med is strong and I give it to Mom to calm her and help her sleep. She is very sensitive to meds and this one must be given in the evening.
OK my rant is over
How are your parents deb? I know that your Mom was better for a few days and we both enjoyed hearing our Moms actually laugh. Is Dad doing better now? I think of them everyday and you of course.
Guess I better start getting ready for my visit. Have a good day friend.