Acey, and one of the reasons there is such a great need for better diagnosis, awareness, and information. There are many reasons for "night visitors" and only with the proper information can we determine how to best handle the situation. If the dementia (this is NOT a diagnosis but a symptom) is caused by Lewey Bodies or some other dementia symptoms, then it is part of the dementia. I could be MC, or it could be sundowning, or it could be... We just have to figure out the could be to know which tactic we need to handle the ensuing behavior. If you used that tactic with one of the dementia causes it may do no good at all.
When a doctor say "You have dementia" and sends you home, the doctor is not doing his job. That's like saying "You have a fever" and sending you home. Yea, we know the symptom we came in with but what is causing it. Only lthen do we know what to do to best treat and deal with the cause. If a doctor looked at you and said "You have cancer" and nothing more we would be furious. We want to know where it is, how advanced, and what we need to do to best treat the condition. I want the same for all dementia patients. Instead we are giving "memory drugs" to individuals that truly need a brain shunt for NPH and anti psychotics to those with FTD where it can be fatal. We are not treating emotional distress or looking for underlying medical problem because we blame it on "dementia". Awareness and education is a must and we need to start with the medical community! So please insist on a real diagnosis and don't settle for less
k getting off my soap box::