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Old 05-06-2012, 03:31 PM   #1
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anyone else experience night visitors?

My dad possibly has alzheimers, we are still waiting for tests/evaluation its been 5 months. he has been experiencing 'visitors' at night for many months and gets hardly any sleep. these visitors range from one person, to groups of people (who all appear to be old fashioned/dressed like quaker/amish). Dad wakes to find them leaning over him staring, he things they are hurting him so tries to fight them off. (he told us he got one with a pillow the other night) he is covered with bruising as he bashes himself on night stand etc. sometimes he has a large cat with big eyes just sat there. the doctor seemed interested in the type of visitor he gets, but offers no explanation. my dads health is deteriorating rapidly he becomes lost and out of control and thinks he is dying. we have an appointment in 6 weeks with a consultant but dont think he can wait much longer.

Does anyone else have experience of this type of visitation or any explanation please. we have tried using mild sleeping pills but they dont help. thank you

 
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Old 05-06-2012, 04:20 PM   #2
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Re: anyone else experience night visitors?

Geez, how awful, Amaleigh! Does your father have other symptoms like memory problems, inability to balance checkbook, etc?

 
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Old 05-06-2012, 10:34 PM   #3
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Re: anyone else experience night visitors?

My Dad with his vascular dementia had many. Sometimes they were killing hogs, or he needed to check on his brothers who were sleeping, or people were coming in to do harm to him or others. Many mornings he would talk about his brother who visited the night before even through he had died 30 years before. He also saw bugs on the wall and fires. Parkinson and Lewy Body Dementia also have hallucination components.

It is very difficult for those with cognitive impairment to know the difference between a dream and reality. They also have difficulty knowing that the TV or radio is not real. So you might want to know what he is seeing on TV that bring on these types of delusions.

Does he have other cognitive disabilities. Does he know what day, month, season, and year it is? Can he follow simple directions? Can he subtract numbers? Does he get lost or forget who familiar people are? I do hope you can get a good diagnosis since there are so many conditions that can cause hallucinations or delusions. Sometimes it does take a while to get a diagnosis because there is not a simple test that will give you the answer you need. You might want to hurry up the process if possible. What other health problems does he have?

As I mentioned you might want to limit TV watching or make sure all TVs and radios are turned off at bedtime. Shadows can be mistaken as people so it might help to leave a light on in his room. Or he may prefer complete darkness. My best guess is the night time hallucinations are related to dreams. Does he have hallucinations during the Day.

Love, deb

 
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Old 05-07-2012, 05:28 AM   #4
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Re: anyone else experience night visitors?

Yes, my aunt did.

She is 88, with moderate stage vascular dementia.

She had many hallucinations and delusions, especially at night would confound dreams with reality. Many of them are bizarre hallucinations and delusions, which of course makes them easier to recognize, but many were of ordinary things which simply did not happen (these are the harder ones to recognize).

She was already somewhat physically incapacitated by many times she would attempt to get up (and end up falling out of bed) to "fight them", etc. They were very frightening to her.

Once we realized that she was having these confusions and hallucinations also realized eventually that many of the other things she said were happening, were also not actually happening.

Shortly after this began happening she had a fall with a broken bone and we were able to use that as a reason to get her to the right facility.

Since she has been on the right "happy cocktail" (two anti-depressants, one anti-pychotic and anti-anxiety as needed) her bizarre hallucinations greatly diminished.

Quote:
Originally Posted by amaleigh View Post
My dad possibly has alzheimers, we are still waiting for tests/evaluation its been 5 months. he has been experiencing 'visitors' at night for many months and gets hardly any sleep. these visitors range from one person, to groups of people (who all appear to be old fashioned/dressed like quaker/amish). Dad wakes to find them leaning over him staring, he things they are hurting him so tries to fight them off. (he told us he got one with a pillow the other night) he is covered with bruising as he bashes himself on night stand etc. sometimes he has a large cat with big eyes just sat there. the doctor seemed interested in the type of visitor he gets, but offers no explanation. my dads health is deteriorating rapidly he becomes lost and out of control and thinks he is dying. we have an appointment in 6 weeks with a consultant but dont think he can wait much longer.

Does anyone else have experience of this type of visitation or any explanation please. we have tried using mild sleeping pills but they dont help. thank you

 
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Old 05-07-2012, 07:13 AM   #5
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Re: anyone else experience night visitors?

You might have the doctor's check to see if he has Lewy Body Dementia. This is often misdiagnosed as AD. It is the same as Parkinsons Disease Dementia. One of the characteristics is hallucinations early on in the disease, rather than later as in AD. They also experience REM sleep behaviors such as thrashing and yelling rather than peaceful sleep.

 
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Old 05-07-2012, 02:37 PM   #6
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Re: anyone else experience night visitors?

thanks for all the replies very helpful. he has memory loss of words and finds certain tasks difficult like buttons and lighting the fire which requires two sets of things at once. we had a bad week where he was delusional when awake and obsessive over something simple like knowing his mot was due - ranting on about what if the tyre isnt there when the check the car, it was very upsetting, but the doctor said he could have a water infection which was adding to his memory problems and after several days of antibiotic he seems back to just not remembering words etc. luckily still knows mum and me (that is my worse fear) and knows that he probably has early onset alzheimers but the night visitors get worse. last night he slept in mums room and had groups of people, dog and cat, he woke mum at 3am and swapped rooms mum gave him a sleeping pill which seemed to help. I will advise her about keeping a low light of some sort on to see if that helps and will look up Lewy Body Dementia to mention to the doc. Consultant appointment 6 weeks, but asked doc to push for earlier appointment as obviously if medication can help the sooner the better. thank you again to everyone and i am so sad for all of you going through similar or any experience with a loved one it is truely heart breaking.

 
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Old 05-07-2012, 11:04 PM   #7
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Re: anyone else experience night visitors?

Amaleigh, the water infection (Urinary Tract Infection) was more than likely the cause of the sudden bizarre behavior you witnessed due to the fact that the antibiotic made it better. This is very common with the elderly or those with dementia. I learned over the years when there is a sudden decline in abilities or behavior to have a Urinalysis done.

Hope you can move the appointment up and you find your answers soon

Love, deb

 
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Old 05-08-2012, 08:42 AM   #8
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Re: anyone else experience night visitors?

I strongly second this.

At my aunt's NH they routinely screen the urine, because the effects of the UTI can be sudden and severe.

Kind of goes for any infection but many more times so for UTI, maybe because of the toxins.

Even a younger, healthy person can be affected emotionally / psychologically with a UTI.


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Amaleigh, the water infection (Urinary Tract Infection) was more than likely the cause of the sudden bizarre behavior you witnessed due to the fact that the antibiotic made it better. This is very common with the elderly or those with dementia. I learned over the years when there is a sudden decline in abilities or behavior to have a Urinalysis done.

Hope you can move the appointment up and you find your answers soon

Love, deb

 
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Old 04-26-2013, 06:33 AM   #9
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Re: anyone else experience night visitors?

Sound just like Lewy Body disease. This is another form of dementia. Did u take Dad to a neuroligst? Having these problems are very common with this disease. Of course the specifics of the dream are not important. There is meds to help somewhat with the sleeping, but unfortunately it is part of the disease and cannot be stopped. Wish u the best, u are on a long journey.

 
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Old 04-26-2013, 09:00 PM   #10
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Re: anyone else experience night visitors?

For almost 2 years before my mom(who just turned 70) was diagnosed with vascular dementia(last October) she had the visitors--started out by being my dad(died 13 yrs ago), I am open about there being 'spirits or ghosts' so I would say "oh dads just watching over you". But then there were children there that she described as having no real faces but their mouths would open and close. Mom would get angry with them because she would talk to them but they did not respond or acted like like were ignoring her. She'd yell at them to leave her alone and turn on every light in the house so they would go away and she could get some sleep(didn't work after awhile). Last year 'they' came throughout the whole day, and she resigned herself to 'take care' of them since she couldn't get rid of them. Unfortunately she kept most of the details of these visitors to herself until things got bad last fall, thats when the scary men strangers showed up, it got so bad that she called 911 to report an intruder. There was so many other things that had happened in the past year that I wish I had a clue then, but I had never experience anything of this nature in any of my family's history and she seemed to have such a convincing excuse or reason for so many episodes--i learned that dementia patients are very good manipulators. She is now living in an assisted living memory care facility at a stage 6 level and only 6 months ago she was living by herself--very cruel disease to take a woman's independence from her that fast.

 
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Old 04-27-2013, 10:20 AM   #11
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Re: anyone else experience night visitors?

dementia with hallucinations could very well be Lewie Body Dementia, Please check with yur doc. I think many dont know about it

 
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Old 04-27-2013, 10:55 AM   #12
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Re: anyone else experience night visitors?

Or it could be vascular as Deb said.... my Dad had many visitors with his Vascular Dementia. Or it could be a result of an infection... particularly a UTI. There are as many reasons for hallucinations as there are individuals that have them

Best advice is to check with his doctor. Since he has been diagnosed with the UTI, if it goes away with antibiotics, then it was probably the UTI.

Love, deb

 
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Old 05-16-2013, 04:58 PM   #13
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Re: anyone else experience night visitors?

Can't understand why you couldn't get in to see a specialist for 6 weeks (was it a neurologist, that is the first place to go). My husband, who probably has vascular dementia, was seen by a neurologist within a week of his internist finally recommending one, and MRI and CT scans were done shortly after (although they didn't show much). However, he experienced night visitors on two occasions, both when I had been out of town for a week. The first time we thought it was the Valium, but the second time there wasn't any drug to blame

 
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Old 08-06-2013, 06:36 PM   #14
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Re: anyone else experience night visitors?

It is really bad to hear, my mom had exactly the same disorder for more than a decade before she passed away two years back, had i searched this forum first, life wud have been a little easy, she had terrible hillucinations (visitors) mostly relatives who died decades ago.
Cud have been LBD as someone mentioned but i had taken her to innumerable psychologists, n practically all of them prescribed heavy dosge of sleeping pills, which took the toll.
But there is also an angle which many forget or do not consider at all, it is about ghosts or (jinns) who try to make life terrible for the person who is attacked, beleave me, there was once a healer who came to my hoise n he said ( without even asking for his help or him knowing her condition) your mom has got two djinns on her which are harassing her.
I did not pay any attention to him.
I seriously wud suggest to all to take this angle also seriously, i know that almost all of you wud take this as nonsense but still i wnated to share.

(coming back to medicine, there is also a new therapy called gama rays therapy, which shoots gama rays to the effected part of the brain, dont know how succesful it is) but every one can check this out.
Thanks

 
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Old 10-31-2013, 06:31 PM   #15
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Re: anyone else experience night visitors?

My dad has had night visitors for a long time. Please make sure there are no guns or other weapons in the home because when these visitors first started my dad thought there was a cowboy in his bedroom staring at him and he grabbed one of his pistols and shot at him striking the ceiling and leaving a hole. He could have very well shot my mom who was in the room with him as well. We removed all guns from the home and anything else we thought he might try to use to fight them. He also sees children and animals that are not there.

 
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