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Old 05-23-2012, 11:52 AM   #16
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Re: "Problem Child"/FTD

I have reached two conclusions: one, most doctors are a$$hows (hope that doesn't get me kicked off here) and, two, specialists care only about their specialty (hence the nephrologist taking her off the antidepressant that was working for her). I personally think she's a very interesting case and that the university would be interested in studying her, but the e-mail I sent to the contact person there has gone unanswered...

 
Old 05-23-2012, 12:50 PM   #17
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Re: "Problem Child"/FTD

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I have reached two conclusions: one, most doctors are a$$hows (hope that doesn't get me kicked off here) and, two, specialists care only about their specialty (hence the nephrologist taking her off the antidepressant that was working for her). I personally think she's a very interesting case and that the university would be interested in studying her, but the e-mail I sent to the contact person there has gone unanswered...
Although I don't think doctors intend to be so greedy, it is human nature.
Here in Canada, the GPs have the top ceiling for the salary due to health care and they have a limit of how many patients they can see. As the result, there are too many patients who have no family physicians. Some GPs actually go to the States to make more money for "better" future.
My GP here actually also does the business of botox and cosmetic stuff... She needs that much money. She also works at the ER. Busy but you can tell how ambitious the doctor really is. At some point, the doctor may have lost the patience to be a real good GP. A specialist or surgeon makes more money!

Nina

 
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Old 05-23-2012, 12:54 PM   #18
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Re: "Problem Child"/FTD

At any rate, I am continuing my own research into this matter... Today, when I "changed shifts" with my brother, he made the comment, "She's just like a two-year-old," and it occurred to me that two-year-olds' frontal lobes have not yet developed; I think I'm on to something here... Found an article on "behavior-variant (as opposed to aphasic or Parkinsonian) FTL dementia and another, a study, indiciating that Trazadone does help...

Last edited by all4mom; 05-23-2012 at 12:55 PM.

 
Old 05-23-2012, 01:31 PM   #19
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Re: "Problem Child"/FTD

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At any rate, I am continuing my own research into this matter... Today, when I "changed shifts" with my brother, he made the comment, "She's just like a two-year-old," and it occurred to me that two-year-olds' frontal lobes have not yet developed; I think I'm on to something here... Found an article on "behavior-variant (as opposed to aphasic or Parkinsonian) FTL dementia and another, a study, indiciating that Trazadone does help...
It is so true. The brain is like a toddler's for my FIL, for example.
Yet he is in a body of the elderly with his own life experience. When he was fuzzy, we cannot pick him up and put him in the pen or crib!
Gradually he was like 10 years old, now 5 years old and as he lost his walking ability, he is like 2 years old... As he got worse, he would be like a baby who cannot help himself! It is sad.
There is a short novel called the curious case of Mr. Benjamin Button. This novel described how the person was born as a very old man and gradually became younger and he died as a baby. The thing is this is a fiction and the person really is becoming a baby or is born to be a real old man.
In reality, it is 2 in one: the young brain and the old body!

Nina

 
Old 05-23-2012, 01:35 PM   #20
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Re: "Problem Child"/FTD

Of course even Shakespeare wrote about the cycle of life, "sans hair, sans teeth," etc., and the old saying goes, "once an adult; twice a child," and of course all dementias make victims somewhat "childlike"... But if it's a question of underdeveloped (or atrophied) frontal lobes -- the article also mentioned the involvement some protein (?) -- then it's quite literally true in the case of FTD. It emphasizes that it's NOT like AD.

Last edited by all4mom; 05-23-2012 at 01:36 PM.

 
Old 05-23-2012, 03:28 PM   #21
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Re: "Problem Child"/FTD

All, you are absolutely right that not all dementia is Alzheimer's. I ran into the same thing with Dad. He had Dementia so it was classified as Alzheimer's. In fact he had Vascular Dementia. It took me years to to get the right diagnosis. Mom was initially diagnosed with depression for several years but now has one of the better diagnosis having gone through the Memory Assessment Research Service (MARS) twice. Her diagnosis is actually Dementia consistent with Alzheimer's. As they explained... there is no definitive test at this time for Alzheimer's. I have not questioned Mom's diagnosis because she has followed the typical pattern for Alzheimer's.... as did her Mother and many other family members. But Mom and Dad's symptoms were nothing alike. His dementia fit the Vascular Dementia pattern perfectly. Yes, it is very difficult to get a correct diagnosis. Yet putting a label on what we know that fits does help validate. Much of the problems is that general physicians, which are your first responders, are not up to speed on the various types of dementia. Amazingly, of the five family members sitting on the unit porch today, each with a loved one diagnosed with Alzheimer's, four of us received the initial diagnosis as depression!!! I just hope that one day there will be a simple way to know for sure which diagnosis fits because it is important in how you treat the symptoms!!!

I will say that this problem is why we do need more awareness of this disease and each of us needs to research, question, and advocate for better diagnosis and treatment!

I am glad your Mom is a big calmer. Hopefully she will make more progresses and will be home soon..... At least you have the Trazadone in your back pocket

Love, deb

Last edited by Gabriel; 05-23-2012 at 03:29 PM.

 
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