I know this is always what happens to my FIL: he is used to his caregivers and he is willing to follow the rules by the NH given by the caregivers due to his pride. He will follow what they do and he really likes the nurse's attention when they come to care for him.
When it comes to us, it is like nothing works! The caregivers can tell him to wash or move his legs to the paddles of the wheelchair. They can tell him to move and eat and etc...
My FIL still knows he is different with us. He is like an authority and he knows he can still order his son. So my husband cannot move his legs to the paddles whatsoever. We ended up moving him with his legs up and he loves to move his legs up in the air. He loves to drag his gym shoes on the ground (we don't let him, of course.) The caregivers don't do this. Once in a while, he used the wheelchair without the paddles - guess sometimes the caregiver cannot make him do that either. Like a kid playing with it. Now he does not care if he cannot walk or talk - he is used to his state like this. He now boldly makes lots of gestures like he wants to go to the yard, or he want to wait. If he is mad, he still says "Ah" loudly to stop us. (Kind of scary to hear that loud Ah!)
In the end of July, he will have space to move to the West wing for a private room. He will still be alert but hope he will just have to get used to it.
I am kind of puzzled, is it true that he will get more moody? I thought he would be less acting since he is stopping walking/talking/eating all by himself.
The good thing is he is still alert and likes to play like a kid!
Nina
