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Old 11-28-2012, 07:57 AM   #1
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scorptired HB Userscorptired HB Userscorptired HB Userscorptired HB User
Hello and Happy Belated Thanksgiving!

It's been a while since I posted last. My husband is progressing as expected according to the doctors. I've noticed he's starting to have tremors in his right arm & hand (has had them on his left already). It's getting harder for him to hold things cause his fingers don't seem to know how to hold. He barely picks up his feet when he walks, cannot even read the clock, and even the digital clocks are confusing for him at times. I still haven't gotten anyone to help with him cause he's very resistant to the idea. When I leave him at home, I prepare a lot of food and have it easily accessible so he can remember to eat. It's just for a couple of hours but, I worry constantly that he would fall and I won't be there. He refused to go to his family Thanksgiving so we celebrated at home with our kids which was awesome. Living in the country has been a blessing for us because we don't get solicitors to the house and he's comfortable walking around the yard with the dogs, weeding (mostly pulling up my plants), and daydreaming.
The doctors have us scheduled for every 6 months now instead of, the 3 months follow ups like before. We don't cry so much anymore about it but, it still makes me extremely sad when he says things like "I wanna take a picture of you to take to heaven with me when I go".
I wish everyone a Blessed and Happy Holiday Season!

 
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Old 11-28-2012, 05:54 PM   #2
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Re: Hello and Happy Belated Thanksgiving!

Scorp, it is good to hear from you and know that you both are doing as well as possible. Please keep trying to find that perfect person that will be able to deal with hubby... and hubby will tolerate. You are already worried constantly when you leave him home alone... and you have every reason to be worried. It is truly not a good situation. It only takes a moment for something to happen.

It may work better if you bring someone in as a new family friend. Stay with this person and your hubby the first time or two they are together. Let your hubby get accustom to both of you being there. Then take a short trip out after they have bonded. Then you can start lengthening the trips until you have some time away. Refer to this person as a friend, not a care giver. That will maintain hubby's dignity. Sometimes the way you introduce care into his life makes all the difference.

Hang in there. It doesn't get easier but you do learn to manage the situation better

I am not surprised hubby refused to his family Thanksgiving. Large crowds are difficult for them to cope with. Going out of their familiar surroundings and breaking their routine is also confusing. So the quiet dinner with immediate family at home was what he could handle the best. I am glad it was a good day for all of you

Love, deb

Last edited by Gabriel; 11-28-2012 at 05:57 PM.

 
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