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Amputation / Prosthetic Message Board
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Old 06-20-2013, 01:31 PM   #1
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Join Date: Apr 2012
Location: Jackson, WY United States
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krystal562 HB User
Elective Re-amputation

I was born with Proximal Femoral Focal Deficiency (PFFD) and had my leg amputated (Below the Knee) when I was 7. They attempted to figure out how tall I would get, but they were way off, so now my residual limb is about 7 inches past my other legs knee. This has caused a lot of problems for me when I get prosthetics fit because the limb is so long that there isn't enough room for a knee. So, over the years I have been getting low quality knees because that's all that will fit. I went to the Mayo Clinic in Rochester this year to see if they would do an elective re-amputation and reconstruction of my limb. They realized that it was a problem that was effecting more than just the knees I could get, but they refused to do anything about it. I also believe that re-amputation would help my phantom limb pain -- when they originally amputated my leg, they took half of the femur and half of the tibia and fused it back together, then they reattached my heal without the foot and left all the nerves in the heal. Since my heal is what I weight bear on (although it's a very weak and painful thing), they didn't want to remove that. I'm just wondering if there is anyone out there who has convinced a doctor to do a re-amputation because I'm getting desperate here, and I'm only 18.

 
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