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Amyotrophic Lateral Sclerosis (ALS) Message Board

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Old 12-18-2016, 02:57 PM   #31
TimAlley
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Re: Status ...

Well no news is good news. Apparently there is a lot about neuropathy they just don't understand.

In kind of a hokding pattern here. Nothing failing. Constant sore throat, fasciculations and cramping. As long as stays the same I am happy.

Have a good holiday,

James

 
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Old 01-16-2017, 09:30 PM   #32
Olifants
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Re: Status ...

Hi

May you have a great 2017!

Im getting worse

Prof told me it is not MND / ALS But some neuropathy

Lot of waisting in shoulders getting worse

And my hips are getting stiff could be of some waisting in progress there as well ??

AND BATTLE TO SLEEP!
Tierd all the time no energy

I Really hope you are gine my friend

 
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Old 01-17-2017, 09:24 AM   #33
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Doesn't sound good.

Why are you having trouble sleeping? I take two Advil PM before bed. That helps me make it through the night usualky.

Are you still able to work and do all the things you normally do?

About the same here. Stiffness, cramping, fasciculations, burning, sore throat.

I am still able to exercise, work, etc.

Hope we are having these conversations about our symptoms ten years from now.

Take care,

James

 
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Old 02-13-2017, 11:17 PM   #34
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Re: Status ...

Hey Olifants,

How are you doing!

Maybe we are going to live forever.

James

 
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Old 02-19-2017, 01:19 PM   #35
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Hi Doing fine

Glad to hear you are still going strong

Same here

Mussle waisting in shoulders
Lower leggs but about the same as last

Be good my friend

 
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Old 03-13-2017, 11:28 PM   #36
TimAlley
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How are you doing?

About the same here. Still cramping, fasciculations, constant vibrations in legs, sore throat so pretty good here.

Take care,

James

 
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Old 03-23-2017, 12:43 PM   #37
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Re: Status ...

Quote:
Originally Posted by TimAlley View Post
How are you doing?

About the same here. Still cramping, fasciculations, constant vibrations in legs, sore throat so pretty good here.

Take care,

James

 
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Old 03-23-2017, 12:47 PM   #38
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Re: Status ...

Sorry to hear that you still battling with fasciculations, cramping etc.
Here the same but a lot of wasting in my shoulders fasciculations and legs
Feel my legs are stif and only get loose after I walked a bit.
It is a slowly continious thing that is getting badder by the day

But will contineu to go on
Hope you are fine and go on my friend
Hennie

 
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Old 03-23-2017, 03:24 PM   #39
TimAlley
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Yep I just don't get it. Bern almost two years since first symptom.

Still going to gym every night. Wish could see what you call wasting.

Will continue on here. Every day is a great day.

Take care,

James

 
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Old 04-04-2017, 01:29 PM   #40
Olifants
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Quote:
Originally Posted by TimAlley View Post
Yep I just don't get it. Bern almost two years since first symptom.

Still going to gym every night. Wish could see what you call wasting.

Will continue on here. Every day is a great day.

Take care,

James
Hi James would like to show you?
You take care my friend

 
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Old 04-26-2017, 09:46 PM   #41
TimAlley
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Re: Status ...

Hey Olifants,

Kind of the same here. Wrists are getting extremely sore. Lot of cramping still. Non-stop fasciculations here over entire body.

No actual failures of any muscles yet.

How are you doing?

Take care,

James

 
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Old 05-02-2017, 11:46 AM   #42
Olifants
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Re: Status ...

[QUOTE=TimAlley;5457132]Hey Olifants,

Fiasciculation al over now and then not continious.
Waisting of muscles contineu more on left side. Lower legs. Shoulders and start feeling funny stifness in hypes after a long sat down.
Swollowing is funny , swollow normal but feel if it is not complete.
Continious coughing and through clearing. Feal like a knob in my throught. If I swollow its like a small little burp comming back...
Strength is lost I can feal it is not the same it used to be. But can still paint the house and continue sort of normal.
Hope you are diing fine
I dont log in here regularly only to check how you are doing
Wish you get well

Take care,

Hennie

Last edited by Olifants; 05-02-2017 at 11:55 AM. Reason: Incorrect submission of reply no message typed

 
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Old 05-02-2017, 12:38 PM   #43
Olifants
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Re: Status ...

Just a question does jou socks leave a sunken ring around your legs whe you take them off inthe afternoon.
Look like you are holding back water.
Mine started with it like that
Much better now but still notice the ring around my lower legs - like socks preassure...

 
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Old 05-02-2017, 03:07 PM   #44
TimAlley
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I can't recall. I do remember my feet felt uncomfortable with socks so would always pull them down to my feet. That started 4 years ago.

Right now my wrists ferl as though they are sprained.

 
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