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Amyotrophic Lateral Sclerosis (ALS) Message Board

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Old 06-16-2017, 09:34 PM   #46
Olifants
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Re: Status ...

Going on
Notice more atrophy in my back "bum"
Swolloing not the same
My leg feel stiff especially whe I get up after a long sit.
Atrophy is contineuing slowly
Stil have enough strengh to go on
I just hope it will stop!

Hope you are better my friend

Winter her going hunting week after next
Looking forward but not for the walking
Must do it !!!
You go well

 
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Old 06-17-2017, 12:48 AM   #47
TimAlley
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Sounds like you are still continuing on.

My legs nonstop fasciculations. Hands have not been hurting as bad. They are still very stiff in the morning. I believe seeing sone atrophy in hands, but not for sure.

100 degrees here today. Going to keep going as long as I can.

Take care,

James

 
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Old 07-18-2017, 01:20 AM   #48
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How are you doing Olifants?

 
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Old 08-21-2017, 02:03 PM   #49
Olifants
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Hi
Im doing fine hope you are to?
My shoulders and legs getting worse
Atrophy is clearly vissable and cann feel it
Hope you are well
Hope to hear from you soon

 
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Old 08-22-2017, 01:18 AM   #50
TimAlley
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Hi Olifants,

Doing ok here.

Noticed my speech sometimes seems to be affected. I have to really try to enuciatr and cannot speak as fast.

Also noticed my hands are very stiff.

Gonna keep on living.

Take care,

James

 
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Old 09-03-2017, 02:28 PM   #51
Olifants
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James
Think of you a lot my friend
Sorry to hear about your speach.
What is the Dr saying about that?
Are the fasiculations wide spread?
Your strength how is that?
The sriffness is it only in your hands?
How are your shoulders? Are they getting tiered faster than usual? Or don't you notice a change there?
Hope you will have a great week!
It is spring here a new season just waiting for the first rain that summer can start...
Be good
Olifants

 
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Old 09-03-2017, 10:55 PM   #52
TimAlley
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Had just met w neurologist before. Do not see her for a year.

My speech is like I have to really enunciate snd dpeak fine. My face and mouth tight.

Fasciculstions everywherr.
No weakness.
Shouldes normal.

Take care,

James

 
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Old 09-13-2017, 01:52 PM   #53
Olifants
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Hi Tim Alley
You mention your speach might be affected?
Do you have swollowing problems and any coaghing?

Getting worse her some more wide spread fisciculations

Legs and shoulders see and feel the atrophy

Getting more difficult to walk esp after Ive sat for some time
Getting up I need to take it slow and then getting better as I walked a bit.

My back is also diffirent with the atrophy and Im just worried that it goes faster resently

Want to make an appontment at the neurologist for next week

Its getting more bad...

Wel hope you are fine

Olifants

 
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Old 09-13-2017, 06:57 PM   #54
TimAlley
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No real hiarseness or coughing.

Avery sore throat most of the time. My speech got better, now just little off again. I still work iut on stairmadter each night.

Fasciculations and cramping all the time.

So badically ai ferl great.

Take care,

James

 
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Old 10-11-2017, 11:06 AM   #55
Olifants
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Hi James
Hope you are doing fine my friend?
Atrophy getting worse in lowe legs and shoulders
Arms getting tierd wuickly
Keep on coughing like I have a slight swollow problem with swollowing while Im not eeting or drinking.
Eating and drining is normal...
Fasciculations in back shoulders and arms.
Some time slightly on my tong
Ive made an appointment at neurologist forcoming Tuesday 17 Oct
Also sligt burning pain in shoulders an upper arms.
Ya I dont knowany more my friend.
Hope you are fine
Have a great day
Olifants

 
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Old 10-12-2017, 08:40 AM   #56
TimAlley
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Re: Status ...

About same here.

Lot of stiffness in hands.
Late in day seems like little difficult to enunciate.
Fasciculations 24/7.
Sore throat.
Cramps.

Basically everything good. Still work out every day.

Hope appointment goes well.

Take care,

James

 
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