Status ...

08-03-2016, 06:43 AM

Symptoms.

Fasciculations year+.
Burning sensation in legs.
Cramping/muscle soreness throughout body.
Sore throat almost constant.
Stiffness throughout body legs/hands/face.

Tests:
EMG
MRI's head/neck/spine
Bloodwork
3 neurologist visits

08-03-2016, 07:00 AM

Hi James
Now getting bad atrophy over my shoulders and arms getting tired easy
Also more fasciculations in shoulders arms and hands
Saw a neurologist a month back and he said to come and see him again in 6 months
This is a bad thing
Glad you are still here and help onthers with your advise
Olifants

08-03-2016, 07:36 AM

Sorty to hear that.

Are you still walking and getting around fine?

How is your breathing and speech?

08-04-2016, 10:13 AM

Hi James
Still walking speach is fine but trought is not feeling normal
My shoulders and arms getting tierd qckly
Lot of atrophy on shoulders.
Fasciculation on back in arms and hands also on stumick
Walk legs feel stiff and getting tierd left lower leg still the bad one.
You go well
Hennie

08-04-2016, 10:31 AM

I feel like I see atrophy in forearms and left calf.

My feet burn and my hands and feet have tingling feeling.

I still go to the gym each night so who knows. Not sure if I am tired faster or the cramps make me feel so sore. Very strange.

All of this and I am enjoying each day and planning as though gonna live forever.

Hope we both get well and live forever.

James

08-05-2016, 12:35 PM

Do some loght weights every night to excersise my shoulders, not heavy excersises.
My left shoulder got the most atrophy!
Sometimes feel if the joint is pining and going to get sort of out of joint.
Should I not first become or loose power before waisting?
My arms feel sometimes like shaking inside.
With the waisting Im sure my power is less.
My arms also getting tierd easy.

Glad you got this attitude to just keep going
Proud of you
Hennie

08-06-2016, 10:02 PM

Usually it is a sudden inability to move a muscle. Possibly not able to turn keys, etc.

How long have you had symptoms?

James

08-06-2016, 10:15 PM

Atrophy start a year and half back
All start end 2012 with feet that start to swel and fasciculations in calfs

08-07-2016, 06:28 AM

That would be a very slow progression. Hope it continues that slow until we are 100 years old.

08-17-2016, 08:24 AM

How are you doing?

08-20-2016, 01:51 PM

Hi
Im getting all bad!
My shoulders atrophy a lot and my hips are sore pain.
Going to the 5th Neurolgist on Monday 22Aug
Feel like something in my throught.
Feel like Im going to speak hors
But Im stil going on went on a hunting weekend and shot a big Black wild beest last weekend
We still alive!!
But yes will let you know what the dr said.
How are you doing my friend?

Hennie

08-20-2016, 11:38 PM

Glad to hear about you out there living life.

Hope you have luck with your new neurologist. I have seen three. No more for me.

Just curious what medicines you are currently taking.

Best wishes,

Jamed

08-27-2016, 08:56 AM

Hi James
Only taking magnesium and Neorobian its a vitamin b
And an antioxidant all over the counter no subscribed meds
The Neuro I saw on Monday checked my reflexes did not realy say anything about that
Looked at my atrophy and fasciculation he saw some in my calves
He asked me if some one did talk to me about mnd? I said yes!!!
He said it is a clinical thing and need to monitor it. Come back in 6 months. Same as the 5 other since last year June
Shoulders feel its getting worse fasciculations on back arms hands a belly now and then. Are tierd all the time.
Trough feel funny and feels like Im going to speak horse but not notiable yet.
Ag yes so we must live to see what happens in the future...
You be good keep going...

08-27-2016, 10:28 AM

Well every 6 months that pass is good. Hopefully about another 100 of them pass and they still tell us to come back.

As long as no muscle failure that is good.

I have had a tightness in my throat for over a year. I also have a nearly constant sore throat. Sometimes I feel like not swallowing right. All of this related to nervous system like the burning in my limbs.

Today is still a good day.

Take care,

James

09-07-2016, 03:16 PM

James
Hope you are still doing fine?

Be good

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