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Amyotrophic Lateral Sclerosis (ALS) Message Board

the fear of als do I have it?


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Old 01-07-2017, 12:21 AM   #1
tetikitty
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the fear of als do I have it?

OK so I was diagnosed with a DVA last January and I have a small mass in my thymus during that year I've had like clavicle pain I never thought too much of nit until the last few months where my legs ,arms, fingers began to twitch like it feels like small pulses and they are random like I could have one twich on my calf and a few seconds on my other leg, I've noticed a few weeks ago that I have a dimple on my should so I measured my arm and it's smaller than the other I have no weakness i have noticed how sometimes my fingers hurt or my hands kinda cramp up, my wrists hurt my joints hurts, I did have alot of xrays and ct scans and mris over the past 2 years and they didn't found nothing I'm just really worried I have als, I can swallow fine. Breathe fine is just that my body hurts and I don't know why my neck gets stiff I sometimes get cramps around my body .

 
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Old 01-07-2017, 12:23 AM   #2
tetikitty
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Re: the fear of als do I have it?

Quote:
Originally Posted by tetikitty View Post
OK so I was diagnosed with a DVA last January and I have a small mass in my thymus during that year I've had like clavicle pain I never thought too much of nit until the last few months where my legs ,arms, fingers began to twitch like it feels like small pulses and they are random like I could have one twich on my calf and a few seconds on my other leg, I've noticed a few weeks ago that I have a dimple on my should so I measured my arm and it's smaller than the other I have no weakness i have noticed how sometimes my fingers hurt or my hands kinda cramp up, my wrists hurt my joints hurts, I did have alot of xrays and ct scans and mris over the past 2 years and they didn't found nothing I'm just really worried I have als, I can swallow fine. Breathe fine is just that my body hurts and I don't know why my neck gets stiff I sometimes get cramps around my body .
and sometimes my abdomen twitches too or I get crampa or my legs jerks or my whole body

 
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Old 01-08-2017, 01:10 AM   #3
TimAlley
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Re: the fear of als do I have it?

Hello tetikitty,

What you described does not sound like ALS. ALS imost often presents with a sudden loss of ability. For example, not being able to turn a key.

Let me ask your age, gender ans any history of neuromuscular diseases in your family.

Take care,

James

 
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Old 01-08-2017, 01:54 PM   #4
tetikitty
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Re: the fear of als do I have it?

I am 20 years old, I'm not so sure about my family neuromuscular history, we do have diabetes, strokes, and gallbladder stones

 
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Old 01-08-2017, 02:35 PM   #5
TimAlley
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Re: the fear of als do I have it?

Nothing at all like ALS. More likely to win the lottery and get struck by lightning in the same day at your age.

If you have had a comprehensive blood panel done then ask your GP for a referral to a neurologist. Quite honestly it would be a waste of time though.

Look at fibromyalgia, BFS, Chronic Fatigue Syndrome. Those are some of the hundreds of non life threatening conditions that may be responsible.

Take care,

James

 
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Old 01-08-2017, 03:18 PM   #6
tetikitty
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Re: the fear of als do I have it?

Thank you James

 
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Old 01-08-2017, 08:32 PM   #7
tetikitty
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Re: the fear of als do I have it?

I do still think I have muscle atrophy in my right arm because I can see it when I felx my fingers like my thumb and I see my bonebut I do it on my left hand and j can't see it there my right arm feels smaller than my left Also iforgot to mention that I had swollen lymph nodes for 2 years and I have chronic maxillary sinuistis it feels like I'm getting weaker and weaker everyday I feel sick when I try to grab small things it feels like I'm not grabbing anything or it feels like it's restraining I do believe I have good balance I always sleep so late I rarely excersie these symptoms have been going on for at least 2 years I also thought 2 years ago I had als but I cantseem to remeber my symptoms I have a foggy brain at times and I at times have blurry vision an I hve floaters on my left eye I belive I might be losing my sight but I'm not sureI at times have buring or stinging sensations around my muscles my face at times feels tingling or like twitches I have a very small twitching numbing senation on my tip of the tongue like the side of it I get tingle sensations around my feets and hands

Last edited by tetikitty; 01-08-2017 at 09:29 PM.

 
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Old 01-08-2017, 11:52 PM   #8
TimAlley
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Re: the fear of als do I have it?

Not ALS. I know ALS very well, but I am not a doctor.

You need to see your PCP and go from there with a possible referral to a neurologist.

Have you ever. Been diagnosed with anxiety?

Take care,

James

 
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Old 01-09-2017, 12:37 AM   #9
tetikitty
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Re: the fear of als do I have it?

No I haven't but I have the symptoms of aniexty

 
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