Been about 8 months since my Mom passed from ALS - Amyotrophic Lateral Sclerosis (ALS) Message Board

Gin79 · 06-22-2002, 03:49 AM

I miss her so much.........I dream about her all the time. Sure I'm grown, 31, but still need my Mom.

I've had a really hard time dealing with the loss. Me, my hubby and brother were caregivers. My family didn't help squat.....they like to think their one hour a week visit helped, but it didn't.

Not to mention her brother lived like 2 blocks over, grown kids, no wife, plenty of time to at least give us a break. That's all we wanted!!!!

OH, they did help at least once a month, so I could go to my home (was living at Mom's), and pay my bills!!!

You'd think family comes together during something like this, well ours fell apart. I still can't sleep at night........can't really eat, feeling very weak.

I know my Mom wouldn't want me to live like this, but watching her go from walking, talking happy person, to no talking, writing things to me in a matter of a couple of months was more then I was ready for!!!!

Not to mention when she became bedridden, and we couldn't lift her anymore, my back was so sore, and my brother's popped several times. I knew we couldn't go on that way.......we didn't hardly have time to eat!!

It was crazy, all those nurses, people coming to see her, equiptment people, supplies being delivered everyday. Was a time in my life I'll never forget.

Might add my Mom was the best ever.......she's one of those people that even the people in stores remember her, they dedicated a pic w/a plack at her church.

She always did good, always worked hard. She raised me and my brother alone, my dad & her divorced years ago. She had two jobs to raise us.......never complained.

Never was into material things......good woman.

Miss ya MOM............

Anyone that's gone through this, or going through it please write to me......just wish I had this site while she was sick.

On a positive note, I feel she comes to me in my dreams, she can walk and talk.......last time in my dream she told me "it's time to let this go......time to live your life"!!!!!

I woke up crying.............

Take care everyone, maybe talking to you will help you and me.

Gin

hyper · 06-23-2002, 08:55 AM

I lost my Dad to ALS 16 years ago. It will get easier I can assure you. My Dad would not let anyone but Mom do the caring for him. She was wonderful for him. He lived 5 years after being told of his illness before he died. His first symptom was losing his voice. It was a long hard 5 years for him. Took him three years to even accept that he had it. No one in his family has had it nor do we know anyone before. His sister has parkinson disease and his nephew died recently with Myasthenia gravis. I wonder if there is a connection.

I will check back often to help you through this.

Gin79 · 06-26-2002, 01:30 AM

Hyper.........sorry you had to go though this too.

y Mom lost her voice first too.........that type usually goes faster though......so the DOC's say. Weird thing was she always used to tell us where the ins papers and stuff were for like two years!! Wonder if she knew......cause her sis died of the same thing.

She even told a co-worker.........crying one day, what if it's like my sister (that other lady told me).

IT's like she knew........this disease sucks and I miss my Mom.....

No one can take your Mom's place, plus we were friends too.

Take care, and I'm there for you too.

Gin

hyper · 06-26-2002, 08:14 AM

I am so sorry about your Mom. I think she did know. My Dad denied it but I think deep down he knew.

I understand how you feel about your Mom. Mom's are just special. My wonderful Mom is going through Cancer for the second time in a year. Chemo has her really down this time. The Dr is giving her stronger drugs hoping to get it this time. She is just in terrible misery. Her face and hands are like on fire. Digestive problems have her all messed up too. I feel so sorry for her. My Mom is my best friend as well.

Take care and time does heal your pain. You will start to remember only the good times with your Mom.

Gin79 · 06-29-2002, 11:37 PM

So sorry about your mom being sick, that must be so hard after going through all that w/your Dad. Sending positive vibes her way!

I know time will make things better, it already has. It was 8 months ago she passed, but it seems longer for some reason! Guess since I miss her so much.

Do you ever have dreams of your dad so real, it's like they visited you in your dream? I've had several, and last week had one and my mom sat up in bed and said "it's time to move on, time to live"!!!! I woke up feeling like she'd just visited me. Plus my mom lost her voice & all here I was dreaming about it.

Take care, hope your mom is better soon.

Gin